Latest posts tagged with #ALSCommunity on Bluesky
Finding your own rhythm: https://bit.ly/3KWD7gV
Dagmar Munn reflects on how actions, like balloon-blowing, humming, or mindful breathing, can help maintain a sense of control while living with ALS.
#ALS #ALSNewsToday #Bionews #AmyotrophicLateralSclerosis #ALSCommunity #LungHealth
Three people, one in a wheelchair, conversing; join ALS News Today’s private ALS Conversations support forum.
Looking for a space? https://bit.ly/4s9Ic6B
We’ve created a new private group inside the ALS News Today forums just for forum members.
#ALS #LivingWithALS #ALSCommunity #ALSNewsToday #Bionews
Connect through your story: https://bit.ly/4oww4dV
#ALSNewsToday #Bionews #ALSCommunity #ALSAwareness #LivingWithALS #ALSCaregivers #EndALS #ALSResearch #ALSSupport #RareDiseaseCommunity
Strength can exist without movement, effort, or action.
#ALScommunity
Read this honest perspective: https://bit.ly/4o5Sd2d
In this new column, Iomar Barrett shares his experience and why having realistic expectations can help prepare patients and caregivers for the road ahead.
#ALS #ALSNewsToday #Bionews #ALSCommunity #ALSStories #ALSAdvocacy #ALSProgression
Today holds space for you exactly as you are.
#ALSCommunity
Take one step: https://bit.ly/4qHWn16
After diagnosis, the path ahead can feel uncertain. Focusing on practical next steps and building a care team can help create a sense of direction.
#ALS #NewDiagnosis #ALSSupport #ALSCommunity #CaregiverSupport #RareDisease #Bionews #ALSNewsToday
Read about ALS fatigue: https://bit.ly/3WJuQQh
From pacing your day to adjusting routines, small changes can help preserve energy and peace of mind.
#ALSNewsToday #ALSCommunity #ALS #AmyotrophicLateralSclerosis #FatigueAwareness #ALSSymptoms #ALSResearch #RareDiseaseCommunity #Bionews
The impact you’ve had on people is woven into their lives in lasting ways.
#ALSCommunity
Learn about sporadic ALS: https://bit.ly/4gQ62zf
The most common form of ALS, making up about 90% of cases. This article covers genetics, symptoms, risk factors, and how it differs from familial ALS.
#ALS #ALSawareness #SporadicALS #ALSCommunity #LouGehrigsDisease #ALSNewsToday #Bionews
Maximize lung function: https://bit.ly/42MkHpe
ALS can weaken the muscles that support breathing, but there are steps you can take to protect your lungs.
#ALS #ALSNewsToday #ALSAwareness #ALSCommunity #NeuroHealth #RespiratoryHealth #RareDisease #Bionews
Across the world, homes, buildings, and communities will glow in solidarity for people living with ALS and other rare diseases.
#LightUpForRare #RareDiseaseDay #GlobalChainOfLights #ALSCommunity #ALSAwareness #EndALS #CaregiverSupport #Bionews #ALSNewsToday
Strength can exist without movement, effort, or action.
#ALScommunity
Today holds space for you exactly as you are.
#ALSCommunity
Read about ALS fatigue: https://bit.ly/3WJuQQh
From pacing your day to adjusting routines, small changes can help preserve energy and peace of mind.
#ALSNewsToday #ALSCommunity #ALS #AmyotrophicLateralSclerosis #FatigueAwareness #ALSSymptoms #ALSResearch #RareDiseaseCommunity #Bionews
Valentine's Day heart background with the text: "Valentine's Day, Relationships, Intimacy - when health shifts the script."
A place where you can feel understood: https://bit.ly/4ahpB1V
Visit our ALS and Relationships forum to explore existing conversations or start a post of your own.
#ALS #ALSAwareness #ALSCommunity #LivingWithALS #CaregiverSupport #ALSNewsToday #RareDiseaseCommunity #Bionews
Which would you join?
There are so many ways to support the ALS community—at a walk, on the slopes, at the Capitol, or from home.
Cast your vote below ⬇️
🚶 Walk ALS | ⛷️ Ski ALS | 🏛️ Advocacy Day | 💻 Virtual Fundraiser
#ALSUnited #ALSCommunity #ALS
The impact you’ve had on people is woven into their lives in lasting ways.
#ALSCommunity
Learn about sporadic ALS: https://bit.ly/4gQ62zf
The most common form of ALS, making up about 90% of cases. This article covers genetics, symptoms, risk factors, and how it differs from familial ALS.
#ALS #ALSawareness #SporadicALS #ALSCommunity #LouGehrigsDisease #ALSNewsToday #Bionews
Maximize lung function: https://bit.ly/42MkHpe
ALS can weaken the muscles that support breathing, but there are steps you can take to protect your lungs.
#ALS #ALSNewsToday #ALSAwareness #ALSCommunity #NeuroHealth #RespiratoryHealth #RareDisease #Bionews
Caregiver self-kindness: https://bit.ly/4idV0o1
This reflection offers a grounded look at what ALS caregivers often carry and why giving yourself even a small measure of compassion matters.
#ALS #ALSNewsToday #Bionews #ALSCaregiver #ALSCommunity #CaregiverSupport #ALSJourney
On Time To Talk Day, we’re reminded how important connection is.
Living with or caring for someone with ALS can take a toll on mental health—and talking about it matters.
A simple conversation can be powerful. 💙 💙
#TimeToTalkDay #MentalHealthMatters #ALSCommunity #ALSUnited #ALS
Strength can exist without movement, effort, or action.
#ALScommunity
Today holds space for you exactly as you are.
#ALSCommunity
Read This Powerful Reflection: https://bit.ly/4lsbUPL
#LifeIsFragile #ALSCommunity #LivingWithALS #ALSNewsToday #Bionews
Read about ALS fatigue: https://bit.ly/3WJuQQh
From pacing your day to adjusting routines, small changes can help preserve energy and peace of mind.
#ALSNewsToday #ALSCommunity #ALS #AmyotrophicLateralSclerosis #FatigueAwareness #ALSSymptoms #ALSResearch #RareDiseaseCommunity #Bionews
Accepting a feeding tube: https://bit.ly/3LoaU39
Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.
#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving
Venn diagram comparing early-stage ALS and Lyme disease symptoms, highlighting shared issues like muscle stiffness and respiratory weakness.
Learn what doctors test for: https://bit.ly/4qRpjVd
Some infectious diseases can cause symptoms that look similar to ALS, such as Lyme disease.
#ALSNewsToday #ALS #RareDisease #Neurology #ALSResources #ALSCommunity #LymeDisease #Bionews
The impact you’ve had on people is woven into their lives in lasting ways.
#ALSCommunity
Learn about sporadic ALS: https://bit.ly/4gQ62zf
The most common form of ALS, making up about 90% of cases. This article covers genetics, symptoms, risk factors, and how it differs from familial ALS.
#ALS #ALSawareness #SporadicALS #ALSCommunity #LouGehrigsDisease #ALSNewsToday #Bionews
