Latest posts tagged with #HRQL on Bluesky
Last week's #ONS seminar "Introducing the UK headline measures of national #wellbeing" was interesting. The session was not recorded but the slides are available here:
www.slideshare.net/slideshow/in...
#QualityOfLife #QoL #HRQL #Survey
Important note in this report by the Future #DSM Strategic Committee:
Acknowledgement of the importance of functioning and quality of life, and tasking a sub-committee w finding assessments that align with recovery-oriented care
psychiatryonline.org/doi/10.1176/...
#HRQL #HRQoL #MentalIllness #DSM5
Study looking for people with experience in #CoreOutcomeSet development 👇
Wide remit:
Researchers, clinicians, patients, people with lived experience, carers...
An interview (c60min, online).
#Psychometrics #PatientCentered #HRQOL #HRQL #Consensus #Delphi
Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
pmc.ncbi.nlm.nih.gov/articles/PMC...
#ISOQOL
Great example of papers that elucidate practical challenges of PRO capture (see rdcu.be/eMp57 )
#HRQL #PatientCentered
Conference logo for ISOQOL 2025 32nd Annual Conference
Just dialling up into the #ISOQOL conference live event.
Great opportunity that part of the conference is available hybrid / on-demand!
www.isoqol.org/events/32nd-...
#HRQL #HealthEconomics #PatientCentered
This mirrors findings from our broader #SysReview of #HRQL as an outcome in substance and behavioural addictions
pubmed.ncbi.nlm.nih.gov/37439397/
Meta-analysis of #TaskShifting / #TaskSharing for managing #Multimorbidity shows some associations w depression (d=-.27, k=14), quality of life (d=.10, k=12), increased anxiety (d=.14, k=5), mortality (OR=.77, k=4).
fmch.bmj.com/content/13/3...
#GlobalHealth #GlobalMentalHealth #HRQL #HRQoL
Still in the summer write-up of papers?
Have a look at the call for papers on "Quality of life in people with mental disorders – beyond global scores" at Quality of Life Research
link.springer.com/collections/...
Linked Editorial
rdcu.be/eBeLT
#HRQL #HRQOL #HealthEconomics
Rehabilitation is often criticised for its focus on physical and functional recovery, at the expense of recognising the profound social and psychological impacts of illness and injury:
www.frontiersin.org/journals/reh...
#PatientCentered #PersonCentered #HRQL
Investigating functioning of the #EQ5D -Y-5L in five countries shows that participants can differentiate ordinal response levels, but that measurement quality and scaling functions differ by country and age
www.sciencedirect.com/science/arti...
#HRQL #HealthEconomics #Psychometrics #DIF
* To develop these utility scores we used National Institute on Drug Abuse-published #RCT data
link.springer.com/article/10.1...
To me an example how #DataSharing supports research building community infrastructure.
#HRQL #Psychometrics
Quick reminder:
"Content validity is defined as the degree to which the content of a measurement instrument adequately reflects the outcome being measured. [...] It is considered to be the most important measurement property".
www.sciencedirect.com/science/arti...
#Psychometrics #COSMIN #HRQL
Perspectives of service providers, caregivers and adolescent patients in this study suggest that if patients are asked to complete PROMs, there is a duty of care for this information to be reviewed and acted upon:
link.springer.com/article/10.1...
#HRQL #PatientCentered #EQ5D #FeedbackSystems
A new paper discusses workflow development for ePRO symptom monitoring to support PRO(M) implementation into practice using the Action, Actor, Context, Target, Time framework:
link.springer.com/article/10.1...
#HRQL #PatientCentered #ImplementationScience #ParticipatoryResearch
The development of an interactive platform for applying tree-based IRT models for detection of differential item functioning is summarised in a recent #ISOQOL letter:
www.isoqol.org/bridging-the...
A related methods paper by the team:
link.springer.com/article/10.1...
#HRQL #Psychometrics
New project by @kevinweinfurt.bsky.social & colleagues:
How can stakeholders collect and submit patient experience and caregiver data for medical product development and regulatory decisions?
Read more about this below! 👇
#HTA #HRQL #Psychometrics #HealthEconomics #FDA #PatientCentered
Consistent implementation of reporting guidelines is important and helpful in #HRQL research (e.g.,
link.springer.com/article/10.1...
and
link.springer.com/article/10.1...)
This opinion piece related to the #CONSORT2025 publication offers food for thought on how to implementation can be improved 👇
"The article focusses on presenting the case for adopting ROM and is a starting point for any person who is considering the challenges of adopting ROM"
onlinelibrary.wiley.com/doi/full/10....
[Quote slightly adapted]
#PsychotherapyResearch #PatientCentered #HRQL #Feedback
2 / We encourage submissions of research and practice using nuanced approaches to #HRQL & #QOL, adopting the term “mental disorder” broadly, e.g., based on standard diagnoses or using transdiagnostic perspectives.
1 / The March issue of Quality of Life Research includes our call for papers, "Quality of life dimensions in people living with mental disorders: moving beyond global scores"
rdcu.be/ehPIy
#SMI #HRQL #PatientCentered #Psychometrics #ClinicalPsychology #PsychotherapyResearch
Trigg et al recently discussed several conceptualisations of meaningful between-group differences:
rdcu.be/ehHdD
A follow-up comment advances the discussion around this issue further with four points @kevinweinfurt.bsky.social summarises below - or you can read the paper! 👇
#RCT #Estimand #HRQL
9th National Patient-Reported Outcome Measures Research Conference
www.birmingham.ac.uk/research/cen...
Conference: 19th June 2025
Location: University of Birmingham #CPROR
Submission deadline on 11th April
More #HRQL with the starter pack
go.bsky.app/Buc7gMm
#HealthEconomics #PatientCentered
Screenshot of ISOQOL's advert for their first virtual symposium: Advancements in the Engagement and Preparation of Healthcare Providers for the Routine Integration of PROMs in Clinical Practice
New #elearning opportunity from #ISOQOL:
Advancements in the Engagement and Preparation of Healthcare Providers for the Routine Integration of PROMs in Clinical Practice
Three half days, 6th - 8th May
Full programme, speakers etc:
www.pathlms.com/isoqol/cours...
#HRQL #PatientCentered
How to select relevant items for monitoring? Case example of a pragmatic process for mapping immune checkpoint inhibitor #SideEffects to items from existing item libraries ( #CTCAE #EORTC #FACIT )
jpro.springeropen.com/articles/10....
#HRQL #JPRO #PatientCentered #PatientReported #ePRO
Three for #FollowFriday:
The @gacdmedia.bsky.social has joined!
#NCDs #LMICs #Multimorbidity #ImplementationScience #HRQL
You can learn about research that seeks to understand & prevent suicide in LGBTQ+ youth with @kirstyclarkphd.bsky.social
#PsySciSky
And coming to our local one... 👇
Welcome! I maintain one focused on methods and philosophy around health-related quality of life research and practice:
go.bsky.app/Buc7gMm
As the community is slowly moving to Bluesky, there are still a few updates every month, but we have started to have some good chats 😊
#HRQL #HealthEconomics
New issue of Quality of Life Research compiled online (January 2025):
link.springer.com/journal/1113...
Featuring a series of articles on the PROMIS-16 profile 1.0:
rdcu.be/d9je9
#PROMIS #HRQL #HealthEconomics
There have been some additions to the #HRQL Starter Pack in the last few days as researchers arrive here on the platform. If you are interested in research into (health-related) quality of life and its methodological foundations, give them a follow!
go.bsky.app/Buc7gMm
#Psychometrics
Really happy for this is out as this is the first #RegisteredReport published in Quality of Life Research.
You can read some of the arguments we considered before launching this format here:
rdcu.be/d8Tfa
A bit more background also on LinkedIn
www.linkedin.com/feed/update/...
#ISOQOL #HRQL
