Latest posts tagged with #ALS on Bluesky
Rebecca Gayheart spoke with NPR about caring for her late husband Eric Dane during his battle with #ALS
She shared the emotional experience of watching him lose his voice—and how new voice technology helped preserve it.
www.npr.org/2026/03/11/n...
#Caregiving #DisabilityAwareness
Finding your own rhythm: https://bit.ly/3KWD7gV
Dagmar Munn reflects on how actions, like balloon-blowing, humming, or mindful breathing, can help maintain a sense of control while living with ALS.
#ALS #ALSNewsToday #Bionews #AmyotrophicLateralSclerosis #ALSCommunity #LungHealth
The way you handle today is enough, whatever that looks like.
#ALS
You’re allowed to acknowledge what today looks like without downplaying it.
#ALS
Your experience is part of a wider story that deserves recognition.
#ALS
Americans of all backgrounds and income statuses are victim to delays and denials imposed by health insurance giants. Months before his death, actor Eric Dane was approved for his #ALS treatment after going through two appeal processes.
Read more via @BuzzFeed >> buff.ly/illiXkl
Three people, one in a wheelchair, conversing; join ALS News Today’s private ALS Conversations support forum.
Looking for a space? https://bit.ly/4s9Ic6B
We’ve created a new private group inside the ALS News Today forums just for forum members.
#ALS #LivingWithALS #ALSCommunity #ALSNewsToday #Bionews
In honor of the day, and in anticipation of Opening Day, I’m wearing my @slangsonsports.bsky.social “Baseball is the Best” #ALS fundraising T-shirt.
Link: rotowear.com/products/bas...
Support is available: https://bit.ly/3MOay6Q
Emotional distress can become overwhelming, but help exists through professionals, support networks, and crisis resources when needed.
#ALS #MentalHealthSupport #CaregiverSupport #ALSSupport #RareDisease #PatientSupport #Bionews #ALSNewsToday
Vanavond, nou eigenlijk vannacht, ga ik lopen om geld in te zamelen voor onderzoek naar #ALS.
Iedereen die een donatie gedaan heeft, ontzettend bedankt! En mocht je nog twijfelen om dat te doen, het kan nog steeds!
www.alssunrisewalk.nl/fundraisers/...
American Red Cross Wsi CertificATIon Exam TEST BANK Latest 2024 2025 Questions Answers For Water Safety Instructors
#testbank #testbankforAmericanRedCross #Wsi #Wsi2026 #AdvancedLifeSupport #ALS #ALS2026 #nursing #hackedexams
www.hackedexams.com
www.hackedexams.com/item/120080/...
RT1999 will be tested in a UK ALS platform trial using NfL blood biomarker; early lab data show neuron protection.
New ALS trial underway: https://bit.ly/4rrupqw
Researchers are preparing to test a new experimental therapy called RT1999 in a ALS platform trial designed to screen potential treatments more quickly.
#ALS #ClinicalTrials #ALSAwareness #ALSNewsToday #Bionews
Your worth isn’t measured in tasks, energy, or output.
#ALS
Understanding disease progression: https://bit.ly/4aGd7jp
ALS affects everyone differently, but learning about common stages can help with planning, expectations, and support decisions over time.
#ALS #ALSStages #ALSAwareness #LivingWithALS #CaregiverSupport #RareDisease #Bionews #ALSNewsToday
Comprehensive Physiology | Review Spotlight 🔦 A look back at impactful work from the lab of Jun Sun 🔬 Last year, their team published in Comprehensive Physiology, advancing our understanding of #gut-brain barrier dysfunction in #ALS. Great science worth revisiting!
https://ow.ly/wGqs50Yqrfj
🚴♂️ Mike & Thomas are cycling from Denver to the Grand Canyon to raise $34K for ALS of Michigan! Support grants for pALS: https://bit.ly/pedal4ALS
📅 ALS Night @ Jimmy John’s Field: June 26
📅 ALS Webinar w/ Dr. Shugars & John H.: Mar 26, 4‑5 PM
#ALS #ALSofMichigan #PedalForALS #CommunitySupport
Earlier detection has the potential to change how ALS and other neurodegenerative diseases are diagnosed, studied, and ultimately treated.
vist.ly/4uj8j
#longevity #diagnostics #funding #ALS #biomarkers #earlydetection
We're so proud to call Amy & Peggy Bridging Voice clients 💙 Amy founded @opals4als — a nonprofit bringing free beauty & wellness services to people living with ALS — after her own diagnosis. Read more: www.cbs58.com/news/natalie... #ALS #OPALS4ALS #BridgingVoice
Tools can help: https://bit.ly/4qK08Dc
Assistive devices can support independence, comfort, and safety as needs change. Many families find that the right equipment makes daily life more manageable.
#ALS #AssistiveTechnology #CaregiverSupport #RareDisease #Bionews #ALSNewsToday
Stay up-to-date with all of ALS United Rocky Mountain's News and Stories on our website at alsrockymountain.org.
Read more on our website at https://alsrockymountain.org/who-we-are/news-stories/ and join us as we continue the fight to #EndALS.
#ALS #Advocacy #ALSUnited #TogetherWeEndALS®
Pioneering Eye Test by Amydis Receives NIH Grant to Transform ALS Detection #USA #San_Diego #ALS #Amydis #TDP-43
An editorial from JAMA Neurology titled "Air Pollution and Motor Neuron Disease—Particulate-ly Risky" by Holly Elser, MD, PhD@1,2; Jill Goslinga, MD, MPH@3,4. Published online January 20, 2026. doi:10.1001/jamaneurol.2025.5378
Editorial: Robust evidence links chronic air pollution exposure to increased risk and accelerated progression of #ALS. ja.ma/4s7uGQO
#bioGUNE_EmpoweringWomen | 🚺 Meet Irati Mitxelena
This #WomenInBiosciences episode features her work on using #CRISPR to target #ALS mutations in #CICbioGUNE
@brtaeus.bsky.social, developing non-viral delivery systems and advancing gene-editing therapies
🎥 www.youtube.com/watch?v=lYWZ...
Read this honest perspective: https://bit.ly/4o5Sd2d
In this new column, Iomar Barrett shares his experience and why having realistic expectations can help prepare patients and caregivers for the road ahead.
#ALS #ALSNewsToday #Bionews #ALSCommunity #ALSStories #ALSAdvocacy #ALSProgression
Text asks how to deal with isolation and loneliness above a solitary man standing by a lake facing wooded hills.
Connect with others: https://bit.ly/4bneJij
#ALS #Coping #LifewithALS #ALSNewsToday #Bionews
Female-specific Cx3cr1-driven regulation of #ALS and #Alzheimer’s risk genes in #tauopathy
Ari Sudwarts & Gopal Thinakaran @thinakaran.bsky.social #microglia #transcriptome
link.springer.com/article/10.1...
ALS takes away the ability to walk, dress, write, speak, swallow, and breathe. But, with every scientific advance, we get closer to the cure. Please support me with a donation to the Walk to Defeat ALS today! secure2.convio.net/alsa/site/TR... #ALS
🏃 Run ALS Colfax runners! Join our Meet & Greet on April 29, 5–7 PM at Road Runner Sports in Westminster. Connect with runners, enjoy snacks, get shoe fittings, and 10% off purchases benefiting ALS United Rocky Mountain. RSVP by April 24: tami@alsrockymountain.org
#RunColfax #ALSUnited #ALS
