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Posts tagged #cureME

#MECFS #cureME #fightME #Demonstration #Crowdfunding #Liegenddemo
@me-hilfe.bsky.social @mecfsbw.bsky.social @fatigatioev.bsky.social @lightupthenight4me.bsky.social

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10.05.2026 Lingen (Ems), 14–15:30 Uhr
10.05.2026 Greifswald, 12-14 Uhr

12.05.2026 Jena, 15:30–16:30 Uhr

?.05.2026 Oldenburg, noch offen
?.05.2026 Ulm, noch offen

#MECFS #cureME #Liegenddemo2026 #MEAwarnessDays #Demonstration

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#ME/CFS #cureME #Demonstration #Liegenddemo2026 #MEAwarnessDays

@binemilchkaffee.bsky.social @fatigatioev.bsky.social @me-hilfe.bsky.social @mecfsbw.bsky.social @lightupthenight4me.bsky.social

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🫶 Es wäre schön, wenn du dabei bist. Jede Geschichte zählt. Sei ein Teil der LiegendDemo – auch aus der Ferne!

📢 Markiere Freund*innen, teile diesen Beitrag und hilf mit, ME/CFS sichtbar zu machen!

#MECFS #cureME #Liegenddemo2026 #MEAwarnessDays

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Teile gerne diesen Beitrag. 🫶

#MECFS #cureME #Demonstration #MEAwarnessDay #Liegenddemo

@lightupthenight4me.bsky.social @me-hilfe.bsky.social @mecfsbw.bsky.social @fatigatioev.bsky.social @dgmecfs.bsky.social @binemilchkaffee.bsky.social

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Update: UK ME/CFS Biobank Steering Group - The ME Association The ME Association (MEA) has invested £1.095m in the UK […]

Update: UK ME/CFS Biobank Steering Group

The Cure ME Steering Group meets quarterly to discuss matters relating to the UK ME/CFS Biobank,  and its most recent meeting was on 17 December.

Read more about this meeting: https://meassociation.org.uk/4wug 

#MECFS #CureME #UKMECFSBiobank #MECFSResearch

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#LiegendDemo2026 #cureME #mecfs
@me-hilfe.bsky.social @mecfsbw.bsky.social @fatigatioev.bsky.social @lightupthenight4me.bsky.social @dgmecfs.bsky.social @emptystands.me @privilegienschreck.bsky.social @drmccoy.info

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@binemilchkaffee.bsky.social @me-hilfe.bsky.social @fatigatioev.bsky.social @mecfsbw.bsky.social @lightupthenight4me.bsky.social @drchronically.bsky.social @dgmecfs.bsky.social @protectthekids.bsky.social @emptystands.me

#Liegenddemo #cureME #MECFS #Demonstration #fightME

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Auch eine kleine Spende, hilft.
Teile gerne diesen Beitrag.🫶

#MECFS #cureME #LongCovid #PostVac #PostCovid #EBV #Influenza #Fluorchinolone #MEAwarnessDay #Liegenddemo #Liegenddemo2026 #Demonstration #Demo

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Auch eine kleine Spende, hilft.
Teile gerne diesen Beitrag.🫶

#Liegenddemo #MEAwarnessDays #MECFS #cureME #fightME

@liegenddemohann.bsky.social @lightupthenight4me.bsky.social @dgmecfs.bsky.social @emptystands.me

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👉 Alle Vorlagen zum Download: In der Bio und auf
mecfs-info.de

#Postkartenaktion #MECFS #cureME

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About the UK ME/CFS Biobank (CureME Team)
About the UK ME/CFS Biobank (CureME Team) About the UK ME/CFS Biobank (2025) The CureME team at the London School of Hygiene & Tropical Medicine (LSHTM) established the UKMEB with funding from the US...

The UK ME/CFS Biobank (UKMEB) is a world-renowned resource driving global research into ME/CFS, and the ME Association proudly funds all the basic annual running costs at the UKMEB. 

Watch the video: https://www.youtube.com/watch?v=dbgJ5gVxYNU

#MECFS #ResearchMatters #UKMEB #MEAssociation #CureME

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Free samples from the UK ME/CFS Biobank – Winners announced Earlier this year, the team at the UK ME/CFS Biobank asked ME Research UK to highlight a new initiative, referred to on X as the ‘#CureME Free Sample Campaign’, which offered high-quality samples from...

The #CureME Free Sample Campaign offered high-quality samples from the Biobank at no cost to those with the best outline research proposal. Among the winners are Dr Sarah Annesley (Oz) & Dr Kempuraj Duraisamy (USA) who are working on an MERUK project.
tinyurl.com/4sftr5aw

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das is echt ne scheisse wenn man #MECFS hat. wäre ich nicht krank würde ich stress viel besser handeln können. habe keine erholsame minute laut meiner gesundheitsapp gehabt seit der panik attacke gestern. hoffe das führt nicht zu einem crash #cureME

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Photo of a white woman wearing a baseball cap and a black face mask, a blue ME/CFS Surf Club tshirt and a salmon jacket standing on a beach in front of the ocean

Photo of a white woman wearing a baseball cap and a black face mask, a blue ME/CFS Surf Club tshirt and a salmon jacket standing on a beach in front of the ocean

Also rocked this version at the Shore, which was particularly appropriate given a hurricane rolling thru (analogy for the brutalness of ME?) 🌊🌊🌊

Link here if you want your own, proceeds benefit @openmedf.bsky.social #TreatME #CureME www.bonfire.com/mecfs-surf-c...

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Der Hintergrund des Bildes besteht aus einem farbigen Übergang von hell- zu dunkelblau. Rechts oben steht in weißer Schrift "mecfs-info.de". Darunter steht "Bitte geh für uns zur Demo - #Trauergang - denn wir sind selbst zu krank dafür!" Unter diesem Text ist eine blaue Schleife mit der Aufschrift "Severe M.E.", daneben steht "Köln, 08.08.2025, 16:30 bis 17:45 Uhr, Start und Ziel: Alter Markt Rungang um den Heumarkt" 
Unter diesen Informationen steht "Aktionstag zum Severe ME/CFS Awarness Day! - Sei stellvertretend dabei und unterstütze so Menschen mit der Erkrankung ME/CFS. Für mehr Pflege, Forschung und Engagement!"
Links unten ist das Liegenddemo Logo mit dem Text "Initiative #Liegenddemo" zu sehen. Unten mittig steht "Long Covid, ME/CFS, Post Vac" und rechts davon sieht man das Liegenddemo Community Logo mit dem Text "#Liegenddemo Community Köln"

Der Hintergrund des Bildes besteht aus einem farbigen Übergang von hell- zu dunkelblau. Rechts oben steht in weißer Schrift "mecfs-info.de". Darunter steht "Bitte geh für uns zur Demo - #Trauergang - denn wir sind selbst zu krank dafür!" Unter diesem Text ist eine blaue Schleife mit der Aufschrift "Severe M.E.", daneben steht "Köln, 08.08.2025, 16:30 bis 17:45 Uhr, Start und Ziel: Alter Markt Rungang um den Heumarkt" Unter diesen Informationen steht "Aktionstag zum Severe ME/CFS Awarness Day! - Sei stellvertretend dabei und unterstütze so Menschen mit der Erkrankung ME/CFS. Für mehr Pflege, Forschung und Engagement!" Links unten ist das Liegenddemo Logo mit dem Text "Initiative #Liegenddemo" zu sehen. Unten mittig steht "Long Covid, ME/CFS, Post Vac" und rechts davon sieht man das Liegenddemo Community Logo mit dem Text "#Liegenddemo Community Köln"

Macht gemeinsam mit uns Werbung, damit wir an den Severe ME/CFS Awareness Days ganz ganz viele sind 🙏🏼

#LiegendDemo #MECFS #PostCovid #PostVac #LongCovid #MEAwareness #meawarenessday #severeME #Fluorchinolone #EBV #Influenza #Trauergang #Awarness #cureMECFS #cureME #Demonstration

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IMAGE DESCRIPTION: Green background with the CureME and London School of Hygiene and Tropical Medicine logos at the bottom right. Wording reads: The UK Me/CSF Biobank provides samples with a rich set of clinical, immunological, and demographic data.

IMAGE DESCRIPTION: Green background with the CureME and London School of Hygiene and Tropical Medicine logos at the bottom right. Wording reads: The UK Me/CSF Biobank provides samples with a rich set of clinical, immunological, and demographic data.

The MEA are proud to support the CureME Team, who are currently offering free, high-quality biosamples from the UK ME/CFS Biobank.

Make sure you apply by 31 July: http://bit.ly/MECFS-samples 

#MECFS #MEResearch #MECFSResearch #CureME

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Das Bild zeigt ein Baustellengitter mit vielen darauf platzierten Flyern, unter anderem von NichtGenesen. Im Hintergrund sieht man Häuser.

Das Bild zeigt ein Baustellengitter mit vielen darauf platzierten Flyern, unter anderem von NichtGenesen. Im Hintergrund sieht man Häuser.

Bilder an den Bauzäunen: nichtgenesen (Insta Acc)
Bilder: freikamera (Insta Acc)

#MECFSAwarnessdays2025 #Liegenddemo #cureMECFS #fightMECFS #severeme
#cureme #mecfsistecht #mecfs #ravensburg
#activism #millionsmissing #demo #demoimliegen

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Yay! These pills raised 362,50 euro's for medical research for long covid. These pills don't cure, but they definitely help!
Money has been raised for #stichtinglongcovid, love has been spread. Keep going, so will I!
#ravelry #crochet #longcovid #cureme #crochetsky www.ravelry.com/patterns/lib...

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IMAGE DESCRIPTION: Green background with the London School of Hygiene and Tropical Medicine and CureME logos bottom right. Wording reads: The UK ME/CFS Biobank is offering free samples to support ME/CFS researchers

IMAGE DESCRIPTION: Green background with the London School of Hygiene and Tropical Medicine and CureME logos bottom right. Wording reads: The UK ME/CFS Biobank is offering free samples to support ME/CFS researchers

Early-career researchers: make your mark with The UK ME/CFS Biobank's free access to high-quality samples and data — a perfect launchpad for pilot projects, PhDs, and first-author publications.

Apply: https://t.co/0LDlZhdhMe 

#CureME #MECFS #MyalgicEncephalomyelitis #MyalgicE #MEResearch

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IMAGE DESCRIPTION: Photo of Dr Sook. Wording reads: "Our work shows the immune response is different between milder ME/CFS patients, whose responses are indicative of frequent virus exposure, and severely affected ME/CFS patients who have more general pro-inflammatory responses" Dr Ji Sook Li, Research Fellow, Brunel University of London & LSHTM

IMAGE DESCRIPTION: Photo of Dr Sook. Wording reads: "Our work shows the immune response is different between milder ME/CFS patients, whose responses are indicative of frequent virus exposure, and severely affected ME/CFS patients who have more general pro-inflammatory responses" Dr Ji Sook Li, Research Fellow, Brunel University of London & LSHTM

We’re proud to have funded the UK ME/CFS Biobank, which made possible Dr. Sook’s latest study on T-cell activation & symptom severity in ME/CFS

You can now apply for free samples: https://tinyurl.com/mp96zzwp

#pwME #MECFS #MyalgicEncephalomyelitis #CureME #Research

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IMAGE DESCRIPTION: Green background with the logos for CureME and The London School of Hygiene and Tropical Medicine in the bottom right. Wording reads: The ME/CFS Biobank offers samples from different patient groups for comparitive research.

IMAGE DESCRIPTION: Green background with the logos for CureME and The London School of Hygiene and Tropical Medicine in the bottom right. Wording reads: The ME/CFS Biobank offers samples from different patient groups for comparitive research.

We’re proud to support the UK ME/CFS Biobank & the @CureME team
 
Samples from them offer a broad range of patient groups including different severities of ME/CFS, Long Covid, MS, & healthy controls.

https://tinyurl.com/mp96zzwp

#pwME #MECFS #MyalgicEncephalomyelitis #CureME #Research

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IMAGE DESCRIPTION: Green background. Wording reads: The ME/CFS Biobank offers a rich variety of biological samples for ME/CFS research. London School of Hygiene & Tropical Medicine logo and CureME logos bottom right.

IMAGE DESCRIPTION: Green background. Wording reads: The ME/CFS Biobank offers a rich variety of biological samples for ME/CFS research. London School of Hygiene & Tropical Medicine logo and CureME logos bottom right.

We’re proud to support the UK ME/CFS Biobank, as their samples include comprehensive clinical & questionnaire data that powers high-quality, international ME/CFS research
 
Researchers can now apply for free samples from the Biobank

Apply: https://tinyurl.com/mp96zzwp

#MECFS #CureME #Research

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アーティストの未来を切り拓く新しい展示の仕組み『cureme』始動 アーティストに適切な展示機会を提供する『cureme』が始動。従来の評価基準を覆し、700人以上のアーティストをサポートしていく。最新の展示情報をお届け。

アーティストの未来を切り拓く新しい展示の仕組み『cureme』始動 #愛知県 #名古屋市 #artkake #cureme #アーティスト展示

アーティストに適切な展示機会を提供する『cureme』が始動。従来の評価基準を覆し、700人以上のアーティストをサポートしていく。最新の展示情報をお届け。

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Kämpft für Kinder mit LongCovid / MECFS mit. Wir brauchen Therapien, also Forschung. Es ist eine ernsthafte somatische Erkrankung die bei vielen Menschen zu dauerhafter Schul - oder Arbeitsunfähigkeit führt. Und täglich werden es mehr. #MillionsMissing #CureME

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Colorful illustration of woman on fire by @rana.theartist with the caption: Excuse me if I'm a little moody, I'm in pain 24-7.

Colorful illustration of woman on fire by @rana.theartist with the caption: Excuse me if I'm a little moody, I'm in pain 24-7.

M.E. - HOW IT CAN SHRINK ONE'S LIFE BITS BY BITS

BEFORE M.E. - TRAVEL, PARTY, GYM, CAFÉ

"MILD M.E." - WORK, HOME

"MODERATE M.E." - HOME

"SEVERE M.E." - BED

"VERY SEVERE M.E." - COMPLETE DARKNESS

• Kornelia Paulsen 2023 @illustrating_ME

M.E. - HOW IT CAN SHRINK ONE'S LIFE BITS BY BITS BEFORE M.E. - TRAVEL, PARTY, GYM, CAFÉ "MILD M.E." - WORK, HOME "MODERATE M.E." - HOME "SEVERE M.E." - BED "VERY SEVERE M.E." - COMPLETE DARKNESS • Kornelia Paulsen 2023 @illustrating_ME

Support @rana.theartist / @illustrating_ME (Kornelia Paulsen) and other artists with complex chronic illness! 10/end

#longcovid #firstwave #mecfs #millionsmissing #longcovidawareness #covidisnotover #treatlongcovid #curelongcovid #cureME

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To people with ME/CFS and other complex, chronic, energy-gobbling illnesses: I see you and feel oceans of gratitude. Thank you for using your precious energy to share your wisdom so that #pwLC feel less alone. 4/

#mecfs #millionsmissing #cureME #curelongcovid
#covidisnotover

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A flyer about raising Long Covid awareness with a picture of a sad woman in a high-quality mask. text reads:

Long Covid

Bateman Horne Center
RESEARCH * CLINICAL CARE * EDUCATION

THE STRUGGLE IS REAL

Long COVID Awareness Day is an opportunity to stand in solidarity with the survivors of this unseen battle, acknowledging their strength, resilience, and the profound impact the condition has on their lives. By recognizing the ongoing challenges posed by Long COVID, we can collectively work towards a future where those affected receive the support and quality healthcare they need and a world that is informed to remain vigilant in the face of a pandemic that persists.

Scan to visit our Long COVID & Post Viral Syndromes ECHO archives, which detail disease specific interventions, aiding patients and their care teams in ongoing complex multi-system management.

A flyer about raising Long Covid awareness with a picture of a sad woman in a high-quality mask. text reads: Long Covid Bateman Horne Center RESEARCH * CLINICAL CARE * EDUCATION THE STRUGGLE IS REAL Long COVID Awareness Day is an opportunity to stand in solidarity with the survivors of this unseen battle, acknowledging their strength, resilience, and the profound impact the condition has on their lives. By recognizing the ongoing challenges posed by Long COVID, we can collectively work towards a future where those affected receive the support and quality healthcare they need and a world that is informed to remain vigilant in the face of a pandemic that persists. Scan to visit our Long COVID & Post Viral Syndromes ECHO archives, which detail disease specific interventions, aiding patients and their care teams in ongoing complex multi-system management.

Millions of us are still suffering with no end in sight, and new COVID19 long-haulers join our ranks with each new day. 2/

#longcovidawareness #covidisnotover #curelongcovid #cureME #millionsmissing #NEISvoid

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