Connect through your story: https://bit.ly/4oww4dV
#ALSNewsToday #Bionews #ALSCommunity #ALSAwareness #LivingWithALS #ALSCaregivers #EndALS #ALSResearch #ALSSupport #RareDiseaseCommunity
0
0
0
0
#EndALS
Latest posts tagged with #EndALS on Bluesky
Trending
Posts tagged #EndALS
0
0
0
0
0
0
0
0
150
4
0
1
0
0
0
0
Across the world, homes, buildings, and communities will glow in solidarity for people living with ALS and other rare diseases.
#LightUpForRare #RareDiseaseDay #GlobalChainOfLights #ALSCommunity #ALSAwareness #EndALS #CaregiverSupport #Bionews #ALSNewsToday
0
0
0
0
So horrible. We lost one of our closest friends/neighbors to that terrible disease 4 years ago. He was in his 50s and gone in 6 months. I cooked for them when he got sick and saw what this disease does and how fast it takes one. #endALS
1
0
0
0
Today we mourn Eric Dane, who bravely battled ALS (Lou Gehrig’s Disease). Sending love to his wife Rebecca Gayheart, his daughters, and all who loved him. ALS has taken too many. If you can, please donate $1 or more to ALS.org. Let’s honor his legacy. 💔 #EricDane #ALS #EndALS #Remembering
6
2
1
0
I’m heartbroken to learn of Eric Dane’s passing from ALS. Please give to help us find a cure to #endALS
46
16
3
0
ALS research wins $313M in US funding; I AM ALS campaign nearly one-third toward $1B goal; advocates urge ACT reauthorization.
Major funding milestone: https://bit.ly/4cAQU8K
A new $313 million investment from the U.S. government is accelerating ALS research and expanding access to experimental treatments.
#ALSNewsToday #Bionews #ALS #EndALS #ALSAwareness #ALSCare #ClinicalResearch #RareDisease #Advocacy #HealthPolicy
1
1
0
0
Why this ALS risk? https://bit.ly/4agCvNG
If you have a background in high performance sports, military service, or first response, how do you process research like this?
#ALS #EndALS #ALSResearch #ClinicalResearch #RareDisease #Neurology #Advocacy #ALSAwareness #ALSNewsToday #Bionews
1
0
0
0
Champion Insights is open. The enrollment portal is live at championinsights.org.
At-home ALS research for high-risk/high-performance populations (endurance athletes, military, and first responders).
If you know someone who is eligible, please share.
#ALS #endALS
0
0
0
0
ALS researchers and scientists are working to better understand the causes of the disease. When more people living with ALS sign up for the National ALS Registry, the more accurate the picture will be. Let’s do more and end ALS. cdc.gov/als/ALSJoinALSRegistry.html
#ALS #ALSRegistry #endALS
0
0
0
0
105
5
1
0
Scott Jones is a father, husband, outdoorsman, and fighter. After his ALS diagnosis, he found hope and support through ALS United Rocky Mountain.
🧡 Read more of his story here: alsrockymountain.org/living-with-als-scott-jo...
#UnitedForACure #EndALS #ALSCommunity #ALSRockyMountain
0
0
0
0
What started as a family love of running became a mission to #EndALS.
Connor McCullum ran the 2025 NYC Marathon for his dad after an ALS diagnosis—raising nearly $17K for research along the way.
Read the full story: als.net/news/connor-...
0
0
0
0
0
0
0
0
1
0
0
0
0
0
0
0
0
0
0
0
Every year in May
@iamals.bsky.social
plants blue flags
to recognize & remember
those with ALS here & beyond
#WeekYforYearPast
#AlphabetChallenge
The real Alphabet Challenge is:
#EndALS
(amyotrophic lateral sclerosis)
#EndMND
(motor neuron disease)
10
0
0
0
Honor a loved one’s memory the week of #GivingTuesday with a contribution in their name and ensure #TheirLegacy is remembered
Give to ALS United here:
legcy.co/3Y5wHiS
#UNselfie #Donate #GiveBack #4Charity #ALSUnited #EndALS
0
0
0
0
0
0
0
0
0
0
0
0
Doc needs to verify that you got worse.
#EndALS
0
0
0
0
🌴 A doctor day for Mark. We left with smiles, came home with a few aches, but got treated to mountains dusted in snow on the ride. Even the hard days give us moments worth holding onto. 🌴
🌴 #alsnetwork #ALSawareness #EndALS #ALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks 🌴
0
0
0
0
🎄🌴 “If you build it, they will come…”
Turns out all we had to build was the Christmas tree in November — and "jingle bells", we were blessed with Eric, Bill, and Spencer the fluffy one - they came ! 🎄🌴
#alsnetwork #ALSawareness #EndALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks
0
0
0
0
ALS has taught us to celebrate now, not later. These moments—decorating, laughing, being together—mean everything while Mark can fully share them. Choosing joy early this year. ✨💙🌲
#alsnetwork #ALSawareness #EndALS #ALS #alswarrior #livingwithALS #MyALSJourney #alsfighter #ALSsucks
0
0
0
0
0
0
0
0