Latest posts tagged with #MCTD on Bluesky
Anybody else on Leflunomide, Humira, & Plaquenil notice that they lose a lot of hair? I lost tons when I was on Methotrexate, still losing it in this new combo. #MCTD #MCTDWarrior #rheumatoid #rheumatoidarthritis #autoimmunedisorder
3.6.5 Day 61 - 3/2/26
💊 New meds are having a rough start. Stayed home to rest. Breakfast sandwich at 1pm 🍳☕
#365photo #photoaday #food #medication #chronicillness #autoimmune #mctd #fibro
A person sitting in a chair in a kitchen
My mixed connective tissue disease (mctd) and dysautonomia is flaring HARD today. I can barely stand and move without being exhausted. No stream today. I need to sit in a chair just to go about the kitchen 😓 #disability #mctd #dysautonomia #pots #hypotension
3.6.5 Day 58 - 2/27/26
🌊 Another painful day 🌊 Another evening of rest 🌊
(I really love taking photos with texture)
#365photo #photoaday #autoimmune #chronicillness #mctd #fibromyalgia #photo
3.6.5 Day 57 - 2/26/26
🌀 Energy's low and brain fog's high 🌀 Being nice to myself and spending the evening in bed 🌀
#365photo #photoaday #mctd #fibromyalgia #autoimmune #chronicillness
3.6.5 Day 54 - 2/23/26
🛋️ #MCTD & #Fibromyalgia have had me feeling like major shit for 2 months. Today's energy levels were especially low. A heat blanket & purring cat may not fix it, but it helps 😿
Been prescribed low dose naltrexone to try 🤞
#365photo #photoaday #autoimmune #chronicillness
A mirror picture showing myself with spots on my lower back where I got an injection, I have a crop top long sleeve dark grey purple with chain necklace and dark purple pants
A mirror picture with a hospital gown
No stream today 😞
I was unexpectedly last minute approved for a procedure to help my back. 😷
I'll be back tomorrow! We'll play some League (maybe Cass? Maybe Nami? Maybe Renata?) 🤠
#disability #spoonie #chronicpain #streamer #eds #mctd
365 Day 37 - 2/6/26
🔔✨Fiddling around after a long week of feeling like crap✨🔔
#365photo #photoaday #craft #crafts #crafting #chronicillness #autoimmune #mctd
“Rare on Air, Episode 5 featuring Jessa in a brown cardigan, with a colourful purple and blue painted gradient background and the date 15 January.”
🎙️ As #RareDiseaseDay 2026 nears, #RareOnAir Stories continues!
💜 In this episode, we meet Jessa, an 18-year-old living with #EDS, #MCTD & juvenile arthritis, proving resilience and hope can redefine what’s possible.
🎧 Listen now: https://www.eurordis.org/rare-on-air/
3.6.5 Day 11 - 1/11/26
🛋️ New heated blanket to try and my love made me coffee 🥰☕
#365photo #photoaday #chronicillness #autoimmune #mctd
3.6.5 Day 6 - 1/6/26
📑 Back to work, just another day 🧺
Cooked a meal for 2 people tonight for the first time in years! I had just enough energy to fry a simple chicken and rice dish 🍛
#365photo #photoaday #photo #autoimmune #mctd #seriousgoosejuice
A planner notebook sitting open on a dark brown table with a black mug filled with highlighters and a pair of scissors, and a pole of LEGO bricks in bags
3.6.5 Day 3 - 1/3/26
Rest day, starting to feel a bit better, but the inflammation is still going crazy 🤒
Closed out the month of December in my planner. Hope to work on January's pages tomorrow ❄️
#365photo #photoaday #bulletjournal #planner #autoimmune #mctd
Beach COMBERS.
#art #pastelart #conceptart
#crps #mctd #heds #pots
scratched a fairly vibrant
visual here 👁️🗨️
Any #autoimmune / #chronicillness / #mctd peeps try the Mediterranean diet/similarly set diets and have any success with lowering inflammation? I've been doing pretty good since starting the hcq but wanna see if I can make any other improvements 🤔 tho I already eat pretty similarly to it
A black table in front of a white counter, covered in several drinks, plates, bowls and dishes of food. Including a boiling pot of soup broth
3.6.5 Day 2 - 1/2/26
Bad pain day, improved by some hot pot
🍲🥬🥕🥟🍖🧋
#365photo #photoaday #hotpot #food #boba #goodsoup #autoimmune #mctd
Dammit I should have included some hashtags with this post
#autoimmune #chronicillness #MCTD #Sjogrens
A cartoon gray, kind of creepy hand with four fingers, seems to habe arthritis against a teal background and purple table. A small yellow cartoon hand holds the arm.
Does anyone here have #spondyloarthritis? I need some support while in medical limbo.
#Arthritis
#MCTD
#Lupus
#ChronicPain
Just starting #childhood #MCTD #Sjogren #PReS 💻⬇️
#Chronicillness and #autoimmune folks! I am pleased to announce that I have a diagnosis of #MCTD! Mixed connective tissue disease! Starting hydroxychloroquine soon, fingers crossed for some relief. It's prolly gonna suck to start out, but I'm so grateful to have something concrete to hold onto 😭
📝 Delighted to share our latest research!
Integration of transcriptome + immunophenotyping reveals two distinct B-cell–driven clusters across 6 IMDs — #SLE #RA #SSc #IIM #MCTD #LVV
🔔 Naïve B–dominant cluster
⬆️ IFN & ABC signature
🚨 Higher flare rate
rmdopen.bmj.com/content/11/2...
My Angry Joints We are short-staffed. Please be patient with the connective tissues who did show up. *eyeroll* nobody wants to work anymore.
My Angry Joints / Connective Tissue Disorder
#eds #rheumatoidarthritis #mctd #lupus
Not just cancer, but #AUTOIMMUNE research as well. My mom lost her 3rd battle with cancer. I live with #LupusSLE, #Fibromyalgia, #MCTD, and #RheumatoidArthritis. My sister has #MyestheniaGravis & Fibromyalgia. We need more research!
Mixed Connective Tissue Disease is like if you threw all existing autoimmune disorders into a blender and turned it on max speed
#mctd #mixedconnectivetissuedisease
#SystemicExertionalIntoleranceDisease, #SEID , #autoimmune, #cysticfibrosis, #dystonia, #parkinsons, #PCOS, #cf, #Raynauds, #Sjogrens, #neuromyelitisOptica, #NMOSD, #narcolepsy, #urticaria, #idiopathichypersomnia, #Psoriasis, #PsoriaticArthritis, #UCTD, #MCTD, #hypersomnia, #CVID, #CPP, #PID,
4/6
#crps #CRPS, #Sjogrens, #Polymyositis,
#MixedConnectiveTissueDisease #MCTD, would be cool to see under this hash tag, just a suggestion, and TY
✌️ 💛⚡️🦋 #ChronicIllness
