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Posts tagged #progressiveillness

Another from that series for #BlueskyArtShow #horizontal

The symptoms are shown in stacked horizontal bands depending on location.

#sciart #neuro #progressiveillness #symptomology

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There are too many unfinished projects.

#progressiveillness

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Photographic double exposure. A portrait of Mickey laying in bed. About half of their face is in frame with a pillow behind it that has little red flowers. Image is double exposed with a closeup of the healing site of Mickey’s recent lumbar puncture which streaks across their cheek, eye, and forehead.
Image is “aged” with a grain filter and colors have been manually adjusted leaving some greenish splotches.

Photographic double exposure. A portrait of Mickey laying in bed. About half of their face is in frame with a pillow behind it that has little red flowers. Image is double exposed with a closeup of the healing site of Mickey’s recent lumbar puncture which streaks across their cheek, eye, and forehead. Image is “aged” with a grain filter and colors have been manually adjusted leaving some greenish splotches.

Just a Little Pin Prick
(Lumbar puncture 2025)

Sono Una Fotografia

On body, searching, degeneration, and identity

#eastcoastkin #photography #ArtofSelfPortraiture #chronicillness #progressiveillness #HumansofBluesky

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"Normal platitudes, which can mostly be summed up as "This too shall pass", don't apply when you have a treatment-resistant, severely disabling disease that will last your entire life."
Credit @alexandrite113
#DisablingDisease #LifeWithDisability 
#ProgressiveIllness #DisabledLife  #MySeveralWorlds

"Normal platitudes, which can mostly be summed up as "This too shall pass", don't apply when you have a treatment-resistant, severely disabling disease that will last your entire life." Credit @alexandrite113 #DisablingDisease #LifeWithDisability #ProgressiveIllness #DisabledLife #MySeveralWorlds

"Normal platitudes, which can mostly be summed up as "This too shall pass", don't apply when you have a treatment-resistant, severely disabling disease that will last your entire life."
Credit @alexandrite113
#DisablingDisease #LifeWithDisability
#ProgressiveIllness #DisabledLife #MySeveralWorlds

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Very dark edit of Mickey standing facing to on side and looking up with one arm draped effortlessly just behind their side and the back arm bent elbow up and cradling their head
They are wearing black leggings which blend into the background as their hair does.

Very dark edit of Mickey standing facing to on side and looking up with one arm draped effortlessly just behind their side and the back arm bent elbow up and cradling their head They are wearing black leggings which blend into the background as their hair does.

Release (2025)

Sono Una Fotografia
On body, progressive illness, letting go, and identity

#eastcoastkin #chronicillness #artofselfportraiture #progressiveillness #mortality #humansofbluesky

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Capturing the Feeling: chronic illness and personhood | Sara Barcus Get more from Sara Barcus on Patreon

Just made this one a public post. It is a part 2, so not much text. Just the images.

#chronicillness #degenerative #art #mixedmedia #progressiveillness

www.patreon.com/posts/126654...

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When losing our abilities to FA, the feeling of grief is real Grief is real whether it's for a lost function or for a lost loved one, columnist Jean Walsh has found in her life with FA.

“I’m not trying to compare the #grief of #loss of ability with the grief of losing a loved one. I’m simply saying both are to be expected and acknowledged as important #emotions": https://buff.ly/4gDjm8i #RareDisease #ProgressiveIllness by @jeantw.bsky.social

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