Latest posts tagged with #LivingWithALS on Bluesky
Daily life adapts: https://bit.ly/403tku9
Small adjustments to routines, nutrition, movement, and support can make everyday living more manageable.
#ALS #LivingWithALS #DailyLife #CaregiverSupport #ChronicIllness #RareDisease #Bionews #ALSNewsToday
Three people, one in a wheelchair, conversing; join ALS News Today’s private ALS Conversations support forum.
Looking for a space? https://bit.ly/4s9Ic6B
We’ve created a new private group inside the ALS News Today forums just for forum members.
#ALS #LivingWithALS #ALSCommunity #ALSNewsToday #Bionews
Connect through your story: https://bit.ly/4oww4dV
#ALSNewsToday #Bionews #ALSCommunity #ALSAwareness #LivingWithALS #ALSCaregivers #EndALS #ALSResearch #ALSSupport #RareDiseaseCommunity
Understanding disease progression: https://bit.ly/4aGd7jp
ALS affects everyone differently, but learning about common stages can help with planning, expectations, and support decisions over time.
#ALS #ALSStages #ALSAwareness #LivingWithALS #CaregiverSupport #RareDisease #Bionews #ALSNewsToday
The way you process today belongs entirely to you.
#LivingWithALS
Start with the basics: https://bit.ly/40fh5uj
#ALS #ALSTreatment #ALSawareness #LivingWithALS #CaregiverSupport #RareDisease #PatientSupport #BioNews #ALSNewsToday
The way you process today belongs entirely to you.
#LivingWithALS
Valentine's Day heart background with the text: "Valentine's Day, Relationships, Intimacy - when health shifts the script."
A place where you can feel understood: https://bit.ly/4ahpB1V
Visit our ALS and Relationships forum to explore existing conversations or start a post of your own.
#ALS #ALSAwareness #ALSCommunity #LivingWithALS #CaregiverSupport #ALSNewsToday #RareDiseaseCommunity #Bionews
Read This Powerful Reflection: https://bit.ly/4lsbUPL
#LifeIsFragile #ALSCommunity #LivingWithALS #ALSNewsToday #Bionews
The way you process today belongs entirely to you.
#LivingWithALS
Kitchen safety tips: https://bit.ly/4p0uAIi
Practical adjustments and supportive tools can help make cooking and mealtimes safer and more manageable for people living with ALS.
#ALS #ALSSupport #LivingWithALS #ALSResources #AdaptiveLiving #ALSNewsToday #Bionews
The way you process today belongs entirely to you.
#LivingWithALS
Blue text on a purple background reads "Research Insights on Psychological Support in ALS." Key points include ACT, personalized therapy, flexible care, open dialogue, and tailored interventions.
Support that adapts: https://bit.ly/4bq22EW
A new study suggests that psychological support works best when it is flexible, personalized, and centered on open conversation rather than a one-size-fits-all approach.
#ALS #LivingWithALS #CaregiverSupport #MentalHealth #ALSNewsToday #Bionews
The way you process today belongs entirely to you.
#LivingWithALS
Bionews wishes everyone Happy Holidays. Festive decorations include candy canes, ornaments, a gingerbread cookie, and pine branches.
Holidays with ALS: https://bit.ly/4jcNquB
As this season unfolds, we’re wishing flexibility, understanding, and support that respects what each day allows.
#ALS #ALSCommunity #ALSNewsToday #CaregiverLife #LivingWithALS #RareDisease #Bionews #Hope
Holiday tips for ALS: Accept help with meals, soak up connections, suggest seating for conversations, and use mobility aids confidently.
Holiday gatherings with ALS: https://bit.ly/4qlCFbw
Holiday gatherings can look different when ALS is part of the picture.
#ALS #LivingWithALS #ALSCommunity #HolidaySeason #Accessibility #DisabilityAccess #ALSNewsToday #Bionews
Embrace gentle balance: https://bit.ly/3J9GIrr
Over an unusually busy weekend, Kristin Neva found meaningful stillness amid the warmth and activity, carefully balancing time outdoors with loved ones and quiet reflection at home.
#ALS #LivingWithALS #ChronicIllness #ALSNewsToday #Bionews
Read This Powerful Reflection: https://bit.ly/4lsbUPL
#LifeIsFragile #ALSCommunity #LivingWithALS #ALSNewsToday #Bionews
Infographic on kitchen safety with ALS: safe setup tips, cooking aids like non-slip mats, adaptive eating tools, and extra support options.
Kitchen safety tips: https://bit.ly/3Ywitb4
Practical adjustments and supportive tools can help make cooking and mealtimes safer and more manageable for people living with ALS.
#ALS #ALSSupport #LivingWithALS #ALSResources #AdaptiveLiving #ALSNewsToday #Bionews
🌴 A doctor day for Mark. We left with smiles, came home with a few aches, but got treated to mountains dusted in snow on the ride. Even the hard days give us moments worth holding onto. 🌴
🌴 #alsnetwork #ALSawareness #EndALS #ALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks 🌴
🎄🌴 “If you build it, they will come…”
Turns out all we had to build was the Christmas tree in November — and "jingle bells", we were blessed with Eric, Bill, and Spencer the fluffy one - they came ! 🎄🌴
#alsnetwork #ALSawareness #EndALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks
ALS has taught us to celebrate now, not later. These moments—decorating, laughing, being together—mean everything while Mark can fully share them. Choosing joy early this year. ✨💙🌲
#alsnetwork #ALSawareness #EndALS #ALS #alswarrior #livingwithALS #MyALSJourney #alsfighter #ALSsucks
Embrace gentle balance: https://bit.ly/3J9GIrr
Over an unusually busy weekend, Kristin Neva found meaningful stillness amid the warmth and activity, carefully balancing time outdoors with loved ones and quiet reflection at home.
#ALS #LivingWithALS #ChronicIllness #ALSNewsToday #Bionews
💙 Friends forged through the fire of ALS. Some are cALS, some have lost their pALS — all share strength, compassion, and understanding. 💙 Thank you for visiting us in Palm Springs — your friendship means more than words can say. 💙
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
A diverse group of people seated in a circle, discussing ALS. Text asks about comfort in discussing ALS and any untouchable topics.
Connect through your story: https://bit.ly/3WCTEJQ
#ALSNewsToday #Bionews #ALSCommunity #ALSAwareness #LivingWithALS #ALSCaregivers #EndALS #ALSResearch #ALSSupport #RareDiseaseCommunity
Quote by Dagmar Munn on self-care, emphasizes incorporating simple, daily actions to cut through sensory overload. ALSNewsToday.com
Setting Intentions: https://bit.ly/4o1CL7p
Columnist Dagmar Munn shares how a daily intention helps her stay grounded while living with ALS.
#ALSNewsToday #LivingWithALS #ALSToolKit #SelfCare #Mindfulness #ALSSupport #ALSCommunity #Bionews
Movie night with Wilson 🎬🍿 Popcorn, good laughs, and stand-up comedy to close it out. Thanks, Wilson — always great having you around (and hey, it’s nice to finally not be the tallest in the room 😄).
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
Italian Night 🇮🇹🍝 got pushed back while Mark rested, but Tuesday’s visit made up for it. David & Steve brought spaghetti & meatballs with fresh parmesan — so good! Grateful for the stories, laughter & company. ❤️
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
From Mrs. Roper kaftans 🌺 to St. Pat's Day 🍀 to July 4th 🎆… themed dinners are tradition. Hawaiian Night brought Aloha vibes with haystacks, pineapple cake + mango sorbet. Mahalo to David & Steve for the home-cooked fun! 🌈🥂🌴
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
David + Steve = fun filled evening 🌟
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
