Latest posts tagged with #ELCI on Bluesky
#PEM #LeonardJason #DSQPEM2 #Questionnaire
#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI #ELC
Via Tom Kindlon's ME CFS & related page: News, Research and more on f/b.
www.explorationpub.com/Journals/ent...
Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept — Hale et al. "The term 'energy impairment' is a substitution for the term 'fatigue' that disrupts many of the impairment typologies used in UK social administration. We contend that current terminology not only fails to capture the embodied experience of, and language used by, people living with chronic illness, but it often actively denies this lived experience."
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Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept
www.scienceopen.com/hosted-docum...
Screenshot from latest Science for ME weekly update
#EnergyLimitingConditions #Spoonie #chronicillness #Spoonies #ELCI #MEcfs #LongCovid #ChronicFatigue
Abstract The terms “energy limiting condition” (ELC) and “energy impairment”locate the embodied experience of chronic illness into a category of impairment for the purposes of social policy and administration of disability. This article discusses the origins of these concepts in the UK-based Chronic Illness Inclusion Project (CIIP). Selected findings from the CIIP’s mixed-methods participatory research demonstrate how energy impairment, and related terms, arose as a practice of resistance against the invalidation of “fatigue” as impairment, giving rise to a transdiagnostic disability identity, and a strategy for self-advocacy. Theoretical tensions between the rejection of impairment within disability studies and the emancipatory aims of the CIIP are discussed, as well as the political history of fatigue within the disability category. Impairment labels, as a necessary evil, should reflect disabled people’s experience and identity, and further research should uncover their conditions of production.
New:
Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept
Free
www.scienceopen.com/hosted-docum...
Sympathetic exploration of topic
#EnergyLimitingConditions #Spoonie #Fatigue #chronicillness #Spoonies #ELCI #MEcfs #LongCovid
yaaaay! managed to clean the external front door/entryway etc, including the doormat, flyscreen and walls. hadn’t had the capacity to do it for most of a year so far
yaaaaaayyyy! this is what success feels like 😤
#ELCI #MECFS #POTS #MCAS
I support the idea of supporting sick & disabled people to engage in mini volunteering roles. They are typically less pressured than paid work.
But I know I, & others with #ELCI, need these roles to be ones where it's not a problem if we don't turn up. Or we choose the hours on a day-to-day basis.
Screenshot of abstract
New US research:
Defining fatigue from the experiences of patients living with chronic fatigue
www.frontiersin.org/journals/med...
From what I can see, this does not refer to CFS specifically but CFS wasn't an exclusion either
#chronicfatigue #Spoonies #Spoonie #Spoonielife #ELCI #chronicillness
What are energy-limiting conditions? An introduction to chronic illness at work February 19, 2024 illustration of 'energy impairment' showing two people as batteries plugged in. One has an energy limiting condition and can only charge to 50%. The other does not have an energy limiting condition and can charge to 100% What are energy limiting conditions? A guide for employees and their managers is a new resource, produced for Astriid charity. I hope it will be a gamechanger for unlocking conversations about health, disability and work, and lead to more people with chronic illness getting the support they need at work.
What are energy-limiting conditions? An introduction to chronic illness at work
www.catherinehale.net/2024/02/what...
#chronicillness #Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll #ELCI #MEcfs #LongCovid
