Picture of King's health Partners Rare Disease Network PPIE Event organisers and speakers. Elizabeth Forsythe, GSTT; Natasha Gordon-Douglas, Sickle Cell Society; Cristina Dias, KCL; Caroline Olszewsky, Lupus UK and Foundation for ARID1B Research; Karen Liu, KCL; Marie Clough, KHP; Veysel Kocaman, John Snow Labs; Christina Forrester, KHP; Marisa Gasparini, KCL & GSTT; Rachel Simpson, Sickle Cell Society; Shams Al-Ani, KCL; Alexandra Downes. Medis4RareDisease; Rutendo Muzambi, ICL; Ania Koziel, KCL; Sondra Sondra Butterworth, RareQoL & EDIRA; Tony Lockett, KCL; Anna Kim, KHP; Dani Bancroft, Genetic Alliance
One theme kept coming up throughout the discussions:
“Getting to know each other.”
Inclusive research starts with relationships, built on trust, transparency and mutual respect between patients, researchers, clinicians and industry partners.
#InclusionByDesign #RareDisease