Latest posts tagged with #visibleapp on Bluesky
Anyone know if/when #VisibleApp are finally going to roll out sleep tracking in the UK?
It’s strange how long it takes them to roll things out after announcing them. And where did monthly trends reports disappear to? I had them for April - May 2024 then they vanished again 🤷🏻♀️ #MECFS #LongCovid
Every since an undiagnosed upper respiratory infection (- covid, strep, RSV, Flu A/B) Tgiving week, I've been exhausted, high heart rate, and ended up in the ER mid-Dec with suspected heart issues.
On #VisibleApp, I've exceeded my Pace Points every day I worked with any HR in mid 80's
1/2
Referred M.E. clinic appointment booked for end of January. Not sure how it will help but we'll see. I have Visible band & app to track energy use & help pacing. Be nice to have a light at the end of the tunnel. 😐
#MECFS #MyalgicEncephalomyelitis #ChronicIllness #Disability #Spoonie #VisibleApp
Woke up with a,stability score of 2 on #VisibleApp and needing to catch a ride with my husband because the mechanic couldn't finish the scheduled service on my car, despite scheduling over 2 months in advance.
But 1/2 the class was on vacation again and it's surprisingly pleasant
I did my monthly check in on the #VisibleApp (FunCap 27) & I’m rationally annoyed w/myself & irrationally annoyed w/the result.
I feel a lot of pressur to use my best days as the metric & to be optimistic to the point of dishonesty. I caved & did just that, & got a whole .1 in improvement.
#neisvoid
Woke up feeling pretty rough, got a 1 on the #VisibleApp. Had a nice, chill morning w/our kids, some joined via Discord.
I expect more family to come by soon to do a 2nd gift exchange. I’ll get through what I can. I’m sorry #PEM hit today, but I wouldn’t give up yesterday for anything.
#neisvoid
Agh! Help - Visible wristband wearers: how on earth do you get the monitor into the strap? The metal end bit is too wide to fit through the slots on the monitor 😩 I’m certain Visible posted a video a month or two ago but it seems to have been taken down #MECFS #PwME #VisibleApp
Today’s project:
Trying to figure out if it’s a sudden, particularly bad crash or did I catch something
It’d be really nice if the symptoms weren’t identical
The #visibleapp knew something was up, I’ve been all 3s & 4s for a week, but got a very wonky 1 this morning
#neisvoid
Quick insight from my #VisibleApp is that my most relaxing waking moments are massage therapy and Bible study. The lowered heart rate is continuing post massage.
For any other #VisibleApp users thinking of getting an armband, I rediscovered the blog buried at the bottom of the Community tab today, and in the post about wristbands there is a 25% off for members code 👍🏻 #MECFS #LongCovid
(And if you’re thinking of becoming a member, here’s my £15 off link 😉)
Me out here on a 2 day (according to the #Visibleapp) propped up on meds & blankets so I can have one semi-normal feeling day that involves playing Borderlands 4 & talking smack w/my spouse & kids.
I should be resting for Thanksgiving, but I need a mental health break from being sick.
#pwme
#pwlc
I was doing better & had only used .1 pace point on the #VisibleApp all day so I decided the best way to deal w/static feeling in my limbs was to treat myself to a nice hot bath.
HR spiked somewhere north of 135, I blew 5 pace points in less than 15mins, & I’m in a crash.
WTAF 😡
#pwme
#pwlc
#pots
Morning Stability: 1 Out of balance Be kind to yourself today. Your body needs rest to get back to baseline.
Yesterday: wow I did really well on that long drive, had a very relaxed evening, & now I’m going to bed earlier than usual - this is all boding well for the dr appointments tomorrow!
This morning : Oh. Oh shit.
#visibleapp #mecfs #longcovid
Screenshot from the Visible App, saying I got a stability score of 5 (out of 5) today: “Stable & improving Your body's signals are stable, and one or more are trending positively. Keep pacing yourself.”
Wow - my first 5 since January! I’ve not felt quite as healthy as that suggests, but I’ll take it as a good thing. It’s so strange to see my HRV higher than my RHR #VisibleApp #MECFS #PwME
(and yes, I’m not long awake. The good sleep - a total of almost 9 hrs - may be part of the good score 😉)
Screenshot from the new (to UK) Visible Shop, showing a black wrist strap option for the Visible sensor (£24.99)
Ooh, exciting - the wrist strap for the #VisibleApp sensor is now available here 🎉 Hopefully I’ll be able to get that soon. I can’t wait to move away from the 2.0 armband (so uncomfortable!)
Ya know how sometimes one can get a 2 for the day on the #VisibleApp & kinda ignore it & stick w/normal #pacing …yeah, today is not that day 🫠
And with that, I’d like to welcome #POTS back to the party (they were never invited to.) Gotta say, pal, you weren’t missed even a bit!
#neisvoid
Got a 1 on the #visibleapp morning check in. I wasn’t sure about it, but after looking through both of my sleep apps & other symptom tracking - it checks out
It’s easy to forget how much emotional energy really costs, it’s kinda my kryptonite.
Be kind to each other & gentle w/yourself 💙💜
#pwme
#pwlc
For any other #MECFS and #chronicIllness people like me who may be curious: I’ve used the FreshWipes body wash foam 16 times now (and have plenty left) These are the summaries from #VisibleApp (see alt text)
(Bear in mind that 90% of showers have a 15min gap when I remove my armband)
Got a 2 on the #Visibleapp this morning, so naturally it was a busy day (for me.) It’s always a treat when my folks come over for dinner & I was able to join them at the table long enough to eat. Then I totally threw #pacing to the wind & played a video game w/my spouse & son.
💯worth it
#pwme
I keep meaning to mention, for other #visibleapp users:
I got the new wristband & I’m like it a lot. It’s MUCH easier to adjust, dries faster, & irritates my skin less (which might be more about placement.) It’s also made the new sleep tracker more accurate.
I woke up an hour ago, drank electrolytes and took meds. I'm still in bed. Fuck me and my day I guess. #visibleapp #chronicillness
Ooo, I’ll have to watch this later when I can think. I take that questionnaire every month as part of monitoring my symptoms through the #visibleapp
Did any #VisibleApp users need a YouTube video to work out how to remove the monitor from the strap? 🤔
(The reset ones are useful though)
Just looked at my #visibleapp heart rate graph for today & could easily see every time I sat up or spoke - so, I guess it’s lay down & stfu time.
Having broken autonomic bits sucks
#neisvoid
Did #VisibleApp change how they calculate pace points? It used to be 0.5 pt for each minute in exertion, 1pt/minute in over-exertion. I just had a 9 min spell in over exertion and it gave me 0.9pts 🤔
This would explain why the points I earn each day suddenly seemed lower than expected. #MECFS
Today I’m stuck in bed, but I was able to think a bit so I opted to look at Bluesky & my News feed. Within 10mins my #visibleapp was going off & my vision was starting to go.
I’m VERY grateful for the folk who can fight the good fight, I can’t even read about it right now 🤬
#neisvoid
This isn’t a surprise after what’s been going on with the kids, but damn, it’s not welcome, either
#pwme #longcovid #visibleapp
I’m just entering a crash I kinda chose, so I’m not fully here - I have the app & armband & it made a huge difference for me in a lot of ways, some I really didn’t expect. The pacing help is really useful.There are a few folk use #visibleapp & share stuff about it on here.
Morning Stability 1 Out of Balance Be kind to yourself today. Your body needs rest to get back to baseline.
Mild rant:
By request I send my #visibleapp morning check-in to our household group chat. I live w/my spouse & our 3 adult sons. I thought they all understood what PEM is, but judging by today’s questions our sons haven’t heard anything we’ve said about it. I’m trying not to be bummed.
#neisvoid
Has anyone else with #longcovid who uses the #visibleapp noticed a surprising reduction in their #hrv scores since the last software update (around 25.4 25)? I'm trying to workout whether my condition has deteriorated or something has changed in the way the #visible app calculates hrv.
