Latest posts tagged with #stoprestpace on Bluesky
Laurie Jones (white woman with long brown hair wearing an ivory sweater) smiles while holding up Visible bands outside on a deck.
Our executive director, Laurie Jones is sending out some love this Valentine's weekend- in the form of refurbished Visible bands! Those of you who won have been notified via email and the first round of bands are on their way! Thank you to Visible!
#PwME #StopRestPace
Ok I wrote that thread and I really do have to bow out now. With Advil, water, earplugs, and an eye mask — and hopefully a nap. #StopRestPace
Slowly, MErtally slowly, even some researchers at the CDC are starting to see the light & benefits of P*A*C*I*N*G for people suffering from #ME/CFS and post COVID-19 triggered ME #LongCOVID #PEM
#StopRestPace #PacingPassItOn
Slowly, ever so slowly, even some researchers at the CDC are starting to see the light & benefits of P*A*C*I*N*G for people suffering from #ME/CFS and post COV-2 ME #LongCOVID
#StopRestPace #PacingPassItOn
🏷️ @sunsopeningband.bsky.social
@physiosforme.bsky.social
@longcovidphysio.bsky.social
HAPPY NEW YEAR
With your support, Workwell steps into the New Year with hope and purpose. Thank you for standing with us. conta.cc/3KnKw9s
#HappyNewYear #MECFS #LongCOVID #HOPE #PEM #PT #OT #StopRestPace #DoNoHarm #nonprofit #Science
Please consider us in your end of year giving plan.
"You are not obligated to do everything a healthy person does. You are not obligated to be an inspiration. You are not obligated to hide your illness in order to make other people comfortable. You are allowed to know your limits. You are allowed to have bad days. You are allowed to stay in bed if you can't get up to do anything but go to the bathroom. It is not your fault if other people leave you because of your illness. It is not your fault that you are sick. You don't have to apologize for something that is out of your control." Credit: @holistic_henney #ChronicTruths #StopRestPace #ChronicReality #MySeveralWorlds
"You are not obligated to do everything a healthy person does... You are allowed to know your limits. You are allowed to have bad days. You are allowed to stay in bed if you can't get up to do anything but go to the bathroom."
@holistic_henney
#ChronicTruths #StopRestPace #MySeveralWorlds
This is a brilliant explanation of PEM!
#MEcfs #SevereME #LongCovid #StopRestPace
“The most important thing to avoid a bad ME flare-up is not to do too much. It’s difficult to have to explain to people how too much has become too little. It’s better to stop than to stop too late.”
#ME/CFS #StopRestPace #pwME #MEAwareness #LongCovid
#LongCovidAwareness
@mefelag.bsky.social 🇮🇸
2x Material für je 30 Briefe an Versandteam gesendet 👏 #MEAwareness
Ist sehr spannend mit Euch! Danke.
#millionsmissing #botkinscharity #vigibot #StopRestPace #DIY #robotics #raspberrypi #disability #MEcfs #Empowerment #fpv #MyalgicEncephalomyelitis
Purple and blue watercolour flowers in the corners with the words - daily kindness reminder stop rest pace repeat
It’s not just you, stop, rest, pace is so much harder than it sounds. Without access to a ton of support, crash, rest, go is often the only option for basic survival. But #StopRestPace is still incredibly worthwhile when possible. #LongCovid #MECFS #pwME
Simple graphic with words written in black and circled in red. Text: tip for Monday. Stop. Rest. Pace. Always.
How is everyone? July seems to be tough so far! Here is your reminder to #StopRestPace!
It is not an easy thing to do! Between lack of support and this illness throwing surprises our way, it is tough to carry out in real life.
We have help! Pacing guides: www.meaction.net/resource/pac...
#pwME
Eine Person mit langen Haaren steht vor einer Treppe und blickt nach oben. Text: «Ist ja nur eine Etage» Bist du schon mal während einer Grippe auf der Treppe steckengeblieben? Vielleicht hast du vor der Treppe noch gedacht: «Ist ja nur eine Etage, das schaffe ich.»
Ausschnitt von Beinen beim Treppensteigen. Text: Doch nach einem Drittel der Stufen spürst du, wie dein Körper schwächer wird und die Kraft schnell schwindet. Nach der Hälfte geht dir die Puste aus. Du setzt dich hin, atmest ruhig und tief ein und aus - doch der Sauerstoff scheint sein Ziel nicht zu erreichen. Die brennenden Muskeln bestehen während Minuten.
Person sitzt auf der Treppe. Text: Stell dir vor, das bleibt. Stell dir vor, nach Monaten ist es kein bisschen besser – nun aber besteht die Erwartung, dass du wieder zur Arbeit oder ins Studium zurückkehrst. Noch schlimmer: Ein Überschreiten der vorhandenen Kräfte kann deine Grenzen noch weiter nach unten verschieben – ein echt fieses Symptom, das sich PENE nennt. So fühlt sich ME für mich an. Jede einzelne Minute, jeden Tag. Ohne Unterbruch – es gibt keine Erholung und keine Pause. Eine tiefgreifende körperliche Schwäche und grippeartige Erschöpfung. Dies als «Müdigkeit» zu bezeichnen, wäre verfehlt.
1) Illustration «Ist ja nur eine Etage»
Finde Beispieltexte und -bilder für E-Mails oder Postkarten auf me-cfs-chat.net#act
#millionsmissing #StopRestPace #disability #MEcfs #MyalgicEncephalomyelitis #MEAwareness #drawing #sketchbook
Blue sky at the top and orange sunset hues below. With the words - pacing mantra. I give myself permission to engage in purposeful self compassion
Daily kindness reminder: no matter what unhelpful societal message your brain is repeating, your body knows self compassion is a productive pursuit. #pwME #mecfs #stoprestpace #LongCovid #ChronicIllness
Broschüren in einer Kartonkiste
Titelseite einer Broschüre zu Volkswirtschaftlichem Schaden von ME
Sehen gut aus 👏
Bin gespannt, wie es weitergeht!
🔗Die komplette Illustration online: projects.whatimean.ch/2025/05/11/v...
#MillionsMissing #StopRestPace #Disability #MEcfs #Empowerment #MyalgicEncephalomyelitis #MEAwareness
A white woman with blonde hair wearing a red SOS #MillionsMissing shirt and holding a laptop smiles lightly at the camera.
A note from Holly- our Community Engagement and Social Media Manager - Gentle reminder to #StopRestPace as you take action!
Sending good luck to all who are meeting with representative offices for our friend's at @solveme.bsky.social's Advocacy week.
I took this pic after a meeting this morning.
1) Aktualisierte Illustration «Volkswirtschaftlicher Schaden» v4
#millionsmissing #StopRestPace #disability #MEcfs #MyalgicEncephalomyelitis #MEAwareness #drawing #krita
It was bad enough getting #MECFS in my 30s, I can’t imagine getting it or #LongCovid between ages 10-19 – the loss of even more years of life and experiences is hard to imagine.
#StopRestPace #ThereForME #MillionsMissing #LongCovidKids
#GreatestMedicalScandal #PACEtrial
Simple text-based graphic with cream background and light black lettering. Text: "Take action when you can. Save this link. bit.ly/ActionToTakeNow" The #MEAction logo is at the top in red.
We have gathered some current US actions relevant to our community to help as you choose what you can join in. While this list is not exhaustive, we hope it serves as a good starting place.
bit.ly/ActionToTake...
Remember to #StopRestPace
#pwME #LongCovid #MECFS #Disability #ProtectMedicaid
A must read The importance of understanding rest by @oonaghcousins.bsky.social www.thereforme.uk/p/the-import... @thereforme.bsky.social #ME/CFS #LongCovid #PEM #StopRestPace
Support Emerge Australia's initiative to help Aussies with ME/CFS get faster diagnoses. Aid in educating GPs for immediate intervention. Donate now: emerge.org.au/eofy2025.
#MECFS #LongCOVID #StopRestPace #EOFY2025 #EmergeAustralia #DonateForChange #InvisibleIllness
1) Illustration «Volkswirtschaftlicher Schaden» [12 Panel]
🤝Hast Du Lust mitzuhelfen?
#millionsmissing #StopRestPace #disability #MEcfs #MyalgicEncephalomyelitis #MEAwareness #drawing #krita
4) This same controversial treatment is now sometimes being applied to long-covid patients with arguably similar devastating outcomes.
ME organisations ( @meactnet.bsky.social , solvecfs, ...) advocate against GET, and place emphasis on #StopRestPace / «Pacing».
1) internet-controlled robots playing with musicboxes.
Can you guess the songs?
#millionsmissing #botkinscharity #vigibot #StopRestPace #DIY #robotics #raspberrypi #fpv #disability #empowerment #fyp #MEcfs #MyalgicEncephalomyelitis #MEAwareness
Liegefrosch 🐸 ist unterwegs.
Verfolge die Spannende Reise, gepostet wird nur auf Instagram und Bluesky.
#millionsmissing #StopRestPace #disability #MEcfs #MyalgicEncephalomyelitis #MEAwareness #drawing #krita
