#Huntingtons

@hdreach.bsky.social

5 days ago

WILMINGTON: We hope to see you tonight! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled.
www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons

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HD Reach

@hdreach.bsky.social

2 weeks ago

RDU TONIGHT!! Walk-ins are welcome but please register if you can. If there are no signups, the event will be cancelled. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

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HD Reach

@hdreach.bsky.social

3 weeks ago

Meetup Reminders for TOMORROW & NEXT WEEK. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

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@bemis-roach-reed.bsky.social

3 weeks ago

Huntington’s Disease and Qualifying for Disability Benefits The SSA recognizes Huntington’s disease in its Blue Book. . A disability attorney with over 30 years experience explains how. Could you be eligible? Read more.

Life suffering from Huntington’s disease can be so difficult, it’s hard enough without the financial worries.
The GOOD NEWS is you may qualify for disability benefits!
An attorney with over 30 years' experience explains.
#HuntingtonsDisease #Huntingtons
www.brrlaw.com/practice-are...

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Poul Sørensen

@thepou1.bsky.social

3 weeks ago

Huntington’s disease is the best investment in neuroscience today Huntington’s disease (HD) is usually described as rare, tragic, and intractable. Yet, HD offers a strategically unique entry point for neuroscience. W…

Huntington’s disease is the best investment in neuroscience today www.sciencedirect.com/science/arti...
#Huntingtons #Neuroscience #Investment

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HD Reach

@hdreach.bsky.social

1 month ago

Bluesky! We are excited to be here. Say hello the the staff of HD Reach! We would love to share a bit about ourselves with y'all and can't wait to continue to grow with you. #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons

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Donna 'Pirate Kat' Day

@piratekatday.bsky.social

1 month ago

01-17-25 News Nibble Some good news about medical miracles! https://www.youtube.com/@NicksNews-SBS https://www.facebook.com/NicksNews.SBS/ https://www.instagram.com/nicksnews_sbs #goodnews #NicksNewsS... TikTok video by nicksnews_sbs

Three times a week we release tiny bits of good news that help remind us that not everything is trash. I'll try to be more consistent about sharing these with you all. They really do help when everything feels heavy.
www.tiktok.com/@nicksnews_s...
#goodnews #hopecore #medical #vision #huntingtons

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Ian Kremer

@wolverinebear.bsky.social

2 months ago

Huntington’s disease: treatments are finally on the horizon after research breakthroughs Sadly, there is no cure for Huntington’s disease. But a couple new research papers suggests this may be about to change.

Huntington’s disease: treatments are finally on the horizon after research breakthroughs theconversation.com/huntingtons-...

#Huntingtons #dementia #science #neuroscience #neurology

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Jill Davis

@jilldavis.bsky.social

2 months ago

A brilliant red amaryllis brightens a room.

When you need a little colour in your life an amaryllis always comes through. This one is blooming for those with Huntington’s. My niece’s friend has the damn awful neurodegenerative disease. The flowers were being sold as a fundraiser. We desperately need a cure. 😞 #Huntingtons

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LuxJude352

@luxjude352.bsky.social

2 months ago

Huntington's disease successfully treated for first time One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.

The news is bleak everywhere but this is like a little oasis in the chaos, fantastic news. #Huntingtons #r4today

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The 🫠 ᴘʀᴇᴛᴛʏ KEXP 🎶 #NowPlaying Bot

@kexpmusicbot.bsky.social

2 months ago

Huntingtons - It's Always Christmas At My House, by Huntingtons / Darlington from the album SPLIT (Melted Records Archives)

🇺🇦 #NowPlaying on #KEXP's #VarietyMix

Huntingtons:
🎵 It's Always Christmas at My House

#Huntingtons

▶️ 🪄 Automagic 🔊 show 📻 playlist on Spotify

▶️ Song/Cover on #Bandcamp:

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Research at Northern Care Alliance NHS Foundation Trust

@ncaresearchnhs.bsky.social

2 months ago

Important insights here into GUIDE-HD, a remote guided self-help intervention to address anxiety in people with #Huntingtons disease based on cognitive behavioural therapy & acceptance & commitment therapy. Authors inc @nicolozarotti.bsky.social from Northern Care Alliance
doi.org/10.1080/0960...

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HD Reach Game Over HD

@hdreachgameoverhd.bsky.social

3 months ago

Does the "perfect caregiver" exist?

H and Lauren have such a great conversation while playing #stardewvalley about #caregiving and #huntingtonsdisease. Check out the full stream on our YouTube channel in our linktree in bio!

#hdreachgameoverhd #raredisease #huntingtons #streamer #fyp

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NM EPSCoR

@nmepscor.bsky.social

4 months ago

two researchers standing in front of a poster

2025 NM EPSCoR Seed Awardee Nabanita Sakia, explores how certain plant compounds disrupt toxic molecular formations associated with Huntington’s disease. Read more bit.ly/3WAoUcj

@nmhighlands.bsky.social
#nmleg #huntingtons #neurodegenerative #research #newmexico

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Ian Kremer

@wolverinebear.bsky.social

4 months ago

First direct measurement of dementia-linked proteins Early detection of Alzheimer’s disease has come a step closer thanks to a new measurement method developed by chemists at Utrecht University. Notorious protein clumps involved in dementias such Alzhei...

First direct measurement of dementia-linked proteins opens door to better diagnosis and future treatments www.uu.nl/en/news/firs... by @utrechtuniversity.bsky.social

#Alzheimers #dementia #Parkinsons #Huntingtons #biomarkers #chemistry #science

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Knut and Alice Wallenberg Foundation

@kawresearch.bsky.social

4 months ago

Vill bromsa åldrandets sjukdomar | Knut och Alice Wallenbergs Stiftelse Vad får korthuset att falla när vi åldras? Wallenberg Scholar Thomas Nyström söker svaret genom att granska hur cellens olika arvsmassor pratar med varandra. Forskningen ska resultera i en kartläggnin...

Vad får korthuset att falla när vi åldras? Wallenberg Scholar Thomas Nyström söker svaret genom att granska hur cellens olika arvsmassor pratar med varandra #forskning som kan bana väg för läkemedel mot sjukdomar som #Alzheimer, #Parkinson och #Huntingtons.
#vetenskap #åldrande tinyurl.com/3h572axk

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Donna E

@edwardsdna.bsky.social

4 months ago

Vitamin K Forms Basis of ‘Groundbreaking’ Prospective Treatment for Neurodegenerative Diseases Vitamin K, an essential nutrient that prevents blood cots and aids in bone health could also be an effective long-term treatment for neurodegenerative diseases. A Japanese study team took the molecule, created a novel, altered form and used it to improve the transcriptions of cells into neurons at a rate 300% higher than controls. If […] The post Vitamin K Forms Basis of ‘Groundbreaking’ Prospective Treatment for Neurodegenerative Diseases appeared first on Good News Network.

Vitamin K Forms Basis of ‘Groundbreaking’ Prospective Treatment for Neurodegenerative Diseases: Vitamin K, an essential nutrient that prevents blood cots and aids in bone health could also be an effective… @goodnewsnetwork.org #VitaminK #NeurodegenerativeDiseases #Alzheimers #Parkinsons #Huntingtons

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OnlySky

@onlyskymedia.bsky.social

4 months ago

An end in sight for Huntington's disease? Genetic therapy offers hope for a dreaded and previously untreatable disorder.

An end in sight for Huntington's disease, by @daylightatheism.bsky.social

Genetic therapy offers hope for a dreaded and previously untreatable disorder.

onlys.ky/an-end-in-si...

#huntingtons #genetherapy #medicine #biology

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Husnain

@hafizhusnain.bsky.social

5 months ago

Early #diagnosis is key in #neurodegenerative #diseases — and #miRNAs could make it possible.
Learn how they’re reshaping #biomarker discovery and #therapy design 🧬👇
🔗 rdcu.be/eJJJ3
#Alzheimers #Parkinsons #ALS #Huntingtons #miRNA #Neurobiology

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ShannaDez ☕

@bawannamamma.bsky.social

5 months ago

What fantastic news to hear in such a crap storm of a world we are in. So happy for those who suffer from this horrible disease. #huntingtons

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Galilean

@thegalilean.bsky.social

5 months ago

Huntington's disease successfully treated for first time One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.

#huntingtons #camdensnow Has personal meaning for me.

bbc.com/news/article...

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EHDN News

@ehdn-news.bsky.social

5 months ago

Statement from EHDN Chairs on uniQure’s Topline Results – European Huntington's Disease Network

*Statement from EHDN Chairs on uniQure’s Topline Results*

EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:

ehdn.org/statement-fr...

#Huntingtons

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MED

@medtriage.bsky.social

5 months ago

🩺 This week’s top health stories for 28th Sep. From Ebola in Congo to a game-changing HIV jab, new dementia risks, and the first glimmer of hope for Huntington’s.

#HealthNews #GlobalHealth #MedicalResearch #AI #Ebola #HIV #Dementia #Huntingtons #Doctors #MedTech

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Five Oh Five（他妈/他妈的）

@tenletters.bsky.social

5 months ago

This is the exact thread I was wanting to make if someone hadn't already made it easy to re/quote-post, on 2 separate/major developments this week. Huntington's is brutal. May finally be able to stomach a book #LisaGenova wrote about a fictional case. #🧵 #MedicalNews #Lenacapavir #AIDS #Huntingtons

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Prof Sam Illingworth

@samillingworth.com

5 months ago

Huntington’s disease treated successfully for first time in UK gene therapy trial Surgical procedure to treat devastating illness slowed progress of disease by 75% in patients after three years

🧠 First treatment for Huntington’s

A UK trial of gene therapy slowed Huntington’s disease by 75% over three years, offering real hope for families facing this fatal condition.

🔗 www.theguardian.com/science/2025...

#SciComm 🧪 #Genetics #Huntingtons

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Peggy Goetz Conrad

@genes2go.bsky.social

5 months ago

Huntington’s Disease Effectively Treated for the First Time with Gene Therapy

#Huntingtons #breakthrough
#genetherapy
#science
#geneChat
#genetictesting
#geneticcounseling
“A one-time gene therapy,AMT-130 has trial results, slowed Huntington’s disease progression by about 75% over three years—the first disease-modifying signal reported for this fatal, inherited condition.