Latest posts tagged with #Eds on Bluesky
"When healthcare providers do not know how mast cell disease looks in people of color, it can lead to a misdiagnosis or a missed diagnosis."
#BIPOC #AfricanAmerican #EDS #hEDS #MCAS #HolisticHealth #SelfCare 💕 #Wellness
We need your support to keep our media team going thank you! Can you help?
www.chronicpainpartners.com/chronic-pain...
#EDS #EDSAwareness #HSD #Zebras #Spoonies #NEISvoid #Support
Spring can be tough for people with MCAS.
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
Representation is important and so is awareness.
#ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness
Chronic illness can make a lot of things more challenging, including friendship.
#Friends #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness
My first blog post one EDS and tui na went live almost ten years ago--time flies! This blog post replies to that initial essay.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa
💕 #Wellness
We remember our late visionary founder John Ferman while continuing to uphold his EDS Awareness legacy…
www.chronicpainpartners.com/in-memory-of...
#EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Zebras #Spoonies #Doctors
On personal #EDS update.
So the liquid vitamins, iron and basically moving to all forms of easier digestible key vits worked!
Feel way way better. This took 6 years spot this btw even though NHS had results over those years didn't spot the drop down. iron levels up from 3, Vit D was 10.
Also on my previous post on #EDS (Go see it) being critical for education to understand at #HE and #Schools. Watch this from the University Hospitals of North Midlands (UHNM) Charity. It touches on many issues in #universities and #schools.
youtu.be/hTifKRFInzI?...
Are you taking extra good care of yourself during the spring season?
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
If there was ever a condition to learn about during the time we all talk about #Inclusion and #SEND reforms for #neurodivergent kids... It's #EDS without a doubt.
#EDS diagnosis can take up to 10 to 15 years average. Many wait decades. It can be devastating for families. Can stream this on apple or on the website at openeyepix.org/complicated#...
Been a while since this documentary on #EDS but Complicated really captured it. I have #EDS many #neurodivergent kids do...I had sezuires in my teenager years, I struggled for a long time before getting real help. Nearly killed me several times then.
youtu.be/bvVO6bqYv6s?...
What I treat.
#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness
I love toast. I hate how toast tears my mouth apart. Thanks #EDS
They're similar but not exactly the same. Which resonates more for you?
#BlogPost #HealthCoach #EduCoach #Consultations #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth 💕 #Wellness
ROAD-TO 2026 The International Consortium on Ehlers-Danlos Syndromes (EDS) & Hypermobility Spectrum Disorders (HSD) Facilitated by The Ehlers-Danlos Society The New Global EDS & HSD Diagnostic Criteria is Coming December 1, 2026 The Ehlers-Danlos Society
Major Update Is Coming to EDS & HSD Diagnosis For the first time since 2017, the diagnostic criteria for all types of EDS and HSD are being updated. The countdown begins to publication on December 1, 2026 A new chapter in understanding, diagnosing, and caring for EDS and HSD.
Why This Update Matters The 2017 International Classification of the Ehlers-Danlos Syndromes changed how the world understands EDS and HSD. It has become one of the most widely cited publications in EDS research. Now, new research and global collaboration are shaping the next evolution.
What Will Be Published The updated work will be released in two phases: December 1, 2026 • Updated classification • Diagnostic criteria • Diagnostic pathways March 2027 • Best-practice care guidance • Assessment and management pathways
so excited this is finally happening this year! and i so appreciate the @ehlersdanlos.bsky.social Ehlers-Danlos Society! #EDS #hEDS #HSD
I had another scene in my head yesterday afternoon, so I got up and wrote it. And it is an amazing scene, funny and poignant in all the right ways.
And now my body is reminding me brutally that I far exceeded its vertical hour capacity yesterday.
#BookSky #spoonie #EDS
Are you taking extra good care of yourself during the spring season?
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
A promotional graphic with a calm lake landscape and text banners at the top and bottom. The main photo shows a person sitting on a rocky shoreline facing a wide, still lake, with tree-lined banks on both sides and early autumn colors (greens with some reds and yellows) under a cloudy sky. Text at the top on a teal background reads: “The Silence After Survival...” A circular logo at the top left reads: “EDS Awareness” and underneath: “Ehlers-Danlos Syndromes” Text at the bottom on a teal background reads: “Guest post by Debbie Hellenbrand” Below that: “www.chronicpainpartners.com"
The Silence After Survival - Guest post by Debbie Hellenbrand on surviving anaphylaxis with caring help for once…
buff.ly/o1idmfK
#EDS #hEDS #HSD #MCAS #masto #zebras #Spoonies #MedX
Gut, ik ben de 'zet je heup terug in zijn groef' truc vergeten en nu zit ie er net naast en zeer te doen. Weet iemand hem nog? Blijf ik er ondertussen een beetje lukraak tegenaan meppen.
#HSD #EDS #Zebra #superflex
Living with MCAS always requires strategy but during the spring? That much more so.
buff.ly/cxiajEs
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
something a little different as i got to draw something for my eds awareness boy
if you didn't know, i have #ehlersdanlos even it is is sometimes too hard to so things we keep pushing!
#zebra #eds #furryart #furryfandom
hey #disabled peeps and especially #EDS / #hypermobile peeps - question about a stretch. The one where you bend over one bent knee and stretch your other leg out behind you? I was once told what it means if your stretched leg burns and doesn't actually feel a stretch. I can't remember. Help?
Got puffy lumps and fat pockets that may even hurt? It could be lipedema.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema
💕 #Wellness
Big case series on craniocervical instability
Surgical screening protocol for craniocervical instability secondary to ehlers-danlos syndrome and other connective tissue disorders: analysis of a 347 patient case series #EDS #MECFS
link.springer.com/article/10.1...
Yes, gastroparesis can be quite serious and--no surprise--it is not necessarily rare amongst the hypermobile community.
#EDS #MCAS #POTS #Gastroparesis #ChronicIllness #GutHealth #HolisticHealth
💕 #Wellness
IT IS SNOWING
WHY THE FUCK IS IT SNOWING
IT WAS 84 DAMN DEGREES YESTERDAY
IT HURTS PRECIOUS
#chronicillness #chronicpain #eds #ehlersdanlos
