Latest posts tagged with #EDs on Bluesky
Lol 🤣 It changes every month but has to be worked out and tracked cause I've got #EDS so somewhat sensitive for example ⬇️ Also happens with most young people with hypermobility/Neurodivergency so worth knowing really.
www.ehlers-danlos.com/wp-content/u...
Medical PTSD is serious and the topic deserves more attention than it gets.
#BlogPost #MedicalPTSD #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth 💕 #Wellness
Spring can be extra challenging for masties. Chinese medicine can help.
buff.ly/cxiajEs
#NewBlogPost #Spring #MCAS #EDS #hEDS #POTS #HolisticHealth #SelfCare
💕 #Wellness
Lean In! #chronicpain #anxiety #pain #panicattack #spoonie #fibromyalgia #chronicfatigue #painrelief #chronicpainwarrior #spoonielife #mindbody #mentalhealth #ibs #migraines #healing #neuroplastic #painmanagement #recovery #disability #crps #health #depression #backpain #dysautonomia #eds #pots
Intuitive or mindful...which one resonates more for you?
#BlogPost #GutHealth #Nutrition #Diet #IntuitiveEating #Mindful #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare 💕 #Wellness
Some strategies for dealing with gastroparesis.
#GutHealth #Gastroparesis #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness
Woke up with hives.🙃 Was it something I ate, touched or thought? 🤔🙄 I'll never know, and neither would the doctor. #MCAS #EDS
Seasonal living has extra resonance for those of us with MCAS.
#NewBlogPost #Spring #MCAS #EDS #hEDS #POTS #HolisticHealth #SelfCare
💕 #Wellness
Presne tento! Posledni mesice jsem byla velice zoufala, protoze se na to dlouhodobe vrsilo hodne moc subluxaci a blokad a i kdyz jsem citila, kde presne je to spatne usazene a citila to ohavne tahani za nerv, nedokazala jsem to usadit spravne - zjevne kvuli posunu a rotaci. #eds
I think there are a lot of men with #EDS #EhlersDanlos who’ve been told or convinced themselves they have “beer bellies” or pot bellies because that’s how older men get
But they actually have untreated mast cell disorders, gastric and pelvic veinous compression syndromes and/or dysautonomias
MCAS and spring go together like peas & carrots...if their goal was to choose violence.
Chinese medicine can change that, though.
buff.ly/cxiajEs
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
Podarilo se mi usadit neco zasadniho v bederni pateri, co bylo pres dva roky spatne (spis dele, bojim se hledat, protoze to bylo zdrojem obrovskych bolesti a blokad). Strasne moc doufam, ze to vydrzi prvni noc, to byva zasadni. Drzte mi prosim palce. #eds #delamcomuzu
"“I am unable to distract myself from the #pain & the strategies & #remedies I usually try to lower the pain (i.e. moving around, painkillers, [etc]) are not sufficient to get me back to my ‘pain normal.’” – Hanne M.L.": buff.ly/v2wIF0E
via @TheMightySite.bsky.social
#disability #EDS #ChronicPain
The takeaway lesson from my week at Mayo Clinic is: The last decade has been about fighting symptoms and maintaining work at any cost. The next needs to be about building residual function and being realistic when there are no effective treatments or cures yet. I’m not sure how to feel, really. #EDS
Not the same, but similar. Which resonates more for you?
#BlogPost #HealthCoach #EduCoach #Consultations #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth 💕 #Wellness
"When healthcare providers do not know how mast cell disease looks in people of color, it can lead to a misdiagnosis or a missed diagnosis."
#BIPOC #AfricanAmerican #EDS #hEDS #MCAS #HolisticHealth #SelfCare 💕 #Wellness
We need your support to keep our media team going thank you! Can you help?
www.chronicpainpartners.com/chronic-pain...
#EDS #EDSAwareness #HSD #Zebras #Spoonies #NEISvoid #Support
Spring can be tough for people with MCAS.
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
Representation is important and so is awareness.
#ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness
Chronic illness can make a lot of things more challenging, including friendship.
#Friends #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness
My first blog post one EDS and tui na went live almost ten years ago--time flies! This blog post replies to that initial essay.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa
💕 #Wellness
We remember our late visionary founder John Ferman while continuing to uphold his EDS Awareness legacy…
www.chronicpainpartners.com/in-memory-of...
#EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Zebras #Spoonies #Doctors
On personal #EDS update.
So the liquid vitamins, iron and basically moving to all forms of easier digestible key vits worked!
Feel way way better. This took 6 years spot this btw even though NHS had results over those years didn't spot the drop down. iron levels up from 3, Vit D was 10.
Also on my previous post on #EDS (Go see it) being critical for education to understand at #HE and #Schools. Watch this from the University Hospitals of North Midlands (UHNM) Charity. It touches on many issues in #universities and #schools.
youtu.be/hTifKRFInzI?...
Are you taking extra good care of yourself during the spring season?
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
If there was ever a condition to learn about during the time we all talk about #Inclusion and #SEND reforms for #neurodivergent kids... It's #EDS without a doubt.
#EDS diagnosis can take up to 10 to 15 years average. Many wait decades. It can be devastating for families. Can stream this on apple or on the website at openeyepix.org/complicated#...
Been a while since this documentary on #EDS but Complicated really captured it. I have #EDS many #neurodivergent kids do...I had sezuires in my teenager years, I struggled for a long time before getting real help. Nearly killed me several times then.
youtu.be/bvVO6bqYv6s?...
What I treat.
#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness
