I thought I was living the abridged version of my life.
Turns out, I’m writing the long one.
2,374 words in. 50k to go. 🖋️🐾
link.tree/skylanarissa
#DisabledWriter #ChronicIllness #WritingCommunity
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#DisabledWriter
Latest posts tagged with #DisabledWriter on Bluesky
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Posts tagged #DisabledWriter
#disability #invisibledisability #chronicillness #fibrowarrior #spoonie #spoonielife #mentalhealth #CPTSD #PTSD #depression #OCD #anxiety
#writer #poet
#queer #trans #QueerWriter #TransWriter #DisabledWriter
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Today is another bad stomach day, but I gotta work and posting on social media also helps pass the time. How do you deal with days where your spoon count is low, but you have to make shit happen?
@otheringpodcast.bsky.social you know what I'm talking about. #disability #disabledwriter #spoony
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Part Four.
I’ve considered the #selfpublishing route, and am definitely open to the idea. But bc I get so easily overwhelmed & physically drained just from researching tips and guidelines, I worry about handling all the logistics.
Continued ⬇️
#AuDHD #disabledwriter #publishing
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Music has always felt like a bridge to me.
Between who I was, who I am, and who I’m trying to survive into.
Between worlds. Between bodies. Between silence and meaning.
🖤 “Music for the Haunted Meat Suit”
#ChronicIllness #Disability #MusicIsMagic #DisabledWriter #SpoonieLife
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Sinners asks what would make you open the door.
I don’t want eternity.
I just want five minutes.
A piece about grief, music, vampires, and the people we’d follow anywhere.
🩸🎶🖤
#Sinners #GriefWriting #Disability #ChronicIllness #HorrorAsMetaphor #DisabledWriter
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A week in Bed Jail™ isn’t rest.
It’s meds, monitoring, soup-as-survival, and the invisible labor no one sees.
This isn’t inspiration porn.
It’s disabled life, honestly told. 🛌🐕💜
#ChronicIllness #Disability #SpoonieLife #ServiceDog #DisabledWriter #BedJail
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Against a pinky peach painted wall, my unique festive style tree is made up of skinny metallic pink branches with random baubles. There's also a cat popping out of a Christmas tree, a felt figure of frida Carlo, dressed in red with her signature mono brow, and black hair. The baubles are a mixture of shiny, ornate and handmade. Purples pinks golds, also some stars and gold suns. To the right on the wall behind the tree is a large green sprig of mistletoe with white berries. On the wall are small plates and placards of a decorative fifties feel nature.
The Penny Pepper tree is coming down now. Yes I always like to put my mark on the mid winter celebrations. But I like to be a bit ahead in knowing it's time to move on. Happy New year friends. What do you hope for the New year? #hny #2026 #writer #disabledwriter #poet #author #untoldstory
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We've reached the final installment/last door to open on my DIY Advent Calendar!
I leave you with a little tale I hope you'll enjoy.. - Date in the Strand
buff.ly/9QCy3hk
#disabledwriter #shortstory #writerslife #adventcalendar
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All I want for Christmas is a nervous system that behaves.
Seizures, Bed Jail™, service dogs, fear, and the logistics no one talks about.
This is what living with disability really looks like. 🕯️
#Disability #ChronicIllness #Seizures #DisabledWriter #ServiceDog
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I'm loving all the amazing feedback and responses to my piece in The Bookseller @_thebookseller. Thank you everyone!
buff.ly/ARuI0i1
#disabledwriter #writerslife #thebookseller #disabledfiction
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It's the next part of my DIY Advent Calendar!
It's a little teasy taster of my Desires Reborn 21st Anniversary edition - enjoy!
buff.ly/A4he70j
#writerslife #disabledwriter #eroticfiction
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A screenshot from the bookseller magazine with a quote from a piece by author penny pepper. The graphic is dark turquoise with white font text. There are opening and closing very large quotation marks in white. In the centre over a faded out image of a young man in a wheelchair it reads: comment, literature is the poor cousin of other art forms in terms of disability, reflecting the slow and all too often profit-driven nature of the mainstream publishing world.
It's UN #internationaldayofdisabledpersons TODAY. And I'm beyond proud to be in @thebookseller.com yearning for a bookshelf with the disability narrative in fiction stacked high. My novels there too, naturally. Please share dear friends. #disabledwriter #untoldstory #royalliteraryfund
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It's UN #internationaldayofdisabledpersons TODAY. And I'm beyond proud to be in @thebookseller.com yearning for a bookshelf with the disability narrative in fiction stacked high. My novels there, naturally. Please share dear friends. #disabledwriter #untoldstory #royalliteraryfund
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1. I come across a headline: 'attitude is everything for breast cancer survivor.' I look for the headline 'attitude is everything for ebola patient ' or 'attitude is everything for guy with diabetes' or 'attitude is everything for those with congenital syphilis' or 'attitude is everything with lead poisoning ' or 'attitude is everything when a dog bites your hand' or 'attitude is everything for gunshot victim' or 'attitude is eveything for a tween with a hangover' or 'attitude is everything for a coyote struck by a Ford F150' or 'attitude is everything for gravity' or 'attitude is everything for the water cycle' or 'attitude is everything for survivor of varicose veins' or 'attitude is everything for dying coral reef'
Reading Anne Boyer's 'The Undying' and thinking about cancer, me/CFS, invisible illness, and the magical thinking that attends.
#cancerwriting #mecfs #millionsmissing #invisibleillness #theundying #disabilitywriting #disabledwriter
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It’s a tough cycle.
Pain gets worse -> Mental health suffers -> Words don’t flow -> Mental health suffers -> Words don’t…
Working with my VA provider to figure it out, but not sleeping is the PITS!
Especially this time of year.
#disabledwriter #amquerying #writingcommunity #combatveteran
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Aaaaand my attempt to return to full time from medical leave is failing miserably. I’m home early and only person happy about this fact is my currently-snuggling cat. But hey, maybe I’ll have more time to write?
#writersky #disabledwriter
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A screenshot of a Substack account that shows the writer is in the top 40 rising in literature. A womans hand holds a book called The Land that Forgot Itself. A whoop sign is next to it.
I'm totally stoked to see I am in the top 40# Rising in Literature on Substack! Thank you to all my lovely subscribers. If you've not subscribed yet please do - it's free or for the price of a coffee you can support me at this challenging time. See you there x
#substackwriter #disabledwriter
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Pic of a book called Hunchback by Soau Ichikawa (Translated from Korean)
Disabled author alert!
Always cool to spot a book like this. And sounds good too.
#book #booksky #disabledwriter
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We're developing our concept and to better reflect our mission, we've changed our name. We'll be working on our website soon. #disabledwriter #chronicillnesswriter #WritersWithDisabilities #supportingwriterswithdisabilities #booksaboutdisability #booksbydisabledwriters #disabilitybooks #disability
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I'm slowly putting the pieces together. In the meantime, here is a bit about me, Skye Bothma - author and founder. #writerswithdisability #writerswithdisabilities #disabledwriter #chronicillnesswriter #disability ##writingcommunity
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We've set up our social accounts. More to follow soon. #bookpromotionservices #supportingwriterswithdisabilities #bookrecommendations #disabilityinclusion #disabledandproud #disabledwriter
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We'll be sharing more about who we are and what we do over the coming weeks. Be sure to follow us for more information. At the moment we are busy setting up our social media accounts. #disability #disabledwriter #writingcommunity #chronicillness #disabilityinclusion
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Back to single-handed writing and dictation. I need a bionic arm... Maybe two. #disabled #writingcommunity #disabledwriter
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In the hospital with an infection from my brain surgery. Had to have a second surgery to clean everything out and now I’m hooked up to a lot of stuff. Thankful, annoyed, sad.
#writingcommunity #indieauthor #imonadeadlinde #disabledauthor #disabledwriter #writesky #booksky #readsky #gay #lgbtq
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I submitted my piece for the Common Bonds anthology!! I'm confident with my piece, but I also know that there's LOADS of amazing writers submitting for it. Whether or not my piece is accepted, I'm proud of what I wrote! 😤💚✍️
#QueerWriters #MysteryWriter #AroAce #DisabledWriter #WritingCommunity⚡️📚🌈
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New "member only" poem "narcissus" up on Medium! If you are already a member, consider reading to support. If not, I posted a free poem "artificially made" a few days ago <3
#writersky #writingcommunity #queerwriter #disabledwriter #author #amwriting #transwriter
medium.com/@rithscott
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🧠 surgery was the 8th. It went well but I ended up spending the night at the hospital again due to confusion. I’m on new meds that are helping and I have a plan to start writing soon. For now, rest.
♥️🙏♥️
#disabledwriter
#writingcommunity
#tn
#brainsurgery
#disability
#lgbtq
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