Latest posts tagged with #mnd on Bluesky
Midlands trust appoints its first lead research nurse for MND
University Hospitals of North Midlands NHS Trust (UHNM) has appointed its first lead research nurse dedicated to motor neurone disease (MND). #nursing #neurology #MND #nurses #research #midlands #nhs
www.nursingtimes.net/research-and...
Terracotta background with the event title "Understanding and discussing genetic test options." and the dates, 15 April 2026 and 1 July 2026. On the bottom, there are the MND Association logo and the icon of a laptop.
Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left, the text says: "Aims: understand the basics of MND genetics; introduce professionals to the genetic testing pathway and their role in it; consider how and when to discuss genetic testing and counselling with people in their care; explore case studies on the delivery of genetic test results.".
Genetics plays a role in both familial and sporadic #MND
Referrals to genetic counselling could help people access new therapies & identify potential risks for relatives
Join our workshop to learn more about the genetic testing pathway & your role in it๐ mndassociation.org/education-events
#row4mnd #motorneuronediseaseassociation #motorneuronedisease #motorneuronediseaseawareness #mnd #mndawareness
Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left, there is he title of the event, "ACT principles for health and social care professionals" and the dates: 10 March 2026, 19 May 2026 and 15 July 2026
Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left, the text says: "Aims: understand psychological challenges in MND and how to apply ACT; practice how to apply ACT to these challenges; consider how to integrate ACT into your practice; recognise the common barriers to using ACT.
Registrations for our ACT competency session close today at 5pm!
This online workshop is open to all HSCPs. You'll gain skills in integrating ACT principles in your practice e.g. to help people with #MND consider therapies & make decisions
Book now๐ mndassociation.org/education-events
Vesalic CEO on targeting neurodegenerative disease โupstreamโ after discovering a metabolic dysfunction in the blood of ALS patients.
vist.ly/4tvrd
#longevity #biotech #ALS #MND #neurodegenerationย
One day we will find something that works for this awful horrible disease. Thanks to all the scientists, researchers, doctors, nurses and patients in these trials. #mnd www.mndassociation.org/media/latest...
This terrible treatment via algorithm is here for aged care and coming soon for NDIS . The algorithm determines your level of disability and the care you will get. You cannot lobby for more funding if itโs wrong.
#MND #AgedCare #NDIS
www.abc.net.au/news/2026-02...
Terracotta background with a white icon of a laptop n on the bottom right and the MND association logo on the bottom left. On the top left there is the name of the course, "Multidisciplinary working - making it effective for MND." and the dates of the course, 2 March - 17 April and 14 September - 30 October.
Terracotta background with a yellow fingerprint pattern on the bottom right and the MND association logo on the bottom left. On the top left there is a quote from a course participant saying: "I now feel more confident approaching multidisciplinary team meetings."
Terracotta background with a yellow fingerprint pattern on the bottom right and the MND association logo on the bottom left. On the top left there is a quote from a course participant saying: "I found the course very interesting and will certainly apply the knowledge I have gained."
Don't miss out! Register for our online course on multidisciplinary team working applied to #MND care & learn how you can improve MDT working in your area
Self-paced & free, it includes discussion forums & supporting resources for ongoing development
mndassociation.org/online-courses
Such sad news.My son remembers Pete really powerfully from when he was at #Exeter football holidays clubs. Pete & his family did so much to raise awareness of #MotorNeuroneDisease For people affected check out @denpruexeter.bsky.social using research to influence neurodegeneration policy inc. #MND
You also stood on the side of the road near Kendal to cheer on my โlittleโ (6โ4โ) brother in law on his JoGLE cycle ride for #MND he was bowled over by that. Youโre a star.
Today is #HelplineAwarenessDay!
Our MND Connect Helpline is available Mon-Fri 9am-4pm to anyone affected by #MND, including HSCPs
Our advisors can provide guidance and support on MND & our services, including signposting you to information resources
โ๏ธ0808 802 6262
โ๏ธmndconnect@mndassociation.org
#ALS #MND
Genetic predisposition,
liver inflammation (cT1 on MRI scan)
from bioaccumulation of persistent pollutants,
Kupffer cells in men produce more IL-6,
insufficient serum gut microbiota-derived butyrate,
microbiome dysbiosis from high intensity sport,
such as water polo and football.
.
Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left there are the title of the event, "ACT principles for health and social care professionals. " and the dates: 10 March 2026, 19 May 2026 and 15 July 2026.
Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left, the text says: "Aims: understand psychological challenges in MND and how to apply ACT; practice how to apply ACT to these challenges; consider how to integrate ACT into your practice; recognise the common barriers to using ACT.
Bookings for our competency session on acceptance and commitment therapy close soon!
Join us to learn how to use ACT principles to help people with #MND in making care decisions and considering therapies
๐๏ธ10 March
๐Online
๐ mndassociation.org/education-events
Delighted to be represented earlier in the week by our #MND #IMNDA #Nurse Charlene Crawford who will be taking part in this course.
Our incredible nurses play a vital role in ensuring timely healthcare for IMNDA patients within the community.
#EricDane passed away tragically from #ALS which many of us know as Motor Neuron Disease ... #MND .. we need to find a cure
A huge THANK YOU to Gemma Catton and everyone who supported her 'Sock It To MND' challenge! ๐งฆ She wore 753 different pairs of socks and raised over ยฃ2,300 for MND Scotland, totaling over ยฃ26,000 in ten years! Thank you for your continued support ๐ #MNDScotland #MakeTimeCount #MND
He was such a beautiful man. #MND was so devastating for him & his loved ones ๐
#spรฉirghorm
"..Dane went public with the news he had been diagnosed with #MND using his platform to advocate for greater awareness of the disease. MND affects the brain & nerves, eventually causing the muscles to weaken & waste. There is no known cure, though symptoms can be managed."
www.imnda.ie
#spรฉirghorm
Devastating๐ญ
โ...Eric became a passionate advocate for awareness&research, determined to make a difference for others facing the same fight...adored his fans &is forever grateful for the outpouring of love & support heโs received.โ
www.thejournal.ie/greys-anatom...
#spรฉirghorm #MND #Neurological
#neurology #MND #health #ALS
Corrected T1 (cT1)
is an MRI-based metric used to quantify
liver inflammation and fibrosis.
15 out of 33,959 individuals
with complete liver imaging data
developed ALS.
Elevated cT1 was identified as a risk factor for ALS.
.
onlinelibrary.wiley.com/doi/abs/10.1...
#MND
High intensity sport,
such as water polo or football,
increases the risk of ALS in men,
by disrupting the gut microbiome.
Genetic predisposition
and bioaccumulation of pollutants in the liver
further increase the risk.
Liver concentrations of pollutant mixtures
need to be documented.
.
Oh dear me, what have I done?
I'll be abseiling down a very big building to raise money for MND (Motor Neuron Disease) @mndscotland.bsky.social
Support me so I can't back out!
mnd-s.enthuse.com/pf/tracy-gri...
#Leithlife #charity #MND
Disclaimer: Based on real events, presented through satire. No allegation of illegality is made.
-
satiricalplanet.substack.com/p/flashback-...
#RupertLowe #GreatYarmouth #CharityRow #MND #BorderFarce #SocialMediaPanic #BritishSatire #WillyAndBill #RowingForACause #Dinghies #UKPolitics
Little Bro keeps on running, can you help him raise some moolah for #MND #RobBurowLeedsMarathon? #RunningPunks
www.justgiving.com/page/jeremy-...
Paper from #ListerFellow Johnathan Cooper-Knock and team at @sheffielduni.bsky.social is in the headlines ๐๏ธ
AI uses measurements from time of diagnosis to estimate how quickly #MND will progress in individuals to optimise time for critical intervention.
๐ www.sciencedirect.com/science/arti...
Biotech targets โtoxic exosomeโ identified in ALS patients, suggesting disease biology may not be confined to the brain and CNS.
vist.ly/4rrki
#longevity #biotech #ALS #MND #exosomes
Last month Dr Liam Knox kicked off our 2026 webinars! 27 HSCPs joined to explore how digital health technology can help #MND care delivery, improve patient outcomes & enhance system efficiency
Watch the recording: mndassociation.org/webinars
See future events: mndassociation.org/education-events
