Latest posts tagged with #Patientcentricity on Bluesky
The Patient Engagement Resource Centre or #PERC is an easy-to-navigate platform to help you get started with #PatientEngagement in research.
👉 Check out the video interviews on good patient-researcher collab at the PERC Stories section here: https://loom.ly/7B2jJZk #PatientCentricity #EATRISplus
@erc.europa.eu @ema.europa.eu @marcocavaleri.bsky.social
#PandemicPreparedness #DecentralizedTrials #PatientCentricity #ResearchFunding
#Patientcentricity #Patients #pharmaceuticalindustry #patientfocus #patientmindset #patientprogrammes #patientadvocacy #patientpartnerships #patientexperience #patientadvocates #patientadvocacy #patientinsights #realworldexperience #patientreportedoutcomes #patientfocus
zurl.co/Wca8D
On #WorldCancerDay, we stand with those whose lives are touched by cancer. Every diagnosis is deeply personal, each story shaped by grief and hope, pain and healing, resilience and love. Together, we amplify voices. www.rareLifesolutions.com
#RareDisease #rareLifeSolutions #PatientCentricity
Patient‑centricity is the new standard. Evidence must capture lived experience, not just endpoints. Primary Market Research (PMR) ensures patient voices shape every stage—transforming data into impact.
medium.com/@vishalkrast...
#PrimaryResearch #PatientCentricity #PatientVoices
Read our "view from a newbie" report on ISPOR Europe 2025! Held in Glasgow, the conference provided a deep dive into Health Economics and Outcomes Research (HEOR).
rarerevolutionmagazine.com/rare-insider/ispor-europ...
#ISPOR #HEOR #RareDisease #PatientCentricity #RareRevolutionInsider
GetReal Conference 2025: Embedding #PatientCentricity and #DigitalHealth in #RealWorldEvidence generation | Becaris Publishing becarispublishing.com/digital-cont...
Eli Lilly has enlisted the aid of Tan France of US makeover show Queer Eye to change the narrative about #obesity in a new campaign. #ObesityCare #PatientCentricity #InclusiveHealthcare #PublicHealthCampaign
pharmaphorum.com/news/queer-e...
Thrilled to be #WODC25 starting with an important topic: innovative methodologies to accelerate rare diseases drug development #ERDERA #raredisease #patientcentricity
Everyone says “patient-first.”
But how do you actually build for it - across silos, systems, and strategy?
Leaders from Pfizer, Amgen, Sanofi, and J&J share how.
⬇️See the full speaker lineup in the brochure: https://ow.ly/9a7l50XgsLu
#REpharmaUSA #PatientCentricity #PharmaInnovation
Fortrea is ready to ready to kick off #AAO2025 in Orlando! Our team of ophthalmology experts is onsite and looking forward to connecting on the exhibit floor. You will be able to find us all week at booth 854.
#Ophthalmology #ClinicalTrials #FortreaExperts #PatientCentricity
“It would be unheard of anywhere else not to listen to customers,” said Nicole Richie, VP & Global Head of Population Science at Genentech.
In pharma, those customers are patients. Trust comes first-especially in rare disease.
➡️Full article:
shorturl.at/meEz1
#PatientCentricity #REclinicalUSA
Clinical trials can miss what matters most. Melody Joy Paine shares a Rett syndrome story that asks: what if lived experience guided how we assess impact? Not everything that counts can be measured.
👉Access the full webinar > shorturl.at/gWBgW
#ClinicalTrials #PatientCentricity
We’re counting down to #AAO2025 in Orlando, and Fortrea’s ophthalmology experts are ready to connect.
📍 Find us all week at booth 854
🤝 Let’s talk innovation, strategy, and partnership—see you soon!
#Ophthalmology #ClinicalTrials #FortreaExperts #PatientCentricity
Text: Whitepaper. Patient Centricity in Pharma: Closer to Reality or Smoke and Mirrors? Lumanity logo.
From rhetoric to reality: is pharma truly integrating the patient voice? Our Expert Patient Council debates the gap between words & action—and how to build real partnerships. Insights here: lumanity.com/perspectives... #PatientEngagement #PatientCentricity
#PatientEngagement: PR or genuine partnership? Read our white paper to learn how we can help you develop and implement patient-centric strategies and plans at buff.ly/UUxhVuK
#PatientCouncil #PatientCentricity #PatientVoices #InclusiveHealthcare #AdvocacyToAction
Ingrid Poldemaa, a patient involved in evaluating the project proposals for one of IHI's calls, says: "This is a good way to involve people and get better quality research. This is what the patient can offer - highlighting what is useful, indicating something that might affect a patient that the researcher may not realise."
🤝 Today, we're focusing on how patients are integrated into IHI's way of working. Hear from Ingrid Põldemaa, who took part in the evaluation of project proposals after one of IHI’s calls.
💡 Want to know more? europa.eu/!FwJk7T
#IHITransformingHealth #PatientCentricity #PatientsAsPartners
Advancing research through less bureaucracy.
Updated recommendations to reduce administrative burdens in clinical trials will:
👉 Read here: bureaucracyincts.eu/storage/2025...
#eularADVOCACY #PatientCentricity #Rheumatology #EURegulation
2/2 Because innovation isn’t just about a single breakthrough, it’s also about building systems that make breakthroughs repeatable, reproducible, and accessible.
Listen now: youtu.be/L2GvDNGV9BE
#TranslationalScience #RareDiseaseTrialDesign #PatientCentricity #ScienceInfrastructure #sciencePodcast
Ken Tait, patient involved in the Hypo-Resolve project. 'I like to think that what we brought to the table was a different dimension to the research. What I found fantastic was that we were a really sought-after voice, rather than just using us for feedback. We need to be at the heart of research, at the co-design and co-creation of it.'
👋 It's day 2 of our #PatientsInResearch week & we're focusing on co-creation & integrating #PatientVoices into #HealthResearch to transform results. Ken Tait is contributing to diabetes complications research & says patients need to be at the ❤️ of research. #NothingForUsWithoutUs #PatientCentricity
Just as Florence Nightingale used data to transform care, Market Access teams can leverage high-resolution patient insight to accelerate access, show real-world value, and make smarter, patient-centred decisions.
#MarketAccess #RealWorldEvidence #PatientCentricity #PatientOutcomes
Real #PatientCentricity demands courage and change - has the #pharma industry succeeded? Lumanity’s expert patient council recently held a debate on the question. Read on at buff.ly/SG6UyU4 and contact us to help develop and implement patient-centric strategies.
📢 New in JCER: "Are you implementation ready? An alternative patient and healthcare system-centered model for pharma"
🔗 becarispublishing.com/doi/10.57264...
#OpenAccess #JCER #Pharma #PatientCentricity #HealthcareInnovation #MarketAccess
Sharpening the lens on healthcare: From blurry data to high-resolution insights. Time to redefine decision-making and drive innovation. Are you ready to lead the charge?
lnkd.in/evyezZ7f
#HighResolutionHealthcare #FutureOfPharma #PatientCentricity #HealthcareInnovation
Thiscovery logo alongside the Patient Centricity & Engagement Conference logo with a "We're attending" sign held by a Thiscovery mascot. Photos of Ruth Cousens, CEO, and Sam Taylor, Marketing & Communications Lead.
👋 Heading to the Patient Centricity & Engagement Conference in London today?
Thiscovery will be there.
Ruth Cousens and Sam Taylor are attending and would welcome the chance to connect with others working to centre patient and clinician experience in pharmaceutical innovation.
#PatientCentricity
Congratulations to Sandra Visser, Ph.D., SVP, Head of Therapeutics Development at Alltrna, on being named President of @ascptclinpharm.bsky.social for 2025-2026! We’re proud to see her leadership recognized by the clinical pharmacology community.
#ASCPT2025 #PatientCentricity
If you’re following up on ideas from #PatientsEU2025, here’s a practical next step:
Use this tool to estimate how communication decisions affect cost per participant and trial length.
🔗 www.sciencesplained.com/calculator
#PatientsEU2025 #RecruitmentStrategy #PatientCentricity
Honored to deliver the 𝗦𝘁𝗮𝘁𝗲 𝗼𝗳 𝘁𝗵𝗲 𝗔𝗿𝘁 𝗟𝗲𝗰𝘁𝘂𝗿𝗲 at #ASCPT2025. Being a parent to a child with Duchenne has shaped my belief that empathy and urgency must guide how we transform drug development for rare diseases.
#PatientCentricity #BiotechLeadership
Proud to share that @mcw44.bsky.social is delivering the 𝗦𝘁𝗮𝘁𝗲 𝗼𝗳 𝘁𝗵𝗲 𝗔𝗿𝘁 𝗟𝗲𝗰𝘁𝘂𝗿𝗲 at #ASCPT2025! Her talk will spotlight how empathy and innovation can transform #raredisease #drugdevelopment.
@ascptclinpharm.bsky.social: bit.ly/3F4XyWt
#tRNA #StopCodonDisease #RNAsky #PatientCentricity
ISPOR 2025: Exploring sessions on #PatientCentricity | Becaris Publishing becarispublishing.com/digital-cont...
#ISPORAnnual
