Latest posts tagged with #CFIDS on Bluesky
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #PwLC
#PostCovidSyndrome #postcovid
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
61 this year… honestly, I never thought I’d make it past 45, but here I am, Kicking life in the taint! #BirthdayGirl #CancerSurvivor #fybromyalgia #CFIDS
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
I reread Encounters last year and loved it even more than I did in 2005. The book remains highly relevant to ME today. The personal experience of having ME is unchanged—the physical unraveling, the loneliness of how other people treat you, the effort it takes to get through a single day. Sadly, the social commentary is also not out of date. We know more about ME than 20 years ago, but we still do not have adequate research funding, a biomarker, or a treatment. If you haven’t read Encounters before, I hope you will now.
5/
From
"Encounters With The Invisible: 20 Years Later" by Jennie Spotila
occupyme.net/2025/06/13/e...
#MEcfs #CFS #PwME #CFIDS #CFSME
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
More info about CFS/ME can be found here: www.iacfsme.org. As many know, I’ve cared for her when needed—often daily during those times—for many decades, even as a child. It’s been hard at times. But I’m grateful for the time with her. @mecfsnews.bsky.social
#chronicillness #cfids #disability
A Alone. B Before C Chronic, D Debilitating, E Exhausting, F Fatigue. H G Growing Headaches. Incapacitating. JJumbled words. K Knowing L Life, M May N Never be the same. O Overwhelming P Pain. Q Quiet R Restlessness. S Stop you in your T Tracks. U Unpredictable. V Vanquished. W With X Xtreme Y Yearning, for lost Z Zeal. The ABC's of living with CFIDS Poem by a CFIDS sufferer of 13 years Billie Jo Robbins Myalgic Encephalomyelitis (ME) in some countries also known as Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Myalgic Encephalomyelitis is
7/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #7
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #MyE #CFIDS
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
So, this is has been recommended to me by I'm not even sure anymore how many doctors now, and I have told all of them their information is wrong. Maybe I should send them this video. youtu.be/wxSwYUennBA?...
#CFIDS #ME/CFS
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
4/
An experienced lawyer offers advice on how to apply for disability benefits. Discussion includes both social security disability insurance (SSDI) and long term disability (LTD) plans covered by ERISA law.
#CFIDS #CFSME #PostCovid
4/
“That said, everything I did took energy. Washing my teeth, energy. Dressing, energy. And there was no bank to run to asking for a loan. No friend with a basket of extras.”
#MyalgicE #CFSME #MEeps #CFIDS
PAIN -– poem by a CFIDS (ME) sufferer of 13 years Minute after minute, Hour after hour, Day after day, Year after year. Aching, Stabbing, Crushing, Searing, Wrenching, Piercing, Mindnumbing, Exhausting, Sick to your summer, Wake you up from your sleep, Stop you in your tracks, Wanting to die, Disabling, Life stealing
18/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #18
#MyalgicE #MyalgicEncephalomyelitis #CFIDS
A Alone. B Before C Chronic, D Debilitating, E Exhausting, F Fatigue. H G Growing Headaches. Incapacitating. JJumbled words. K Knowing L Life, M May N Never be the same. O Overwhelming P Pain. Q Quiet R Restlessness. S Stop you in your T Tracks. U Unpredictable. V Vanquished. W With X Xtreme Y Yearning, for lost Z Zeal. The ABC's of living with CFIDS Poem by a CFIDS sufferer of 13 years Billie Jo Robbins Myalgic Encephalomyelitis (ME) in some countries also known as Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Myalgic Encephalomyelitis is a devastating and painful disease affecting every part of the body. There are many symptoms: bodywide pain, cognitive problems, sleep issues and insomnia, digestive problems, headaches, repeated infections, muscle weakness, sensitivities to noise, smell, light, touch, extreme overwhelming exhaustion. These symptoms can last months, years, decades or a lifetime. There is currently NO CURE.
7/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #7
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #MyE #CFIDS
2/
Prof. Akiko Iwasaki is involved in this research. She just quoted this on Twitter/X saying:
Please help spread the word about our #MECFS study with @PutrinoLab 👇🏼 thank you 🙏🏼
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS
2/
“(Contd) and the wider problem of the same views impacting research at NIH, including the intramural study, with Walitt's invention of the term 'effort preference'”
#MyalgicE #CFIDS
I have a joke about MEcfs but I can't finish the punchline till tomorrow because I've gotta rest for the remainder of today.
#MEcfs #LongFlu #LongCovid #Cfs #CFIDS #SEID #MEAction
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team ncbi.nlm.nih.gov/pmc/articles...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC #PostCovidSyndrome #postcovid #postcovid19
