Latest posts tagged with #NEISvoid on Bluesky
I'm now going to collapse in a heap and try not to think about how my GI doctor is probably going to order a colonoscopy
(or the fact that I'm having pain in the spot my "maybe Crohn's?" inflammation was doing its thing a few years ago)
#NEISvoid
feeling kind of like a badass today as I realized my ER visit only took three hours
got home, changed into clothes that didn't smell like hospital, went to the plant swap with a bunch of free baby food plants. Left with marigold seeds and a baby mini citrus tree??
#NEISvoid
⚠️⚠️💛⚠️💕💸🏳️⚧️🏳️🌈⚠️⚠️✨⚠️💛⚠️
2:35pm
$229 still needed
Rooms still at immediate risk
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I have been doing this since last night. My body is shutting down.
Venmo: Subversiva
#MutualAid #NEISVoid #DisabilityCommunity #HousingSupport #EmergencyAid #DirectSupport #MutualAidBlueSky #AltText #DisabledFamily
S1E1 of #HeatedRivalry is starting soon in the #ChronicLoaf stream
Hop in and watch with us ahead of the #SeatedRivalry, Sled Hockey championship tomorrow morning!
mzelo.com/app/rooms/ch...
#NEISvoid #mecfs #DisCo #ForTinu #spoonie #cannabisculture #lgbtqrepresentation
Black background with bold bright pink text reading: “Mutual aid is love that learned how to fight.”
Bright pink mutual aid poster with bold text reading “DUE NOW – MUTUAL AID HOUSING REQUEST.” Below it states: “$300 was due by 11am today.” A progress line reads “$71 | $300.” Another line reads “Two rooms. One night.” Footer text asks people to share if they cannot give and lists CashApp: $StoryleGaie.
Bright pink graphic repeating the words “URGENT MUTUAL AID” across the background. In the center, bold black text reads “URGENT MUTUAL AID.” A neon green label shows progress “$71 | $300.” Large handwritten neon text says “DUE NOW.”
Black background with bright neon green text reading: “No one should have to earn the right to sleep safely. Housing is a human right.”
$229 standing between us and losing both rooms.
💸💕🏳️⚧️🏳️🌈
It is almost 1pm. Payment was due at 11am. We are still here but not for long.
$71 raised. $229 to go.
CashApp: StoryleGaie
Venmo: Subversiva
#MutualAid #NEISVoid #Disability #HousingCrisis #DirectAid #MutualAidRequest #AltText #RentRelief
#neisvoid anyone know if there are any covid concious/general infectious disease concious groups that still meet up in the capital region in NY?
Screenshot of North Dakota 3-14-26 weather radar, showing a large band of snow over Dickinson, Hettinger, Bismarck, Washburn, Mott, Linton, Jamestown, Ellendale, and a couple other small towns.
Ah, yes, -this- is why I woke up in *so* much pain. My head is killing me and the rest of my body is screaming. I'm too young to be a human barometer. 😭😭😭 #chronicpain #spoonie #neisvoid #disability
Bright neon green mutual aid poster with pink and black text reading: “30 Minutes Mutual Aid Request.” It states a goal of $300 by 11 AM today with $0 raised so far. The message explains that two hotel rooms are needed for one night for a household that has already endured significant hardship. It also says the person is still sick and does not have their antibiotics, and they have a fair hearing in two weeks they need to be well and housed enough to attend. The bottom asks people to give or share immediately and lists CashApp: $StoryleGaie.
Black-and-white photograph of wildflowers against a dark background with bold white text that reads: “Community is how ordinary people do extraordinary things together.” A small cluster of bright green dots appears in the upper right corner as a design element.
⚠️ URGENT: $300 NEEDED IN 30 MINUTES ⚠️
Disabled multigenerational family of 6 trying to stay housed.
We need $300 to keep two rooms for one night.
Venmo: Subversiva
#MutualAid #NEISVoid #DisabilityCommunity #HousingSupport #EmergencyAid #DirectSupport #MutualAidBlueSky #AltText #DisabledFamily
I finally received a donation. I'm immensely grateful for the progress. I just need to make it through this period so I can make it through the legal fight. if it is successful, things will hopefully change for me.
ko-fi.com/moriende
paypal.me/belzomalsh
CA/ven: kookysnell
#neisvoid #signalboost
#NEISVoid let's show some solidarity
"You’ve tried harder than most people will ever understand. You’ve set the alarm, laid out the supplements, mapped the schedule, color-coded the planner. You’ve done everything right..then yr #body did something that made all of it irrelevant.": buff.ly/kPZy2hr
by @thethrivingspoonie.com
#NEisVoid
Dark humor: Advantages to being chronically ill
I'll start: It's hard to press accusations of fakery against you when one of the doctors treating you is world famous & literally the best in his field. He only sees people who would die in the care of lesser practitioners.
#NEISVoid
We're restarting #Bloodhounds season one, in anticipation of the season 2 premier on April 3rd!
Hop in for a late night binge of an excellent series @ mzelo.com/app/rooms/ch...
#neisvoid #mecfs #action #Thriller #spoonie #MutualAidMarathon #insomnia #ChronicPain
One of the #ChronicLoaf stream's favorite animes, #MichikoandHatchin, just started from S1E1!
Hop in and watch with us @ mzelo.com/app/rooms/ch...
#animation #cannabisculture #spoonie #neisvoid #anime #mecfs #chronicpain #longcovid
#neisvoid I haven't been on in awhile and could use advice. I hinted at a family member about something I was recommended to advocate to get checked for. This family member doesn't believe me and found a way to invalidate me even though I know the truth. It hurts and I don't know what to do.
Derm just messaged me back. He said according to the photo I sent, my incision site looks good. He can't understand why I could be going through this much pain and complications.
Story of my life dude! Story of my life.
#NEISvoid
#spoonie
The #NEISvoid
Hey Fam! It's Friday! 💚🎉💃🏽
We have to have fun! Before we're ya know... Dead!
So bring ur ass to the #ChronicLoaf stream sometime today to relax, laugh, dance or whatever! We'd love to see you!😍
mzelo.com/app/rooms/ch...
#NEISvoid #DisCo #ForTinu #spoonies #DisabilityCommunity #lgbtqia+
#NEISvoid
Just realized my daytime exhaustion and lethergy is at least sometimes blood pressure related.
Cause when I do a Valsalva maneuver, I become awake and alert again.
I try really hard not to get into the absurd "thin" culture in the US, but I think my weight gain is a real health concern. I am not doing this to help with my Chronic Fatigue, but rather to mitigate the damage from being inactive. #NEISvoid #CFS
Do people with Chronic Fatigue and other Chronic Illness have tips for how to lose weight when you have Chronic Fatigue or a Chronic Illness? It is difficult to cook, and I can't order those fancy meal plans. #NeisVoid #CFS
S1E1 of #TheNeighborhood is starting now in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#comedy #sitcom #wakenbake #DisCo #ForTinu #spoonie #neisvoid #ChronicPain #cannabisculture
I'm no closer to my goal. it's definitely demoralizing to put yourself out there and not get anywhere, but ya pick yourself back up and keep asking. there's no other choice.
any support is much appreciated.
ko-fi.com/moriende
paypal.me/belzomalsh
CA/ven: kookysnell
#NEISvoid #helpsky #signalboost
We're watching #SoloLeveling tonight in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#AnimatedNights #anime #neisvoid #animation #spoonie #ForTInu #DisCo #insomnia #ChronicPain #blerd
Joy in a downswing comes from small acts of self-compassion, letting yourself know your inner child is heard and loved, and that you are your own safe place. It's not about some mega-heroic act, it's a lot of small intentional acts done over time. 💛
#cptsd
#neisvoid
#bipolarsky
#recoveryposse
4 hours after my cleaning day, I am in so much pain. My arms and legs are screaming. 😭 A shower as hot as I could crank it brought the pain down from a 7.5 to maybe a 6. The therapy pool tomorrow should help. Going to try to sleep. Magical dreams, my lovelies. 💜 #spoonie #neisvoid #disability
#NEISvoid
How do the "rinse-free" bath sponges that lather when wet compare to body wipes for bathing? Do they truly not need rinsing? How "sticky" feeling do they make your skin afterward?
What about allergy/MCAS reactions; are there brands less likely to leave residue or cause reactions? #MEcfs
"In the Blink of an Eye" just started in the #ChronicLoaf stream
Join us for a movie @ mzelo.com/app/rooms/ch...
#WomensHistoryMonth #neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies
Sometimes Spouse has to take meetings at wild hours. Last night he had a 3am, & since I’m rarely asleep before 2am I opted to stay up & wake him. Turns out staying up is a totally different energy equation than being up.
Today I learned, I guess :/
#neisvoid
I feel like an idiot or something. No one is giving me any money anymore. Makes me feel like I'm not saying things eloquently enough or something. I don't know what to do.
Wish I could word things better maybe then I'd actually get some help. 😪😔 #NEISVoid #MutualAid #Disability
