#MENotCFS

Hannah

@pipsminitwee.bsky.social

6 months ago

Can science crack the mystery of ME? – podcast Madeleine Finlay speaks to science editor Ian Sample about a new study of how genes affect people’s chances of developing ME/CFS, and to Nicky Proctor who has ME and took part in the research. She als...

Can science crack the mystery of ME? – podcast | ME / Chronic fatigue syndrome | The Guardian #MEnotCFS #MEResearch #PwME #MyalgicE www.theguardian.com/science/audi...

Hannah

@pipsminitwee.bsky.social

7 months ago

People with ME have key genetic differences to other people, study finds

#SevereMEAwarenessWeek #SME2025
#PwME #MEnotCFS #MEresearch #MyalgicE

www.msn.com/en-gb/health...

Hannah

@pipsminitwee.bsky.social

7 months ago

@meassociation.org.uk

#SevereMEAwarenessWeek #SME2025 #BelieveME
#PwME #MEnotCFS #MyalgicE

Hannah

@pipsminitwee.bsky.social

7 months ago

This week is #SevereMEawarenessWeek
Those with SME are hidden from view,often abandoned,left to struggle.
Severe ME can mean being trapped,you are housebound(like me) &/or bedbound,no escaping.
Yet, so many don’t even believe ME is real.
#SevereMEAwarenessWeek #SME2025
#PwME #MEnotCFS #MyalgicE

Hannah

@pipsminitwee.bsky.social

7 months ago

@meassociation.org.uk
#SevereMEAwarenessWeek #SME2025 #BelieveME
#PwME #MEnotCFS #MyalgicE

Hannah

@pipsminitwee.bsky.social

7 months ago

This week is #SevereMEawarenessWeek
Those with SME are hidden from view,often abandoned,left to struggle.
Severe ME can mean being trapped,you are housebound &/or bedbound,no escaping.
Yet, so many don’t even believe ME is real.
#SevereMEAwarenessWeek #SME2025 #BelieveME
#PwME #MEnotCFS #MyalgicE

Hannah

@pipsminitwee.bsky.social

7 months ago

Key genetic differences found in people with chronic fatigue syndrome People with chronic fatigue syndrome, also known as myalgic encephalomyelitis, appear to have eight genetic signals that differ from those without the condition

Key genetic differences found in people with chronic fatigue syndrome | New Scientist

#PwME #MEnotCFS #MEresearch #MyalgicE

@decodemestudy.bsky.social

www.newscientist.com/article/2491...

Hannah

@pipsminitwee.bsky.social

7 months ago

Scientists find link between genes and ME/chronic fatigue syndrome Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness

Scientists find link between genes and ME/chronic fatigue syndrome | ME / Chronic fatigue syndrome | The Guardian

#PwME #MEnotCFS #MEresearch #MyalgicE

@decodemestudy.bsky.social

www.theguardian.com/society/2025...

Hannah

@pipsminitwee.bsky.social

7 months ago

The key genetic difference ME sufferers have from others – and what it means Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease

The key genetic difference ME sufferers have from others – and what it means | The Independent

#PwME #MEnotCFS #MEresearch #MyalgicE

@decodemestudy.bsky.social

www.independent.co.uk/life-style/h...

Hannah

@pipsminitwee.bsky.social

7 months ago

ME linked to your genetics – early study indicates Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease.

ME linked to your genetics – early study indicates – Channel 4 News

#PwME #MEnotCFS #MEresearch #MyalgicE

@decodemestudy.bsky.social

www.channel4.com/news/me-link...

Hannah

@pipsminitwee.bsky.social

7 months ago

People with ME have key genetic differences to other people, study finds The DecodeME study is described the largest of its kind in the world.

People with ME have key genetic differences to other people, study finds #PwME #MEnotCFS #MEresearch #MyalgicE
@decodemestudy.bsky.social

uk.news.yahoo.com/people-key-g...

Hannah

@pipsminitwee.bsky.social

7 months ago

Initial DecodeME DNA Results - DecodeME 06 August 2025 The DecodeME team is delighted to announce that the initial analysis of 15,579 DNA samples is complete, and we have important news to share. Main findings from our analysis  Your genes ...

Initial DecodeME DNA Results - DecodeME #PwME #MEresearch #MyalgicE #MEnotCFS
www.decodeme.org.uk/initial-dna-...

Hannah

@pipsminitwee.bsky.social

7 months ago

Sign the Petition The NHS must take measures to STOP Dill deteriorating

Petition · The NHS must take measures to STOP Dill deteriorating ✍️ 🙏 -
#PwME #SevereME #MEawareness #SevereMEawarenessWeek #MyalgicE #MEnotCFS
Another person with ME being mistreated by the NHS, this is a shockingly sad situation, happening too often😡 www.change.org/p/the-nhs-mu...

Hannah

@pipsminitwee.bsky.social

7 months ago

Sign the Petition Save Savannah Victora-May - Prevent Another ME/CFS Tragedy

Petition · Save Savannah Victora-May - Prevent Another ME/CFS Tragedy - United Kingdom · Change.org
#SevereME #MEnotCFS #PwME #BelieveME #MyalgicE
www.change.org/p/save-savan...

Hannah

@pipsminitwee.bsky.social

7 months ago

Government pledges to ‘transform care’ for people with ME — ITV News The Government has pledged to give hundreds of thousands of people living with chronic fatigue syndrome “improved care closer to home” as it acknowledged that many patients with the condition “struggl...

Government pledges to ‘transform care’ for people with ME - ITV News

apple.news/AK7aW38X-Rsu...
I’ll believe it when I see it! 😣
#MEnotCFS #PwME #MyalgicE #BelieveME 💙🕯️

Hannah

@pipsminitwee.bsky.social

7 months ago

Petition: Provide more funding for further biomedical research and education on CFS/ME We want the government to provide more funding for further biomedical research and education on myalgic encephalomyelitis (ME)/chronic fatigue syndrome. ME Association UK estimates there are currently...

Petition: Provide more funding for further biomedical research and education on CFS/ME
petition.parliament.uk/petitions/72...

#MEnotCFS #PwME #MEresearch #MyalgicE #MoreThanFatigue #BelieveME

Hannah

@pipsminitwee.bsky.social

8 months ago

Chronic fatigue is not in your head, it's in your blood - experts The University of Edinburgh says its findings on ME/CFS could pave the way for a

Chronic fatigue is not in your head, it's in your blood - experts - BBC News ~ typical ME related stuff - they can’t agree on anything & just argue or say it’s not as it seems etc 🫩🖕 #PwME #MEnotCFS #MyalgicE www.bbc.co.uk/news/article...

Hannah

@pipsminitwee.bsky.social

10 months ago

I have been missing from life since 2000. So many #PwME are just existing, not living.
It is a much misunderstood, cruel, often mocked illness.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek #MEnotCFS

Hannah

@pipsminitwee.bsky.social

10 months ago

International ME/CFS Awareness Day Imagine waking up feeling like you ran a marathon in your sleep. Your muscles ache, your mind feels foggy, and even small tasks drain every bit of energy.

Today,May 12th, is International ME Awareness Day & Fibromyalgia Awareness Day. These are cruel,misunderstood,often mocked conditions💙💜
#MENotCFS #PwME #MEawarenessDay #StillTheSaME #MillionsMissing #FibroAwarenessDay

www.daysoftheyear.com/days/fibromy...

www.daysoftheyear.com/days/interna...

Hannah

@pipsminitwee.bsky.social

10 months ago

I have been missing from life since 2000. So many #PwME are just existing, not living.
It is a much misunderstood, cruel, often mocked illness.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek #MEnotCFS

Hannah

@pipsminitwee.bsky.social

11 months ago

Sister of ME sufferer from Devon urges more government funding Rosie Barrett, who cares for her sister Alice, says a plan to overhaul care needs financial backing.

Sister of ME sufferer from Devon urges more government funding - BBC News
#PwME #MEnotCFS #BelieveME #MyalgicE
www.bbc.co.uk/news/article...

Hannah

@pipsminitwee.bsky.social

11 months ago

One man's journey from banker to ME advocate 25 years ago, Russell Fleming’s life was changed instantly.

Living with ME: Russell Fleming's journey from banker to ME advocate | thepost.uk.com
#MEnotCFS #MyalgicE #LongME #PwME #BelieveME
www.thepost.uk.com/news/health/...

Hannah

@pipsminitwee.bsky.social

1 year ago

The Times: Plan to help ME sufferers will not include extra funding - The ME Association Charities and MPs ‘incredibly disappointed’ at government’s decision, which they […]

The Times: Plan to help ME sufferers will not include extra funding - The ME Association
#MEnotCFS #MyalgicE #PwME
meassociation.org.uk/2025/02/the-...

Hannah

@pipsminitwee.bsky.social

1 year ago

Plan to help ME sufferers will not include extra funding Charities and MPs ‘incredibly disappointed’ at government’s decision, which they say will make it harder to support patients and find new treatments

Plan to help ME sufferers will not include extra funding 🙄🙄😡🤬😤
#MEnotCFS #MyalgicE #PwME
www.thetimes.com/uk/healthcar...

Hannah

@pipsminitwee.bsky.social

1 year ago

Griffith University: Larger than normal hippocampus in Long Covid and ME/CFS patients - The ME Association Griffith University reports on research findings that suggests ‘the MRI […]

Griffith University: Larger than normal hippocampus in Long Covid and ME/CFS patients #MyalgicE #LongCovid #MEnotCFS #PwME meassociation.org.uk/2025/02/grif...

Hannah

@pipsminitwee.bsky.social

1 year ago

Long COVID patients show brain swelling linked to memory problems, study finds Brain scans shows patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) share similar issues in a part of the brain known as the hippocampus.

Long COVID patients show brain swelling linked to memory and concentration problems, study finds - ABC News
#MyalgicE #LongCovid #MoreThanFatigue #MEnotCFS #PwME
www.abc.net.au/news/2025-02...