Die DGN ist die Stimme der Neurologie. Wir fördern Wissenschaft, Forschung, Lehre sowie Fort- und Weiterbildung in der Neurologie. Wir prüfen die wissenschaftliche Debatte und beteiligen uns an der gesundheitspolitischen Diskussion.
Austausch für Ärzt*innen, Mediziner*innen, Apotheker*innen und Psychotherapeut*innen, die von ME/CFS, LongCovid, PostVac und ähnlichen Erkrankungen betroffen sind.
Implementation scientist - Uni of Zurich
Co-founder @implementeic.bsky.social
Co-editor in Chief @impresearch.bsky.social #ImpSci #healthcare #qualitativeresearch #knowledgetranslation #EBP
Willkommen auf dem offiziellen Account der Berner Fachhochschule.
https://www.bfh.ch/de/
Lover • Learner • Trans*crip
X Apostate 🕊️ Meta Defektor
Swiss🇨🇭45 HPi ENBY CPTSD Loner
Auto-Immunity Science Nature Music Arts Touch MUSIC Travel inside/outside Therapy Curiosity Quixotry Custody Aнна Марина Paul Emily ♥️
MyNameIsMarie👋🙂
NO DM 🏴☠️
🦘🦕🐛
The Yonker Lab focuses on mucosal immunity and disease responses related to airway infections in children.
artist-researcher https://zoyander.cc
creator https://intrapology.com
posting via micro.blog, details here: https://zoyander.cc/follow
Associate Professor of Critical Game Design @ WLU | Prosocial Game Designer | I research how to mobilize knowledge through play https://www.helloworlds.ca/projects
writer & journalist 🤠
ecology, culture, climate, poetry, belonging 🍃
Assistant prof in community health @UniBern. Health promotion, physical activity, participatory research. Mum, pastor‘s wife, lucky life. Aare swimmer. train user. Montreal in my ❤️. Capability, intersectionality, health equity.
www.communityhealth.ch
#Anonymous: Actions Not Nouns. All that exists is interaction. #BindingChaos #3E https://spookyconnections.com/
Berkeley professor, former Secretary of Labor. Co-founder of @inequalitymedia.bsky.social and @imcivicaction.bsky.social.
Substack: http://robertreich.substack.com
Buy my new book: https://sites.prh.com/reich
Visit my website: https://rbreich.com/
We inspire and support people to engage in different forms of participatory research. We are a center at the Faculty of Arts and Social Sciences at the University of Zurich and are supported by the Mercator Foundation Switzerland.
www.citizenscience.ch
Investigative Reporter at U.S.Right To Know;
formerly NBC News, Axios, Seattle Times
Signal: lewiskamb.206
I ❤ the #PNW 🏂 + public records #FOIA 📑
Bundesamt für Gesundheit BAG
Office fédéral de la santé publique OFSP
Ufficio federale della sanità pubblica UFSP
https://www.bag.admin.ch/
Auteure indépendante, responsable Suisse romande Long Covid Suisse, patiente partenaire formatrice
Former health professional with an increasingly
ridiculous mishmash of learned knowledge and lived experience.
Living on Arrernte country.
Please be kind 💚
Professor of bioethics at the University of Geneva medical school, physician by background, vice-president of the Swiss national bioethics commission, unofficial adoptive-mom of four
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected
sites.uab.edu/cgds/ she/her
Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
She/her
* Disabled by Covid; #pwLC, #MCAS since 2022
* Once (and future?) content strategist/manager, editor, competitive rower: linkedin.com/in/jennifergingras
* Still a writer: movingsideways.substack.com
* Oaklandish natiVermonter on Wabanaki land
Interested in science and covid 🧪
psych. FH and art therapist 🇨🇭
Thanks to all of you, who share your knowledge here, I really appreciate it!
Sozialdemokratische Partei der Schweiz
spschweiz.ch
Strategic advisory "Approche Nordmann" www.approche.ch
Books on Climate and Energy www.rogernordmann.ch
Former Swiss MP (2004-2025, head of SD group 2015-2023)
ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna | Posts/Skeets = personal opinion
www.verhac.at
de/en
The CREDIBLE destination for Long COVID | Dr. Funmi Okunola MD At: longcovidtheanswers.com
#longcovid Symptom Info & Evidence-Based Relief
Ask Our Experts – FREE Access to Top Global LC Experts
Accredited Educational Podcasts & CPD/CME Credits
Leading digital news and information platform covering voting rights, elections, and the courts — from an unapologetically pro-democracy standpoint.
Newsletters: https://bit.ly/4iz4QBg
Reporting: democracydocket.com
Founded: @marcelias.bsky.social
#BEready, #Bern #Preparedness
Offizieller Kanal. News rund um die BEready Kohorte. Motto: Bern, get ready. Impressum: http://www.BEready.unibe.ch
The latest science news, groundbreaking discoveries, and fascinating features from our expert journalists. Your journey of discovery begins at Live Science.
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧
Mine of occasionally useful information.
NHS and healthcare 💙
#Equality #Justbe #Inclusion
#LGBTQ+ 🌈 ally
#pwME
#MECFS
#Activetravel 🚲
#Sustainability
#Gardening
#VisibleApp
💙 M.E.Carer of son aged 32, ME for 13yrs 💙.
RaisingAwareness for
#PwME.
#Carers
#LCovid
#greatestMEdicalscandal
X Edna, M.E.Advocate 🇨🇮
https://www.irishexaminer.com/news/arid-40218716.html
http://www.idonate.ie/aMothersWalkforMECFSresearch
Enthusiastic. Makes lonely music.
Music: https://sweetfreeze.bandcamp.com/
Radio Show: https://SongsThatShapedMe.com/
she/her 😷 mpls > pdx
Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid.
#FBPE #FBLC #PWLC
Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
🇬🇧 Love animals and travel. Take photos of everything I see just for fun 📸. I also love cake 🍰and wine🍷 o and sleeping 😴
New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
indie journalist
Signal: Lygia.65
(editor, producer, en ES & EN)
cover: Latine, LGBTQ+, health stories +more #DisabilityJustice.
disabled. queer. #LongCovid + #ME.
lygianavarro.com
contributing writer @discojourno.bsky.social & @thesicktimes.bsky.social
Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Long Covid, MECFS, ADHD, etc.
Patient-led research is my jam.
A bit obsessed with GIP.
Empowering persons w Myalgic Encephalomyelitis. 35y w/ME
Colab at ONG PEM Spain, ME-International.org, EMEA
ICPrimer our best tool.
#UniteToFight2024
Empoderando a #pcME. El Manual-CI nuestra mejor herramienta.
Informando ME, MCAS, ANPE, LC
Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume.
Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍
Facilitator PACE program 👣🫂🌈
Retired RN & Qualified Social Worker. #LongCovid since March 2020 Advocate
FBLC
Adult son, 3 grandchildren and 4 cats
A bit preoccupied after serious house fire on 15/10/24, living in temporary accommodation while they rebuild
https://gofund.me/99cc079b
Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.
Boonwurrung country, Australia
Lame puns and #longcovid. Maybe some science here and there.
Neurologisch in wechselhaftem Zustand 👉 Hier werden
° Wechsstaben verbuchselt,
° Worte flasch geschrieben
° und dings... 🤯
#MECFS #Postcovid - Erkrankte.
My music: https://youtube.com/@chilumination?si=GRdauR3MZM_ul9JY
🇬🇧: Severe ME & long covid
🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
🏳️🌈
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Transparent to the transcendent.
Wrote a book on Long Covid. - https://jondouglas.dev/longhaul/
Extraordinary claims require extraordinary evidence. - Sagan
Housebound by ME (myalgic encephalomyelitis), married, has a dog, agender, AuDHD, lives in the forest.
Gender neutral pronouns preferred.
Trying to be kind.
Educator. Athlete. Lifelong learner. Auntie supreme. #LongCovid advocate. Bluesky newbie. Currently in an LTR with Los Angeles… but it’s complicated.
Running 100 miles ain’t nothing compared to living with Long Covid.
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
Long covid and mecfs warrior
Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
Shy, disabled, queer, autistic.
Requires alt text to follow you.
Writer of contemporary m/m/m and lesbian historical novels.
Book related stuff found mostly at @penthewriter.bsky.social
Cornwall dweller.
May actually be the cat in the picture
Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Pro Wissenschaft. Contra Schwurbel.
🔗 www.mecfs-assistenzhund.de 🐕🦺
#TeamWissenschaft #TeamVorsicht #CovidIsntOver #DieMaskeBleibtAuf #MECFS #NichtMeinKanzler
Reiselustig 🌎 und entdeckungshungrig 🔍. (Normalerweise… 🙄)
Storyteller. Advocate. Stand By ME/CFS!
#StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs since 2009
X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community.
Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
A neurologist, M.D., mother of a 17-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
#MECFS seit 25 Jahren 🦽 statt 🏍,#Longcovid, #Postcovid MECFS ist somatisch,Humanoides Oxymoron 🖤->einmal Grufti immer Grufti(fast nur noch im 🖤)#noAFD#FQToxicity #ArmutAbschaffen,Armutsbetroffen, suchte den Stein der Weisen+fand den Fels der Narren
Former professor and physical therapist/ athletic trainer disabled by Long COVID since 2021. #LongCOVID #POTS #MECFS
MomOf2 mit #LongCovid since 08.22 #noafd #noCovid #UniteToFight2024
Born @ 335.42 ppm CO2 #LongCovid since april 2020.
Co-Founder Unitetofight2024, Pharmacist, Long Hauler since 2020
M.A. Early Childhood Education // #MECFS #SFN #Hashimoto #ChronicPain #fundraisingbc007MEcfs #MEawarenessHour #Kinderschutz // MightyMermaid87 @ web.de (she/her)
Fluorchinolon geschädigt #FQAD #FQtoxicity
Vorsicht bei Antibiotika deren Wirkstoffe auf -floxacin enden! Es gibt fast immer Alternativen.
Gegen Hass und Hetze, mag Natur, Fotografie und tolerante Menschen. #NieWiederIstJetzt
Das ME/CFS-Netzwerk Baden-Württemberg gründete sich im April 2022 und engagiert sich seitdem für die Wahrnehmung von ME/CFS
https://mecfs-freiburg.de/
http://wissen-zu-post-covid.org, jetzt mit Inhaltsverzeichnis für eine bessere Übersicht in jeder Kategorie #Forschung #wissenistmacht #postcovid
Studiert Theatertechnik, mag Medizin. Berlin.
Offizieller Account
ME/CFS Awareness, Aufklärung und ein bisschen mehr
https://lightupthenight4me.wixsite.com/website
Neo-artist & ex researcher with severe #MECFS, very severe #MCAS, #CSFleak & more. Co-founder of blackferkstudio.com (art & science for ME/CFS). 💘 for piglets. PhD in social sciences. 🇦🇹. Insta & Masto: judyintheskynet
https://linktr.ee/Judyintheskynet
20+ || life paused due to #MECFS since 2013 || likes cats, video games and good bad movies || member of saME
🦇Undead undead undead 🦇
Ex-burlesquer
Queen of Wortwiederholungen
I got #MECFS & a rock n’ roll heart, ADHD too
🖤🩶🤍💜
#TeamScience | Gesundheitsschutz für Schulen und Kindergärten | Aufklärung über Atemaerosole, COVID-19 und Risiken von Langzeit- und Spätfolgen | #VaccinesPlus: Reduktion der Gesundheitsrisiken durch rechtzeitige Impfung und Verbesserung der Luftqualität.
#MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS etc.
Durch Reha in die schwere Krankheit gefoltert und nicht mehr herausgeholt worden.
chronisch- progredienter Verlauf. severe-very severe
Dog-, Book-, Sea-, Camping-, Music-, Yoga-, Nature, Espresso-Lover. #Booktober #Yoga #Poetry
Active life stopped by side effects of Fluoroquinolones. #floxed, #FQAD, #ComplexChronicIllnesses
#MECFS seit 2017 - Bell 20-30
7 x 💉 - 2 x 🦠 - Teeniemutter - 🐈🐈🐈- Schwäbin in NS - HSP -
20 Jahre #MECFS 😷 -
#IBA #TeamVorsicht #TeamWissenschaft
AMAZON #wishlist: https://amzn.to/3XLaCnU
https://paypal.me/AstridWerner
Aus gesundheitlichen Gründen vom Leben suspendiert: Long-Covid!
fight for our right since 2021
Stay with ME/CFS, Post-Vac!
Specialist in health and social
#AfDnee
SPD AG Selbst Aktiv Hessen Süd #WiesbadenerErklärung
An #MECFS erkrankte EX- Feuerwehrfrau 👩🚒 & Mutter von 3 großen Kindern, 🫶🏽 Tiere
#wirsindmehr #wirsindbunt #fckNZS
#TeamWissenschaft💉💉💉💉
27 I ME/CFS seit 2021 I WING Universität Augsburg I DE II EN
https://www.mecfs.de/was-ist-me-cfs/
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein.
Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
Meine Forderung: Aufklärung, Anerkennung, Forschung und Unterstützung für Betroffene von #MECFS #LongCovid und des viel selteneren #PAVCS
https://gofund.me/80e5c7f7 für Aufklärung über #MECFS vor Ort
#MECFS #LongCovidKids
Wir fordern mobile Ärzte/Telemedizin mit Wissen von M-Schwabing/ Charite
Träumen von einer Grundversorgung für schwerstkranke Menschen
ich bin krank. jeden tag. das ist keine metapher.
#jederTagMECFS
