"X" is playing next in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#WomensHistoryMonth #horror #neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies
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#Neisvoid
Latest posts tagged with #Neisvoid on Bluesky
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Posts tagged #Neisvoid
Was looking forward to playing more Ultros this weekend now that my wrists are finally getting stronger again…
But fatigue and chronic issues have decided that this weekend means I’ve spent nearly the entire time just dozing on and off.
I miss doing things.
#NEISVoid
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#Pearl just started in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#WomensHistoryMonth #neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies
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I got the Visible tool and app. Here's to figuring out pacing to prevent overdoing it going forward!
#POTS
#ChronicIllness
#NEISVoid
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Right now in the #ChronicLoaf stream S1E1 of the original #GirlFromNowhere series is starting (one of our favorite dark thriller series).
Catch up, refresh your memory or check it out before we start the new #GirlFromNowhereTheReset series!
mzelo.com/app/rooms/ch...
#horror #spoonie #neisvoid
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#MigraineChat #migraine #NEISVoid
Today in an interview on Migraine World Summit with Dawn C. Buse, PhD a Psychologist & Clinical Professor of Neurology speaking about "Living With Migraine Through Times of Grief & Loss" very briefly mentioned Elisabeth Kübler-Ross 5 Stages of Grief.
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I'd really appreciate support so I can afford ongoing medical costs, wipes, food, and other necessities that I require as a severely disabled, bedbound person with very limited support from family.
ko-fi.com/moriende
paypal.me/belzomalsh
CA/ven: kookysnell
#NEISvoid #helpsky #signalboost
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"You’re already managing pain, fatigue, #BrainFog, or #unpredictable flares. Layer #DecisionFatigue on top, and suddenly you’re stuck in #AnalysisParalysis : unable to choose, frozen by the weight of “what if I get this wrong?”": buff.ly/X8Pilzt
by @remotetherapy.space
#ChronicIllness #NEisVoid
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Do any of you put pressure on yourself to look/appear/behave healthy when you hang out with friends?
I need an entire day of prep because I need rest before and after, just to hang out for an hour or two.
#NEISvoid #AuDHD #Disabled
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We need your support to keep our media team going thank you! Can you help?
www.chronicpainpartners.com/chronic-pain...
#EDS #EDSAwareness #HSD #Zebras #Spoonies #NEISvoid #Support
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i get so bored when i’m too sick to do more or focus more
it’s so frickin boring just. waiting to be tired enough to sleep.
#NEISvoid
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I'm now going to collapse in a heap and try not to think about how my GI doctor is probably going to order a colonoscopy
(or the fact that I'm having pain in the spot my "maybe Crohn's?" inflammation was doing its thing a few years ago)
#NEISvoid
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feeling kind of like a badass today as I realized my ER visit only took three hours
got home, changed into clothes that didn't smell like hospital, went to the plant swap with a bunch of free baby food plants. Left with marigold seeds and a baby mini citrus tree??
#NEISvoid
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⚠️⚠️💛⚠️💕💸🏳️⚧️🏳️🌈⚠️⚠️✨⚠️💛⚠️
2:35pm
$229 still needed
Rooms still at immediate risk
‼️‼️‼️‼️‼️‼️‼️‼️‼️‼️‼️‼️‼️‼️
I have been doing this since last night. My body is shutting down.
Venmo: Subversiva
#MutualAid #NEISVoid #DisabilityCommunity #HousingSupport #EmergencyAid #DirectSupport #MutualAidBlueSky #AltText #DisabledFamily
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S1E1 of #HeatedRivalry is starting soon in the #ChronicLoaf stream
Hop in and watch with us ahead of the #SeatedRivalry, Sled Hockey championship tomorrow morning!
mzelo.com/app/rooms/ch...
#NEISvoid #mecfs #DisCo #ForTinu #spoonie #cannabisculture #lgbtqrepresentation
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Black background with bold bright pink text reading: “Mutual aid is love that learned how to fight.”
Bright pink mutual aid poster with bold text reading “DUE NOW – MUTUAL AID HOUSING REQUEST.” Below it states: “$300 was due by 11am today.” A progress line reads “$71 | $300.” Another line reads “Two rooms. One night.” Footer text asks people to share if they cannot give and lists CashApp: $StoryleGaie.
Bright pink graphic repeating the words “URGENT MUTUAL AID” across the background. In the center, bold black text reads “URGENT MUTUAL AID.” A neon green label shows progress “$71 | $300.” Large handwritten neon text says “DUE NOW.”
Black background with bright neon green text reading: “No one should have to earn the right to sleep safely. Housing is a human right.”
$229 standing between us and losing both rooms.
💸💕🏳️⚧️🏳️🌈
It is almost 1pm. Payment was due at 11am. We are still here but not for long.
$71 raised. $229 to go.
CashApp: StoryleGaie
Venmo: Subversiva
#MutualAid #NEISVoid #Disability #HousingCrisis #DirectAid #MutualAidRequest #AltText #RentRelief
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#neisvoid anyone know if there are any covid concious/general infectious disease concious groups that still meet up in the capital region in NY?
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Screenshot of North Dakota 3-14-26 weather radar, showing a large band of snow over Dickinson, Hettinger, Bismarck, Washburn, Mott, Linton, Jamestown, Ellendale, and a couple other small towns.
Ah, yes, -this- is why I woke up in *so* much pain. My head is killing me and the rest of my body is screaming. I'm too young to be a human barometer. 😭😭😭 #chronicpain #spoonie #neisvoid #disability
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Bright neon green mutual aid poster with pink and black text reading: “30 Minutes Mutual Aid Request.” It states a goal of $300 by 11 AM today with $0 raised so far. The message explains that two hotel rooms are needed for one night for a household that has already endured significant hardship. It also says the person is still sick and does not have their antibiotics, and they have a fair hearing in two weeks they need to be well and housed enough to attend. The bottom asks people to give or share immediately and lists CashApp: $StoryleGaie.
Black-and-white photograph of wildflowers against a dark background with bold white text that reads: “Community is how ordinary people do extraordinary things together.” A small cluster of bright green dots appears in the upper right corner as a design element.
⚠️ URGENT: $300 NEEDED IN 30 MINUTES ⚠️
Disabled multigenerational family of 6 trying to stay housed.
We need $300 to keep two rooms for one night.
Venmo: Subversiva
#MutualAid #NEISVoid #DisabilityCommunity #HousingSupport #EmergencyAid #DirectSupport #MutualAidBlueSky #AltText #DisabledFamily
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I finally received a donation. I'm immensely grateful for the progress. I just need to make it through this period so I can make it through the legal fight. if it is successful, things will hopefully change for me.
ko-fi.com/moriende
paypal.me/belzomalsh
CA/ven: kookysnell
#neisvoid #signalboost
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#NEISVoid let's show some solidarity
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"You’ve tried harder than most people will ever understand. You’ve set the alarm, laid out the supplements, mapped the schedule, color-coded the planner. You’ve done everything right..then yr #body did something that made all of it irrelevant.": buff.ly/kPZy2hr
by @thethrivingspoonie.com
#NEisVoid
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Dark humor: Advantages to being chronically ill
I'll start: It's hard to press accusations of fakery against you when one of the doctors treating you is world famous & literally the best in his field. He only sees people who would die in the care of lesser practitioners.
#NEISVoid
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We're restarting #Bloodhounds season one, in anticipation of the season 2 premier on April 3rd!
Hop in for a late night binge of an excellent series @ mzelo.com/app/rooms/ch...
#neisvoid #mecfs #action #Thriller #spoonie #MutualAidMarathon #insomnia #ChronicPain
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One of the #ChronicLoaf stream's favorite animes, #MichikoandHatchin, just started from S1E1!
Hop in and watch with us @ mzelo.com/app/rooms/ch...
#animation #cannabisculture #spoonie #neisvoid #anime #mecfs #chronicpain #longcovid
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#neisvoid I haven't been on in awhile and could use advice. I hinted at a family member about something I was recommended to advocate to get checked for. This family member doesn't believe me and found a way to invalidate me even though I know the truth. It hurts and I don't know what to do.
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Derm just messaged me back. He said according to the photo I sent, my incision site looks good. He can't understand why I could be going through this much pain and complications.
Story of my life dude! Story of my life.
#NEISvoid
#spoonie
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The #NEISvoid
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Hey Fam! It's Friday! 💚🎉💃🏽
We have to have fun! Before we're ya know... Dead!
So bring ur ass to the #ChronicLoaf stream sometime today to relax, laugh, dance or whatever! We'd love to see you!😍
mzelo.com/app/rooms/ch...
#NEISvoid #DisCo #ForTinu #spoonies #DisabilityCommunity #lgbtqia+
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#NEISvoid
Just realized my daytime exhaustion and lethergy is at least sometimes blood pressure related.
Cause when I do a Valsalva maneuver, I become awake and alert again.
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