Latest posts tagged with #ALSNetwork on Bluesky
🌴 A doctor day for Mark. We left with smiles, came home with a few aches, but got treated to mountains dusted in snow on the ride. Even the hard days give us moments worth holding onto. 🌴
🌴 #alsnetwork #ALSawareness #EndALS #ALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks 🌴
🎄🌴 “If you build it, they will come…”
Turns out all we had to build was the Christmas tree in November — and "jingle bells", we were blessed with Eric, Bill, and Spencer the fluffy one - they came ! 🎄🌴
#alsnetwork #ALSawareness #EndALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks
ALS has taught us to celebrate now, not later. These moments—decorating, laughing, being together—mean everything while Mark can fully share them. Choosing joy early this year. ✨💙🌲
#alsnetwork #ALSawareness #EndALS #ALS #alswarrior #livingwithALS #MyALSJourney #alsfighter #ALSsucks
💙 Friends forged through the fire of ALS. Some are cALS, some have lost their pALS — all share strength, compassion, and understanding. 💙 Thank you for visiting us in Palm Springs — your friendship means more than words can say. 💙
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
🌴 Mark had a mobile nail specialist visit today (huge thanks to David & Steve + Tom 💙).
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
Movie night with Wilson 🎬🍿 Popcorn, good laughs, and stand-up comedy to close it out. Thanks, Wilson — always great having you around (and hey, it’s nice to finally not be the tallest in the room 😄).
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
Italian Night 🇮🇹🍝 got pushed back while Mark rested, but Tuesday’s visit made up for it. David & Steve brought spaghetti & meatballs with fresh parmesan — so good! Grateful for the stories, laughter & company. ❤️
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
David + Steve = fun filled evening 🌟
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
🌈 After 6 hours of ALS Clinic Day in Loma Linda, tough talks & vital care, the drive home gave us a rainbow stretching into Palm Springs. Proof that even in the hardest battles, hope still shows up. 💙
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
Im raising money for #AlsNetwork by participating in the 2025 Bay Area Walk & Roll in honor of My Step Dad who has ALS. If you can, please click below to donate! I'd really appreciate it!
secure.alsnetwork.org/site/TR/Walk...
Y&R / Kate Linder from "The Young and the Restless" has teamed up with ALS Network to host an afternoon of art to benefit ALS research and care in honor of her late mother, Molly Wolveck. #YoungandRestless #YR #ALS #ALSNetwork #ALSResearch
www.soapoperanetwork.com/2025/07/kate...
Y&R / Kate Linder from "The Young and the Restless" has teamed up with ALS Network to host an afternoon of art to benefit ALS research and care in honor of her late mother, Molly Wolveck. #YoungandRestless #YR #ALS #ALSNetwork #ALSResearch
www.soapoperanetwork.com/2025/07/kate...
#ALSawarenessMonth Day 10
Veterans are more likely to get ALS and it is not known why.
There is still so much research that needs to be done to find a cure for this devastating disease.
#cureALS #ALSawareness #alsnetwork
