I don’t think I’ve ever read anything before in which EVERY SINGLE SENTENCE applied to me. Thank you for validating my experience and my anxieties around having a #dynamicdisability
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#DynamicDisability
Latest posts tagged with #DynamicDisability on Bluesky
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Posts tagged #DynamicDisability
"My anger is the echo of the weight I carry because of this disability; a reminder of the battles fought inside my skin every single day." www.brainlesionandme.com/disability-a...
#Disability #ChronicallyIll #DynamicDisability #NEISVoid #DisabledLife
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"Each aid corresponds to a different version of me. Some days, I use all three within twenty-four hours, an exhausting one-woman show with far too many costume changes." www.brainlesionandme.com/dynamic-disa...
#DynamicDisability #ChronicallyIll #MobilityAids #BabeWithAMobilityAid #NEISVoid
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Being disabled is a "damned if you know damned if you dont know" stitch with doctors. The more u research the conditions you live with, the less doctors take you seriously because they think yer self diagnosing. The less u know means they can take advantage of you. Never ending cycle.
If willing, please share your personal experiences with this 🩵 ... our favorite thing, gaslighting 😒🙃
linktr.ee/thezebraalliance
#disability #chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #dynamicdisability #mentalhealth #gaslighting #healthcare
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*snorting lines of turmeric powder off of a plate of vitamin C through a straw made of calcium carbonate, whilst standing in downward dog and wearing a jump suit made entirely out of Chakra focusing gemstones* "Am I health yet Margaret? Am I trying hard enough?!!"
Might be the best "all natural treatment" meme ever 😂
linktr.ee/thezebraalliance
#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme
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"I am bracing. I am bracing for the next moment when my body will betray me. All too aware that it will do so again, again and again." www.brainlesionandme.com/disability-a...
#ChronicIllness #ChronicallyIll #Disability #DynamicDisability #NEISVoid
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"On good days, I feel dishonest calling myself disabled. On the days I look fine, I feel as though I break an unspoken rule about what disability should look like." www.brainlesionandme.com/dynamic-disa...
#DynamicDisability #NEISVoid #Disability #ChronicallyIll #DifferentAidsForDifferentDays
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Thank you to @achronicvoice.com for sharing my latest blog post on what it’s like living with a #DynamicDisability! It’s very much appreciated! 🫶
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How's your brain? A bit too gooey LOUD! Haunted At max capacity Too thinky Not thinking enough Fragile Victimized by this cruel world Sunny Do not disturb mode Detached All shook-up Foggy I want a refund (lol) Full of silly songs Sparkling
Describe your sad: BIG sad small sad Light sprinkling of sad Rising sad Sharp sad Confusingly beautiful sad Heavy sad Creeping sad Sad on toast
How are you feeling?
🫠🥺😵💫😄🫣😎😖☺️
Need help finding mental health resources: We will help you find what you need 🩵
linktr.ee/thezebraalliance
#mentalhealth #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability ##ehlersdanlossyndrome
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How do you handle unsolicited advice?
🩵🦓🩵
#chronicillness #EDS #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #ehlersdanlossyndrome #HSD
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"Every morning, I wake up & feel a quiet kind of #betrayal. With a #DynamicDisability, my #body, once something I trusted without question, now greets me with an ache I never agreed to. I lie there..taking inventory.": buff.ly/NOz0KLn
by @serenebutterfly.bsky.social
#ChronicPain #disability
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"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to." www.brainlesionandme.com/dynamic-disa...
#DynamicDisability #InvisibleDisability #ChronicallyIll #ChronicIllness #NEISVoid
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"Rest is both an act of resistance and resilience for me." shorturl.at/mVTe0 via @huffpost.com
#Disability #DynamicDisability #invisibleDisability #DisabledVoices #DisabilityAwareness #DisabledLife
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😴 Did you know there is a "right" and "wrong" way to nap?
😴 What are your nap tips?
linktr.ee/thezebraalliance
#chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #disability #dynamicdisability #mentalhealth #invisibleillness
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"Inside my body, the rules rewrite themselves without warning. It feels like being gaslit by my own body. I insist I’m fine. My body quietly, stubbornly disagrees." www.brainlesionandme.com/dynamic-disa...
#ChronicIllness #ChronicallyIll #InvisibleDisability #DynamicDisability #NEISVoid
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"Do you think chronic pain has affected your personality?" Me: (Picture of a vampire) * hissing * By @endohumor
🧛♀️😆
linktr.ee/thezebraalliance
#chronicpainmeme #meme #chronicpain #chronicillness #EDS #invisibleillness #disability #dynamicdisability
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My disability isn’t static — it shifts and fluctuates.
I wrote about what it’s like to live in an unpredictable body.
Sharing this here in case it resonates with anyone.
www.brainlesionandme.com/dynamic-disa...
#ChronicIllness #ChronicallyIll #DynamicDisability #NEISVoid #InvisibleDisability
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"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to."
www.brainlesionandme.com/dynamic-disa...
#ChronicIllness #DynamicDisability #ChronicallyIll #NEISVoid
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Having a Chronic Condition but pretending its a hobby: 1) Spending lots of money on paraphernalia (like medication) 2) Reading lots about the hobby 3) Looking at other hobbyists online 4) Not going out because you're busy with your hobby 5) Going to meet ups (docs, therapists, etc) 6) Finding a new hobby (new diagnosis) By @twisteddoodles (not sure which platform)
Sounds so much more fun when you put it like that 😄🫠😉
🦓 linktr.ee/thezebraalliance
#chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #disability #dynamicdisability #mentalhealth #healthmeme
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🤗 @klobuchar.senate.gov, we need more politicians like you 🩵🫶🦓🫶🩵
Caucas: everylifefoundation.org/rare-advocat...
#raredisease #rarediseases #chronicillness #chronicpain #invisibleillness #disability #ehlersdanlossyndrome #dynamicdisability
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Such wonderful news! 🤗 (No pun intended lol)
#chronicillness #raredisease #rarediseases #chronicpain #invisibleillness #disability #dynamicdisability #EDS #ehlersdanlossyndrome
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Are you near Cedars-Sinai?
They take Medi-Cal 😍 Ask your GP to see if you can get in.
Don't have any insurance? #CedarsSinai offers financial aid packages based on income 😍
#rarediseases #raredisease #chronicillness #ehlersdanlossyndrome #EDS #disability #dynamicdisability #invisibleillness
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Oh yes Im faking multiple chronic illnesses... All I wanted in life is sit at home alone every day, live on benefits, lose my career, my business and most of my friends so I could get attention from people that gossip about me, call me lazy and don't believe me.
It's a wonderful life 🥰 NOT! 😣🥺👉 Ignorance is bliss for uncompassionate people, but miserable for those who live with chronic illnesses. 🫂
#chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome #disability #dynamicdisability #mentalhealth
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Dear World Please understand how lonely and isolating chronic illness can be. So if you ha e a friend or family member who suffers.from one, please check in with them to send love and support
Shout out to everyone suffering from chronic illnesses, everything you do is at least twice as hard as it is for anyone else. Its a full time job to manage it and it never gets any easier but that's where HERO comes into play 🩵🦓🩵
Messages that need to be seen. 🩵🦓🩵
#chronicillness linktr.ee/thezebraalliance #EDS #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #ehlersdanlossyndrome #HSD
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A weighted blanket is not enough I need to be compressed into a .zip file
Yes, please 🤗😉
#healthmemes
linktr.ee/thezebraalliance
#meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability #ehlersdanlossyndrome
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Feel this deep in our souls. How about you? 🫠🤪😉
#healthmemes #meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability
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When youre having a health emergency but still trying not to be a burden: "Hello 911? How are you?" (From the show, Portlandia)
If you know, you know. 🚑
And its even worse if youre Canadian. Just kidding! ... sort of 😅😉
#healthmemes
linktr.ee/thezebraalliance
#portlandia #meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability #mentalhealth
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Struggling to deal with me now that I'm chronically ill? Same. *Picture of a woman with a very forced smile holding a cup that says "help me"*
"HELP ME" 🫠 🙃😆
#chronicillness #raredisease #invisibleillness #disability #dynamicdisability #EDS #ehlersdanlossyndrome
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My doctor checking in with me on my med refill appointment: "Um, is everything okay? I mean, other than, you know, everything?"
Everything 🙃🙂
Have you been looking for a doctor? Give HealthGrades a gander: www.healthgrades.com
#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme
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You will find tees and hoodies for all ages and genders, and in multiple colors. You will also find water bottles, coffee cups, stickers & more in our Spring Store 🎁 Organic Eco Unisex Tee with our 3 Zebra Heads (from our logo) Tee comes in multiple colors.
Stay warm and comfy in our hoodies ✨️ There are multiple hoodie color options. Navy blood hood with a chain of our 3 Zebra Heads from our logo
Coffee Cups and Water Bottles make great gifts! 🎁 White mug with our logo on it
🎁 #GiftGuide: Love our logo? You can get our designs on clothing and more 👉 thezebraalliance.creator-spring.com
#chronicillness #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #ehlersdanlossyndrome #EDS #chronicpain
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