Latest posts tagged with #TeamClots on Bluesky
TODAY! Roundtable of experts on research, tests, & Tx (anticoagulants & more).
🩸Hypercoagulability
🩸Microclotting
🩸Antiphospholipid synd.
#TeamClots #MECFS #LongCovid #APS
Join: us06web.zoom.us/webinar/register/1417709311549/WN_pA2epNjuSm2jn3852eeCNQ
Recording: youtube.com/@renegaderesearch
#teamclots don’t miss this hrpercoag / microclots event in thread above on March 13 2026 or catch the recording later.
This event is in two days! Register now to attend: us06web.zoom.us/webinar/regi...
If you can't make it, we'll post the recording to our YouTube later, so subscribe to be notified: www.youtube.com/@renegaderes...
#TeamClots #Microclots #MECFS #pwME #LongCovid #APS #Clotting
Screenshot of a text message on a dark background inviting the recipient to complete a 3-minute outpatient experience survey, with a link provided to give feedback to help improve care.
Oooh I've just received this & I have a lot of feedback to give about this particular appointment 🙈
#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots
To add salt in the wound this all happened at the very hospital I was working in when I caught covid in the first place...nice to see that absolutely nothing had changed
#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots
The medical student nodded when I said all my issues started after Covid. The consultant just looked at me like I was mad. Maybe there’s hope for the future after all 🙏
#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots
I left feeling like I’d been in a fight for 15 minutes. Grateful tests are happening, but being believed shouldn’t be this hard.
#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots
Somehow further tests were still ordered, minimising and investigating, which is such a confusing mix.
#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots
Repeatedly questioned whether I was “really” well pre-Covid (at least 5 times), asked to justify my #POTS diagnosis & 🫁 clot history & abnormal blood results (the reason for referral) brushed off as “stress”. It felt like an interrogation.
#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots
Screenshot of a clinic letter with most text obscured by blue scribbles. The visible sentence at the top reads: “She is pretty certain all her medical issues started after covid infection.” The rest of the letter content is deliberately hidden to protect privacy.
Had my long-awaited endocrinology appt yesterday and it felt deeply minimising. Woke up to the clinic letter today and realised I wasn’t imagining it.
#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots
Always pleasing to hear of things that work. Summary of microclots at dbkgroup.org/longcovid/ #TeamClots
🧪#LongCovid
#TeamClots
16 September 2022- The Open Online Briefings with Dr David Nabarro 31:00 onwards to 38:57
and 1 hour & 5 mins
youtu.be/Vwt93_Lg128?...
Dr Rae Duncan 2025 interview
youtu.be/ZX_ql12aHGc?...
🧪 #TeamClots
#LongCovid
#MECFS
#Alzheimers
#PreEclampsia
@dbkell
Mushrooms
Ergothioneine
Chestnut Honey
Hyaluronic Acid
Ferritin=cell death
Lignated/Keylated Fe
Fe overload leads to microclots
diagnostics
Oxidative stress markers
☝️Ferritin levels
inflammation markers
youtu.be/j1KZBEWbaGQ?si…
Three boxes of medication stacked on a wooden surface: Aspirin 75 mg gastro-resistant tablets on top, Apixaban 5 mg film-coated tablets in the middle, and Clopidogrel 75 mg film-coated tablets at the bottom, indicating triple antithrombotic therapy.
Started triple therapy today 🙏
Already been on apixaban & aspirin for years, now adding clopi 💊
Feeling nervous but hopeful, praying for benefits, mild side effects and nothing scary 🤞🤍🙏
#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots
Blood pro-thrombotic analytes and platelet activation are associated with post-acute sequelae of COVID-19 — Whitcomb et al. "Among patients with active PASC, a distinct proteomic profile emerged which was characterized by persistent elevation of inflammatory markers and tissue remodeling proteins irrespective of initial disease severity. Pathway enrichment analyses identified neutrophil degranulation, platelet activation, and extracellular matrix remodeling as central processes, suggesting that unresolved inflammation and chronic vascular damage may also underlie the development of long-term sequelae."
From the US
Blood pro-thrombotic analytes and platelet activation are associated with post-acute sequelae of COVID-19
link.springer.com/article/10.1...
Screenshot from Science for ME weekly update
#LongCovid #TeamClots #PASC #PwLC #postcovid #postcovid19 #Covidlonghaulers #PostCovidSyndrome
Nice commentary and visual abstract from Denorme, F., Campbell, R.A. Linking thromboembolism to the pathogenesis of long COVID. Nat Cardiovasc Res 4, 1594–1595 (2025)
#teamclots
www.nature.com/articles/s44...
Description by Gemini Fast: A screenshot from a video titled "Bizarre Structures Inside Blood May Be Responsible for Long COVID." A man with short dark hair, wearing a blue t-shirt, is speaking, positioned in front of a massive, 3D visualization of a blue and orange spiky molecular structure (likely the SARS-CoV-2 virus).
Description by Gemini Fast: A false-color, fluorescence micrograph of a microscopic structure, likely a Long COVID microclot. The structure glows red, green, and cyan against a black background and is labeled with arrows pointing to its components: ThT (Thioflavin T, indicating amyloid structures), MPO (Myeloperoxidase), and DNA, suggesting a complex of Neutrophil Extracellular Traps (NETs).
Description by Gemini Fast: A screenshot showing the title page of a research article from the Journal of Medical Virology. The title reads: "Circulating Microclots Are Structurally Associated With Neutrophil Extracellular Traps and Their Amounts Are Elevated in Long COVID Patients." The names of the researchers and their international affiliations are listed below.
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Always cool seeing big general science YouTube channels cover our chronic illnesses.
Perhaps sad that them just calling the scale of the problem right is a thrill...
But Anton Petrov actually informed me on NETs -> microclots, from a #TeamClots study, earlier this year.
Microscopic image showing illuminated clusters of red, green, and cyan biological material, suggesting changes in blood composition, above a headline that reads: "LONG COVID NEWS By Vishwam Sankaran / Strange changes found in blood of long Covid patients / Tiny clots appeared larger-than-normal in long Covid patients, study finds / Source: The Independent, 17 November 2025"
#LongCovid in The Independent today about the new #teamclots paper that shows clear biological abnormalities involving microclots + immune activation.
Let's unpack the findings 👇
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A clear explanation of nailfold capillaroscopy and the great significance it has in relation to easily identifying #microclots already associated with #LongCovid Explains the experience of hypoxia, fatigue and PEM.
I've often had purple instead of white thumbnail crescents since Covid. #teamclots
I’ve spent the rest of the day in bed, still processing it but feeling seen and cautiously hopeful.
It’s been a long wait but definitely worth it. I really hope this is the start of a new chapter of this rollercoaster 🎢✨
#LongCovid #PwME #MCAS #TeamClots #Migraine
A great reminder that it is not "brain fog" but #cognitiveimpairment. Here is a paper I wrote with @kirrabrean about this very topic
journals.lww.com/cptj/fulltex...
#LongCovid #PwME #MCAS #TeamClots #Migraine
I also got my cognitive assessment results, which showed difficulties in a few areas. She’s recommending cognitive rehab, oh the irony, since I used to be a specialist neuro OT helping others with exactly that 💚 #OTWeek25
#LongCovid #PwME #MCAS #TeamClots #Migraine
After years of deliberation, it looks like I’ll be adding another antiplatelet, so I’ll be on triple anticoag therapy 🙏
Dr Kane also suggested some other treatments/theories and I'm still processing it all 🤯
#LongCovid #PwME #MCAS #TeamClots #Migraine
And today I had my first appointment with @binitakane.bsky.social at #TheLongCovidClinic and it did not disappoint!
It was so validating. She was incredibly kind, understanding & really joined the dots in ways that made everything make sense.
#LongCovid #PwME #MCAS #TeamClots #Migraine
Over the last week or so I’ve been feeling a bit more hopeful 🙏
I’ve been using nurosym all year & think I’ve finally found the right settings for me. I’m not cured, still in bed most of the day but I haven’t been feeling as awful
#LongCovid #PwME #MCAS #TeamClots #Migraine
A bridge between science and quackery. 🧵
Resia Pretorius #TeamClots has become known as an advocate for people affected by Long Covid since the emergence of the coronavirus pandemic and has developed testing methods for this condition.
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