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Posts tagged #NeuroME

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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Hope to see some of you at this. 👋

If the weather is suitable, I plan to be outside. There are benches there for this purpose.
#NeuroME #MyalgicEncephalomyelitis

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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“You can help support patients to handle this life transition, the grief, the stress that comes from having this illness without removing it.”

#CFSME #NeuroME

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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Making sense of ME/CFS



Pledge your support

Myalgic encephalomyelitis, 1955-1990
Melvin Ramsay, the Royal Free Hospital outbreak, and the evolving understanding of ME.

K. JOHNSTONE
JUL 22, 2024
“the victims of ME should no longer have to dread the verdict of, ‘All your tests are normal. Therefore there is nothing wrong with you’.” - Melvin Ramsay, 1986.

In July 1955 a nurse and a resident doctor at London’s Royal Free Hospital fell ill with a mystery illness. The illness spread rapidly among the medical staff, particularly the nurses, and within ten days the hospital was forced to close its doors. Over the next few months the illness would strike 287 medical staff, and just 12 patients. Most of those who fell ill were women, but this was to be expected - the hospital had a policy of preferentially hiring women doctors, so most of its medical staff were female.

Making sense of ME/CFS Pledge your support Myalgic encephalomyelitis, 1955-1990 Melvin Ramsay, the Royal Free Hospital outbreak, and the evolving understanding of ME. K. JOHNSTONE JUL 22, 2024 “the victims of ME should no longer have to dread the verdict of, ‘All your tests are normal. Therefore there is nothing wrong with you’.” - Melvin Ramsay, 1986. In July 1955 a nurse and a resident doctor at London’s Royal Free Hospital fell ill with a mystery illness. The illness spread rapidly among the medical staff, particularly the nurses, and within ten days the hospital was forced to close its doors. Over the next few months the illness would strike 287 medical staff, and just 12 patients. Most of those who fell ill were women, but this was to be expected - the hospital had a policy of preferentially hiring women doctors, so most of its medical staff were female.

" #MyalgicEncephalomyelitis , 1955-1990: Melvin Ramsay, the Royal Free Hospital outbreak, & the evolving understanding of ME"

mecfs.substack.com/p/myalgic-en...

I found this interesting. We owe a great deal to Melvin Ramsay & his work over many decades.

#PwME #MyalgicE #NeuroME #MEcfs

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"We need to be vigilant and educated to spot this charlatanry. We need therapeutic treatments that actually work and stop gaslighting those with post-acute viral disease."

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #SEID #NeuroME #millionsmissing

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We can experience:
fatigue
headache
hausea
fever
vomiting
diziness
vertigo
diarrhoea
pain
paralysis
seizures
hypersensitivity
brainfog
memory problems
infections
insomnia
exhaustion
weakness
palpitations
blurred vision
and more...

The Horror of M.E.

Has a photo of a woman lying down

We can experience: fatigue headache hausea fever vomiting diziness vertigo diarrhoea pain paralysis seizures hypersensitivity brainfog memory problems infections insomnia exhaustion weakness palpitations blurred vision and more... The Horror of M.E. Has a photo of a woman lying down

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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this image.

Day #8

#MyalgicE #MyalgicEncephalomyelitis #MyE #NeuroME #PwME

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME

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Green Paper on Disability Reform: A Public Consultation to Reform Disability Payments in Ireland Disability Reform to restructurer long-term disability payments. Individuals and stakeholder organisations are invited to share their views with us.

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We think there is power in numbers.

All the details on the government green paper and how to make a response are available here:

www.gov.ie/en/consultat...

#ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #ME #MyE #millionsmissing

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"@TomKindlon: The writer @laurahillenbran on #MyalgicEncephalomyelitis which she suffers from #NeuroME #MECFS #CFS "

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