#ePRO

The Bass Diaries

@thebassdiaries.bsky.social

1 month ago

A trio of Beck for your Monday!

Loser, Lost Cause and E-Pro are available from the usual retailers now, with links to purchase on the website in bio.

#bass #beck #loser #lostcause #epro

CHES

@esdches.bsky.social

1 month ago

Dr. Zabernigg is reporting about the successful use of CHES for quality of life assessments at Kufstein County Hospital over more than 20 years
#CHES #KUFSTEIN #HOSPITAL #EPRO #QUALITYTOFLIFE

CHES

@esdches.bsky.social

3 months ago

Just published. Implementation and Use of ePROs at the Medical University of Innsbruck.
www.springermedizin.de/die-onkologi...
#CHES #ESD #MEDICALUNIVERSITYINNSBRUCK #EPRO #IMPLEMENTATION

@rcatanho.bsky.social

5 months ago

Use of a Checkbox Format for Electronic Remote Symptom Monitoring After Surgery | JCO Oncology Practice PURPOSEComparative studies demonstrate that patients who use electronic patient-reported outcomes (ePROs) experience better outcomes; however, research comparing ePRO designs to determine optimal stra...

Presentar variables reportadas por el paciente de forma electrónica en lista de chequeo condicional mejora compromiso del paciente y se asocia c/mejores propiedades psicométricas, debe usarse luego de la cirugía #ePRO #postsurgical ascopubs.org/doi/abs/10.1...

CHES

@esdches.bsky.social

6 months ago

Implementierung von ePROs in der Onkologie - Die Onkologie Background Patient-reported outcomes (PROs) enable the systematic and patient-centered assessment of symptoms, side effects and quality of life. In addition to their use in clinical trials, they are…

a nice piece of paper published yesterday
link.springer.com/article/10.1...
#CHES #ESD #TIROLKLINIKEN #MUI #EPRO

JMIR Publications

@jmirpub.bsky.social

9 months ago

#feasibility of an Electronic Patient-Reported Outcome System in People Living With HIV: Retrospective Analysis of a Mobile App-Based Pilot Study Background: Advances in antiretroviral therapy have transformed HIV into a manageable chronic condition, allowing people living with HIV (PLWH) to live longer. However, with aging, PLWH face increased risks of lifestyle-related diseases and unaddressed psychosocial issues, including stigma, discrimination, and mental health concerns. Patient-reported outcomes (PROs) are essential tools in person-centered care and have demonstrated clinical utility in oncology and rheumatology, yet remain underutilized in infectious disease settings. Recently, the European AIDS Clinical Society has recommended electronic PRO (ePRO) systems to support HIV care. Objective: This study aimed to evaluate the #feasibility and clinical utility of a smartphone-based ePRO system specifically developed for PLWH in Japan. Methods: A retrospective study was conducted among PLWH who attended the HIV outpatient clinic at Teikyo University Hospital between July and September 2022. Participants who consented to use the ePRO system installed a smartphone application and completed the HIV Symptom Index prior to their clinic visit. Physicians reviewed the responses during consultations. Following the visits, patients completed a #usability survey addressing clarity, response time, satisfaction, communication quality, and intention for future use. Medical records were reviewed to determine whether any new symptoms, findings, or medical actions had been added that had not been documented in the previous two years. Results: A total of 27 PLWH (median age 46 years, 100% male) used the ePRO app, and 25 (93%) completed the post-use questionnaire. Of these, 19 (76%) completed the symptom index within 5 minutes, while one participant took more than 15 minutes. Regarding #usability, 76% reported being satisfied or very satisfied, and 76% found the system useful in improving communication with their provider. Additionally, 76% expressed willingness to use the system again, while five indicated interest only if improvements were made. Medical record analysis revealed that 17 patients (63%) had new clinical information documented, including mental health symptoms (n=7), skin problems (n=7), and new diagnoses or treatment changes in 6 cases. Over 40% of patients reported issues such as anxiety, insomnia, dermatologic symptoms, or concerns related to body image. Conclusions: This pilot study demonstrated that a smartphone-based ePRO system for PLWH is feasible and well accepted in real-world clinical practice. It facilitated early detection of psychosocial and physical issues that may otherwise be overlooked in routine care and improved patient–provider communication. The findings support the integration of ePRO systems into HIV care and underscore the need for further refinement of the app and prospective studies to assess long-term impact on patient outcomes and quality of care.

JMIR Formative Res: #feasibility of an Electronic Patient-Reported Outcome System in People Living With HIV: Retrospective Analysis of a Mobile App-Based Pilot Study #HIV #PatientReportedOutcomes #ePRO #DigitalHealth #HealthcareInnovation

@grocquemd.bsky.social

10 months ago

Remote Symptom Monitoring With Electronic Patient-Reported Outcomes This nonrandomized controlled trial evaluates the association of patient-reported outcome–based remote symptom monitoring with health care utilization among patients with cancer.

Delighted to share our work finding #ePRO based remote symptom monitoring reduces hospitalizations in real-world oncology settings jamanetwork.com/journals/jam...

MSK Library

@msklibrary.bsky.social

10 months ago

Featured today by @MSKLibrary: Convalescence after radical orchiectomy: Detailing surgical recovery with a novel electronic patient reported outcome (ePRO) platform

dx.doi.org/10.1016/j.ur...

#OrchiectomyRecovery #ConvalescenceCare #ePRO #DigitalHealth #UrologicOncology #PostOpCare #MensHealth

Jan R. Boehnke

@jrboehnke.bsky.social

1 year ago

Mapping immune checkpoint inhibitor side effects to item libraries for use in real-time side effect monitoring systems - Journal of Patient-Reported Outcomes Background Monitoring for the side effects of novel therapies using patient-reported outcomes (PROs) is critical for ensuring patient safety. Existing static patient-reported outcome measures may not ...

How to select relevant items for monitoring? Case example of a pragmatic process for mapping immune checkpoint inhibitor #SideEffects to items from existing item libraries ( #CTCAE #EORTC #FACIT )
jpro.springeropen.com/articles/10....

#HRQL #JPRO #PatientCentered #PatientReported #ePRO

Dr Joseph McCollom DO

@realbowtiedoc.bsky.social

1 year ago

Financial Toxicity in Cancer Care: Where Are We, and How Did We Get Here? Introduction to a Special Series | JCO Oncology Practice

A new #SpecialSeries on #FinTox @ascocancer.bsky.social

Research on #CostofCare 💰 is ⬆️

Ongoing advances:
💻 #ePRO
💸 intervention strategies,
📃 policy solutions

Goal: ⬆️ affordability and ↔️equity in care.
@pallonccop.bsky.social
#pallonc #supponc

🔗: ascopubs.org/doi/10.1200/...

Journal of Comparative Effectiveness Research

@journal-cer.bsky.social

1 year ago

📢New article alert

New Research Article on the real-world impact of Noona ePRO platform for advanced NSCLC patients on pembrolizumab.

🔗Read here: becarispublishing.com/doi/10.57264...

#NSCLC #ePRO #DigitalHealth #OpenAccess #JCER

JMIR Publications

@jmirpub.bsky.social

1 year ago

Testing an Electronic Patient-Reported Outcome Platform in the Context of Traumatic Brain Injury: PRiORiTy #usability Study Background: Traumatic brain injury (TBI) is a leading cause of death and disability worldwide. Improvements in clinical management of TBI have resulted in improved survival rates, meaning that more people live with the effects of their TBI for longer.…

JMIR Formative Res: Testing an Electronic Patient-Reported Outcome Platform in the Context of Traumatic Brain Injury: PRiORiTy #usability Study #TraumaticBrainInjury #TBI #PatientReportedOutcomes #ePRO #UsabilityStudy

Dr Joseph McCollom DO

@realbowtiedoc.bsky.social

1 year ago

#SuppOnc trial i

Co-designed #ePRO for #IO tox

Workshops with:
🧑‍🦱patients
👪caregivers
👩‍⚕️ clinicians

Customization, accessibility usability are 🔑 key
Co-design may ⬆️ sustainable uptake

🔗: link.springer.com/epdf/10.1007...

@crisbergerot.bsky.social
@pallonccop.bsky.social
@darcyburbage.bsky.social

@grocquemd.bsky.social

1 year ago

It is critical to understand clinical team perspectives on #ePRO implementation

@sevensubmissions.bsky.social

1 year ago

@wxpnfm.bsky.social
#xpncountdown
See ppl this is why you vote for good music. #epro

Siv Gyda Aanes

@sivgyda.bsky.social

1 year ago

Happy to present our review on facilitators and barrieres for implementing digital #ePRO in routine #cancer care- in #ESMO Real World Data and Digital Oncology! Open access link here - www.esmorwd.org/action/showP...

Jan R. Boehnke

@jrboehnke.bsky.social

6 years ago

Thoughts on how to optimise workflows for the collection of the #PHQ9 presented by @c_seegs.

How to integrate the patient voice better through #ePRO #implementation, was explored via #participatory action research:


#isoqol19 #oralsession207
#openaccess