Trending

#Scleroderma

Latest posts tagged with #Scleroderma on Bluesky

Latest Top
Trending

Posts tagged #Scleroderma

Preview
Wake Up Fresh: How To Stop Morning Breath Waking up with bad breath? Totally normal. But if it lingers past your morning coffee, it could be a red flag. Find out what your breath might be trying to tell you — and how to fix it.

Wake Up Fresh: How To Stop Morning Breath.
I floss after all 3 meals, but from #SLE & #Scleroderma I always have some white plaque on my tongue, so I brush my teeth before and after breakfast. (NO fungus)
health.clevelandclinic.org/morning-breath
@clevelandclinic.bsky.social

1 1 0 0
Preview
Carbon dioxide hand baths may help in SSc-related Raynaud’s Hand baths enriched with carbon dioxide were found to ease symptoms of systemic sclerosis-associated Raynaud’s phenomenon in a small trial.

sclerodermanews.com/news/carbon-...
#scleroderma

0 0 0 0
Original post on onedaymd.com

The DMSO Moment: How an Old Medicine Finds New Life - Mary Beth Pfeiffer A woman facing a lung transplant reversed her condition with a $30 over-the-counter treatment. Doctors told her she had no o...

#autoimmune #DMSO #lung #health #lung #transplant #Mary #Beth #Pfeiffer #scleroderma

Origin | […]

0 0 0 0
Post image

This #RareDiseaseDay, we highlight the work of GlycoNet investigators Drs. Lisa Willis & Mo Osman identifying polysialic acid as a potential biomarker for severe #scleroderma — paving the way for a simple blood test to guide earlier treatment decisions. canadianglycomics.ca/glyconet-inv...

3 0 0 0
Preview
Reciprocal regulation of fibroblast–macrophage equilibrium governs skin integrity - Nature Immunology Turley, Buechler and colleagues show that dermatopontin-expressing fibroblasts provide CSF1 to form a supportive niche for skin-resident macrophages. This interaction is important for skin tissue arch...

#WeekendRead! #EveryCellIsAnImmuneCell! Vollmers Turley &co show @natimmunol.nature.com that lack of CSF1 in skin #fibroblasts decreases macrophage numbers dampening wound repair, and in turn boosts fibroblasts! In human #scleroderma the cellular circuit between fibroblasts & macrophages is altered!

6 4 0 0

Have you had surgery for Carpal Tunnel Syndrome? It’s another gift that often comes with #Scleroderma that I am dealing with.
#SclerodermaWarrior

1 0 0 0
Post image

Rare Disease Day is February 28.

#PH is often associated with other rare diseases such as #scleroderma, #HHT, idiopathic #pulmonaryfibrosis, #sicklecell disease and #lupus.

Raising awareness, improving diagnosis and ensuring access to care can save lives. Learn more: buff.ly/8TU8sC5

5 0 0 0
Preview
New horizons in systemic sclerosis treatment: advances and emerging therapies in 2025 Systemic sclerosis (SSc) is a rare, multisystem autoimmune disease characterised by vasculopathy, immune dysregulation, and progressive fibrosis, leading to significant morbidity and mortality. While ...

Excellent review on modern therapeutic options available for #scleroderma
rmdopen.bmj.com/content/11/3...

1 0 0 0
Mom's Scleroderma Was Chronic Pain But She Never Complained | Ian Kitajima
Mom's Scleroderma Was Chronic Pain But She Never Complained | Ian Kitajima In this deeply moving clip, Ian Kitajima opens up about growing up with a mother who lived with scleroderma—an autoimmune disease that caused constant, chron...

Mom's Scleroderma Was Chronic Pain But She Never Complained | Ian Kitajima

#GGRClips #GreaterGoodRadio #ConnectLearnHealGrow #InspirationalInterviews #IanKitajima #Scleroderma #ChronicPain #Resilience #Motherhood #QuietStrength #HawaiiStories

2 0 0 0
Preview
New lab findings support stem cell treatments for use in SSc-ILD Lab findings support the clinical investigation of stem cell-based interventions for systemic sclerosis-related interstitial lung disease.

sclerodermanews.com/news/lab-fin...

#scleroderma

1 0 0 0
Post image Post image

📣Review Sharing: Volume 86, Issue 12

🧾Systemic Sclerosis—Recent Advances in Diagnosis and Management

👩‍🔬William J Kerrigan, Alistair C Church, Ariane L Herrick

📌Full Text: imrpress.com/journal/BJHM...

#Sclerosis #Scleroderma #vasculopathy #InternalMeicine #MedSky #AcademicSky

7 2 0 0
Preview
Abnormal fatty acid metabolism may play role in scleroderma Abnormal fatty acid metabolism may play a role in the development of systemic sclerosis, according to a gene activity analysis.

sclerodermanews.com/news/abnorma...
#scleroderma

0 0 0 0

Random autoimmune/fibromyalgia flare started yesterday and has slowly just been getting worse and worse. Thankful it's a 3 day weekend, a little less thankful to have already made plans Saturday and Sunday 😅😵‍💫
#chronicillness #autoimmune #scleroderma #fibromyalgia

3 0 0 0
From left to right: Harinder Singh, Alok Joglekar, Jishnu Das, and Amanda Poholek. CREDIT: Photography by Rayni Shiring, University of Pittsburgh

From left to right: Harinder Singh, Alok Joglekar, Jishnu Das, and Amanda Poholek. CREDIT: Photography by Rayni Shiring, University of Pittsburgh

Jishnu Das in his office at The Assembly. CREDIT: Photography by Rayni Shiring, University of Pittsburgh.

Jishnu Das in his office at The Assembly. CREDIT: Photography by Rayni Shiring, University of Pittsburgh.

From left to right: Aaron Rosen, Hanxi Xiao, Jishnu Das, and Javad Rahimikollu. CREDIT: Asher Jones

From left to right: Aaron Rosen, Hanxi Xiao, Jishnu Das, and Javad Rahimikollu. CREDIT: Asher Jones

Read the story behind SLIDE, an interpretable ML tool from Jishnu Das, @poholeklab.bsky.social and colleagues that infers hidden factors to explain biological outcomes—not just correlations. Already uncovering mechanisms in #T1D, #scleroderma, #asthma & more! www.immunology.pitt.edu/news/slidein...

3 2 0 0
MultiSearch Tag Explorer MultiSearch Tag Explorer - Explore tags and search results by aéPiot

#SCLERODERMA #AREOLATUM
multi-search-tag-explorer.allgraph.ro/advanced-sea...
#ALAVÉS 2025 26
multi-search-tag-explorer.headlines-world.com/advanced-sea...
allgraph.ro

0 0 0 0
Preview
Cabildo Abierto Una plataforma para discutir en serio, hecha en Argentina.

cabildoabierto.ar/perfil/globa...

better-experience.blogspot.com/2026/01/aepi...

#SCLERODERMA #AREOLATUM
multi-search-tag-explorer.aepiot.ro/advanced-sea...
#ALAVÉS 2025 26
multi-search-tag-explorer.aepiot.com/advanced-sea...
allgraph.ro

0 0 0 0
Preview
@globalvisibility.bsky.social | Woosh @globalvisibility.bsky.social on Woosh - The customizable link page built for the fediverse.

woosh.link/globalvisibi...

better-experience.blogspot.com/2026/01/plat...

#SCLERODERMA #AREOLATUM
multi-search-tag-explorer.allgraph.ro/advanced-sea...
#ALAVÉS 2025 26
multi-search-tag-explorer.aepiot.com/advanced-sea...
aepiot.ro

0 0 0 0
Video

"It's a very difficult conversation to have"... April was diagnosed with a rare autoimmune disease and tells us her story. #GBCLifeStories #Scleroderma

2 1 0 0

Why am I learning from a Rheumatologist on Instagram that female hormone medications can cause greater production of collagen and fibrosis. We need integrated medical teams in Ontario.
#Scleroderma
#HardWordHarderDisease

1 0 0 0

Wrinkling skin is healthy. If you don’t appreciate it then look up the disease that I have that is called #Scleroderma. You’d be wishing for wrinkles if you had this disease.

1 0 0 0
Original post on onedaymd.com

The DMSO Moment: How an Old Medicine Finds New Life - Mary Beth Pfeiffer A woman facing a lung transplant reversed her condition with a $30 over-the-counter treatment. Doctors told her she had no o...

#autoimmune #DMSO #lung #health #lung #transplant #Mary #Beth #Pfeiffer #scleroderma

Origin | […]

0 0 0 0
Preview
Presidential Medal Follows Lifetime of Work in Rheumatology's Complex Diseases The American College of Rheumatology awarded its 2025 Presidential Gold Medal to Dr. Eric Matteson for his achievements and service.

The American College of Rheumatology awarded its 2025 Presidential Gold Medal to Dr. Eric Matteson for his achievements and service, working with challenging #AutoimmuneDiseases, from #ANCA-associated vasculitis and #Scleroderma to #PolyarteritisNodosa and #IgG4RD

Read here: https://bit.ly/3KVgf1O

1 0 0 0

Sometimes I wish I were still young, and spontaneous, and just threw myself into life, but I don’t have the energy for that now. Will I ever get used to being sick every day?
#ChronicIllness
#Scleroderma

2 0 1 0

Heads up to everyone, especially those dealing with #autoimmunedisease #obesity #alzheimers
We are taking Vitamin D Levels that are too low.
#Scleroderma
#Hashis
#ChronicIllness
youtu.be/j_Ijc74Vy5U?...

2 0 0 0

It’s been 5 mths since my diagnosis of #Scleroderma
I’m overwhelmed every day. There’s illness issues; mainly untreated pain,then the emotional & mental rollercoaster of grief. I need a plethora of painful tests, I dread it all. I’m sorry this is your new reality.
#ChronicIllness
#Spoonie

2 0 1 0
Remote monitoring of spirometry and oximetry in patients with connective tissue disease related interstitial lung disease: a prospective observational cohort study

People with #rheumatoid arthiris and #scleroderma who have lung fibrosis can safely and effectively monitor their breathing and oxygen levels at home.

Read our paper in @bmc.springernature.com describing how patients face and overcome challenges.

@irishthoracicsoc.bsky.social

rdcu.be/eQV9e

3 0 0 0
Preview
NORD Launches New RFP for Patient Registries - National Organization for Rare Disorders Implementation of two new patient registries on the IAMRARE® platform funded by RDCA-DAP®

#Ssc #scleroderma

rarediseases.org/rdca-dap-rfp...

2 0 0 0
Post image

#PFFSummit: Donna Dinkin, DrPH, a PFF patient ambassador with #Scleroderma-associated #InterstitialLungDisease (ILD), speaking Nov. 14 at the 2025 PFF Summit in Chicago.

Image & quote taken by Senior Correspondent, Larry Luxner.

#RareDisease #PulmonaryFibrosis #MedSky

0 0 0 0
Fundraising Powered by OneCause, creator of BidPal

Cool Comedy Hot Cuisine is on Wednesday, November 12th in NYC, bringing together world-class performers, side-splitting laughter, and a gourmet experience. Proceeds are aimed at finding a cure for #Scleroderma a life-threatening and disabling autoimmune disease.

0 0 0 0

Not looking forward to seeing my friends with #Scleroderma in the States fucking die over the next few months because they can’t afford their healthcare bills.
#FuckSchumer
#FuckDems

1 1 0 1