#LongCovd

@chronicallies.bsky.social

6 hours ago

#LongCovidAwarenessWeek #LongCovd #ChronicIllness #InvisibleIllness #ChronicAllies #ACTtherapy #RadicalAcceptance #Pacing

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Emerge Australia

@emergeaustralia.bsky.social

1 week ago

International Women’s Day 2026 graphic showing four women from behind with their arms around each other in solidarity. Text at the top reads “International Women’s Day,” with the Emerge Australia logo at bottom left and “2026” at bottom right.

International Women's Day 2026!   

On the eve of Long COVID Awareness Week, we note the disproportionate representation of women living with #mecfs, #longcovd and invisible energy limiting conditions.

Celebrating the strength, resilience, and achievements of all women.

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Belasco

@belasco.bsky.social

4 months ago

Hey other #longcovd & #mecfs folk, have any of y’all tried Armodafinil, switched from regular modafinil to it, or decided not to try it?

It’s being strongly suggested to me & where I know we all handle meds differently I’m curious about other people’s experiences & thoughts

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Tania J. Spencer

@taniaspencer.bsky.social

6 months ago

1/
And even then, doctors often don't trust their own tools, when it comes to #LongCOVD.

This week, a doctor cautioned that an ECG that showed 2x (concerning) "dips" during my recent ER visit, might have been put on "incorrectly".

So we'll just "wait & see", he said.

As usual.

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Emerge Australia

@emergeaustralia.bsky.social

10 months ago

Many people with ME/CFS and long COVID struggle to access the NDIS and DSP. This must change! Visit your candidates' page today and tell them you will vote for the candidate who will give people with #MECFS and #longCOVD a #FairGoForME #AusVotes2025 #AusPol

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Emerge Australia

@emergeaustralia.bsky.social

10 months ago

25% of ME/CFS patients and many long COVID patients are housebound or bedbound. They need better care! Visit your election candidates' page today and tell them you will vote for the candidate who will give people with #MECFS and #longCOVD a #FairGoForME #AusVotes2025 #AusPol

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tangled-webb

@tangled-webb.bsky.social

1 year ago

Today is Long Covid Awareness Day. The media and government are staying quiet and pretending that the ill don't exist. Covid may be over in the minds of many, but for those who suffer every day, it is very much not over. Don't forget about us.

#longcovd #Longcovidawarenessday #dontforgetaboutus

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Sally Bourliakas

@sallybourliakas.bsky.social

1 year ago

Spatone helps with energy
Ozempec then monjarro have reduced my weight by over 3 stones
I also have been taking Serrapeptase & Nattokinase to reduce #LongCovd microclots
(& am about to try chinese medicine supplement Xue Fu Xhu Yu Wan for microclots too to see if improves microvascular dysfunction)

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Betty C. Jung

@bettycjung.bsky.social

1 year ago

#COVID19 is not over. Get vaxxed, take precautions. Each reinfection increases the risk for #LongCovd.

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Michael Smith

@skibu.bsky.social

1 year ago

Um, it’s #LongCovd. Any other cycling fans here? I was just reading about Chris Froome, 4 time Tour de France winner. Caught COVID during the tour in 2022 and it turned into long COVID. Got it again December ‘22, but was determined to race in ‘23. But in ‘23 & ‘24 didn’t make it into TDF. 1/ 🧵

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Sammie McFarland

@sammiemc.bsky.social

1 year ago

“This is the longest follow-up study of children with SARS-CoV-2 infection, showing a significant and long-lasting burden of #LongCovid in the pediatric population.”

www.thelancet.com/journals/ecl...

#LongCovd #LongCovidKids

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Marc Veldhoen

@marcveld.bsky.social

1 year ago

Long COVID is not the same for everyone: a hierarchical cluster analysis of Long COVID symptoms 9 and 12 months after SARS-CoV-2 test - BMC Infectious Diseases Background Identifying symptom clusters in Long COVID is necessary for developing effective therapies for this diverse condition and improving the quality of life of those affected by this heterogeneous condition. In this study, we aimed to identify and compare symptom clusters at 9 and 12 months after a SARS-CoV-2 positive test and describe each cluster regarding factors at infection. Methods This is a cross-sectional study with individuals randomly selected from the Portuguese National System of Epidemiological Surveillance (SINAVE) database. Individuals who had a positive RT-PCR SARS-CoV-2 test in August 2022 were contacted to participate in a telephonic interview approximately 9 and 12 months after the test. A hierarchical clustering analysis was performed, using Euclidean distance and Ward’s linkage. Clustering was performed in the 35 symptoms reported 9 and 12 months after the SARS-CoV-2 positive test and characterised considering age, sex, pre-existing health conditions and symptoms at time of SARS-CoV-2 infection. Results 552 individuals were included at 9 months and 458 at 12 months. The median age was 52 years (IQR: 40–64 years) and 59% were female. Hypertension and high cholesterol were the most frequently reported pre-existing health conditions. Memory loss, fatigue or weakness and joint pain were the most frequent symptoms reported 9 and 12 months after the positive test. Four clusters were identified at both times: no or minor symptoms; multi-symptoms; joint pain; and neurocognitive-related symptoms. Clusters remained similar in both times, but, within the neurocognitive cluster, memory loss and concentration issues increased in frequency at 12 months. Multi-symptoms cluster had older people, more females and more pre-existing health conditions at 9 months. However, at 12 months, older people and those with more pre-existing health conditions were in joint pain cluster. Conclusions Our results suggest that Long COVID is not the same for everyone. In our study, clusters remained similar at 9 and 12 months, except for a slight variation in the frequency of symptoms that composed each cluster. Understanding Long COVID clusters might help identify treatments for this condition. However, further validation of the observed clusters and analysis of its risk factors is needed.

Long COVID is not the same for everyone: a hierarchical cluster analysis of Long COVID symptoms 9 and 12 months after SARS-CoV-2 test

#LongCovd is a heterogenous disorder.

bmcinfectdis.biomedc...
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Long Covid Support

@longcovidsupport.bsky.social

2 years ago

Trial By Error: Interview with Dr Rob Wüst about New Study of Muscle Abnormalities in Long Covid | ... By David Tuller, DrPH In early January, Nature Communications published a Dutch study called “Muscle abnormalities worsen after post-exertional malaise in l ...

Great conversation by David Tuller with Dr. Rob Wüst re. the recent paper on ‘Muscle abnormalities worsen after post-exertional malaise in long COVID’, including Dr. Wüst explaining post-exertional differences found between p/w #LongCovd and people who are deconditioned.

virology.ws/2024/01/26/t...

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