#PvFS

ME Association

@meassociation.org.uk

1 month ago

IMAGE DESCRIPTION: Photo of a woman sat up in bed, in her pyjamas, on a phone call. Wording reads: "I'm so appreciative of having someone listen with empathy and be able to give me support." MEA logo.

ME Connect (helpline & email service) is available via our freephone number to offer support and information.

Call us on 0808 801 0484

You can also email us at meconnect@meassociation.org.uk

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #PVFS #LongCovid #Helpline #MEConnect

Royal Free 1955

@rfh1955.bsky.social

1 month ago

The Observer, UK.
5th February 1989.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice #pvfs

ME Association

@meassociation.org.uk

1 month ago

IMAGE DESCRIPTION; Photo of a young woman sat in bed on her phone. Wording reads: "I was so happy to talk to someone who understands the condition". MEA logo.

Call or email ME Connect for free, confidential support, information, and signposting.

0808 801 0484
meconnect@meassociation.org.uk

https://meassociation.org.uk/me-connect/

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #PVFS #LongCovid #Helpline #MEConnect

ME Association

@meassociation.org.uk

2 months ago

Opening times:
Monday to Friday: 10 a.m. - 6 p.m
Thursday: Late night until 9pm
Saturdays: 10 a.m. - 12 noon.

#MyalgicEncephalomyelitis #PVFS #LongCovid

ME Association

@meassociation.org.uk

3 months ago

Opening times:
Monday to Friday: 10 a.m. - 6 p.m
Thursday: Late night until 9pm
Saturdays: 10 a.m. - 12 noon.

#MyalgicEncephalomyelitis #PVFS #LongCovid

ME Association

@meassociation.org.uk

3 months ago

Phoneline opening times:
Monday to Friday: 10 a.m. - 6 p.m
Thursday: Late night until 9pm
Saturdays: 10 a.m. - 12 noon

#MyalgicEncephalomyelitis #PVFS #LongCovid

Colin-Roy Hunter aka criquaer

@criquaer.bsky.social

3 months ago

A brief, comprehensive measure of post-exertional malaise Aim: Post-exertional malaise (PEM) has been a challenging construct to measure, particularly with self-report instruments, which have the benefits of being less expensive and less invasive than c

#PEM #LeonardJason #DSQPEM2 #Questionnaire

#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI #ELC

Via Tom Kindlon's ME CFS & related page: News, Research and more on f/b.

www.explorationpub.com/Journals/ent...

ME Association

@meassociation.org.uk

5 months ago

IMAGE DESCRIPTION: Photo of a young woman sat in a bed, texting on her phone. Wording reads: ME Connect: We're here for you. We understand ME/CFS/LC/PVFS. If you need help or want to talk, contact us. 0808 801 0484. meconnect@meassociation.org.uk Logos of Facebook, X, and Instagram. MEA logo.

ME Connect helpline: 0808 801 0484. Mon–Fri 10am–6pm (Thu till 9pm), Sat 10am–12pm.
DM us on Instagram, Facebook, X, or email meconnect@meassociation.org.uk
for support/info.

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #PVFS #LongCovid #Helpline #MEConnect

ME Association

@meassociation.org.uk

6 months ago

IMAGE DESCRIPTION: Photo of a man sat on his sofa, texting on his phone. Wording reads: ME Connect: We're here for you. We understand ME/CFS/LC/PVFS. If you need help or want to talk, contact us. 0808 801 0484. meconnect@meassociation.org.uk Logos of Facebook, X, and Instagram. MEA logo.

*Open late tonight until 9pm*

ME Connect helpline: 0808 801 0484.

Support via phone, DM (Insta/Facebook/X) or email meconnect@meassociation.org.uk

Hours: Mon–Fri 10–6, Thu until 9, Sat 10–12

#pwME #MECFS #LongCovid #PVFS #Helpline

ME Association

@meassociation.org.uk

6 months ago

IMAGE DESCRIPTION: Photo of a young woman sat on a bed, texting on her phone. Wording reads: ME Connect: We're here for you. We understand ME/CFS/LC/PVFS. If you need help or want to talk, contact us. 0808 801 0484. meconnect@meassociation.org.uk Logos of Facebook, X, and Instagram. MEA logo.

*Open late tonight until 9pm*

ME Connect helpline: 0808 801 0484.

Support via phone, DM (Insta/Facebook/X) or email meconnect@meassociation.org.uk

Hours: Mon–Fri 10–6, Thu until 9, Sat 10–12

#pwME #MECFS #LongCovid #PVFS #Helpline

ME Association

@meassociation.org.uk

6 months ago

Hope 4 ME & Fibro: QUB Nursing Students Learn About Long COVID & M.E. 

Nursing students at Queen's University Belfast heard from Rebecca Logan about her lived experience.

https://tinyurl.com/4u5zvuuh

#LongCovid #PVFS #PostCovid #PostCovidSyndrome #QUB #NursingStudents

ME Association

@meassociation.org.uk

6 months ago

Exploration of Intersections and Divergences of Long COVID and Chronic Fatigue Syndrome Background: Fatigue is the most common symptom of Long COVID (LC), defined by persistent or newly emerging symptoms that develop at least three months after an initial SARS-CoV-2 infection, in the absence of other identifiable cause. This study investigates the prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) as a potential comorbidity of LC. Methods: The study enrolled 37 adult controls with no documented SARS-CoV-2 infection and 32 individuals with a history of infection, categorized as LC-yes (with LC symptoms) and LC-no (without LC symptoms). ME/CFS diagnosis was based on the International Consensus Criteria (ICC). Results: Among LC-yes cases, the most frequently reported symptoms included post-exertional malaise (PEM); neurosensory, perceptual, or motor disturbances; cognitive impairment; sleep disturbances; pain; impaired thermoregulation; and flu-like symptoms, all occurring significantly more than in the LC-no or control groups. All individuals in the LC-yes group reported PEM. ME/CFS was diagnosed in three LC-yes cases (18.8%), one LC-no case (6.7%), and four control subjects (10.8%), with no statistically significant differences observed among groups. Experiencing more than six symptoms during acute infection, such as fatigue, loss of taste or smell, headache, fever, cough, myalgia, sore throat, shortness of breath, rhinorrhea, and diarrhea, was associated with a twofold higher risk of developing LC. Conclusion: A substantial proportion of LC-yes individuals experienced PEM; neurosensory, perceptual, or motor disturbances; cognitive impairment; and sleep disturbances, with rates significantly exceeding those in the LC-no and control groups. Nevertheless, only a minority of LC-yes cases (18.8%) satisfied criteria for the ME/CFS, and the prevalence did not significantly differ from LC-no and controls. These findings suggest that while many symptoms of LC overlap with those of ME/CFS, only a subset of LC cases meet established ME/CFS diagnostic criteria.

Cureus: Exploration of Intersections and Divergences of Long COVID and Chronic Fatigue Syndrome 

A study which looked into the prevalence of (ME/CFS) as a potential comorbidity of Long Covid.

Read more: https://tinyurl.com/4urkmzkv

#mecfs #pwME #LongCovid #PostCovid #PostCovidSyndrome #PVFS

ME Association

@meassociation.org.uk

6 months ago

IMAGE DESCRIPTION: Photo of a man sat on his phone. Wording reads: ME Connect: We're here for you. We understand ME/CFS/LC/PVFS. If you need help or want to talk, contact us. 0808 801 0484. meconnect@meassociation.org.uk Logos of Facebook, X, and Instagram. MEA logo.

ME Connect helpline & message service – free support/info

0808 801 0484.

DM us on Instagram, Facebook, X or email meconnect@meassociation.org.uk

Open Mon–Fri 10–6, Thu till 9, Sat 10–12.

#pwME #MECFS #MyalgicE #PVFS #LongCovid #Helpline #MEConnect

ME Association

@meassociation.org.uk

7 months ago

IMAGE DESCRIPTION: Photo of a woman lying on a sofa with a blanket wrapped around her, on a phone call. Wording reads: ME Connect: We're here for you. We understand ME/CFS/LC/PVFS. If you need help or want to talk, contact us. 0808 801 0484. meconnect@meassociation.org.uk Logos of Facebook, X, and Instagram. MEA logo.

ME Connect (helpline & message service) is available via our freephone number to offer support & info

You can also direct message us via Instagram, Facebook & X (formerly Twitter), or email us at meconnect@meassociation.org.uk

* Freephone number - 0808 801 0484 *

#MECFS #MyalgicE #PVFS #MEConnect

ME Association

@meassociation.org.uk

8 months ago

IMAGE DESCRIPTION: Photo of a young woman on the phone. Wording reads: ME CONNECT: We're here for you. 0808 801 0484. meconnect@meassociation.org.uk

ME Connect (helpline & message service) is available via our freephone number (0808 801 0484) to offer support & info. You can also direct message us via Insta, Facebook & X, or email us: meconnect@meassociation.org.uk

#MECFS #MyalgicE #MyalgicEncephalomyelitis #PVFS #LongCovid #Helpline #MEConnect

Tom Kindlon

@tomkindlon.bsky.social

9 months ago

3/

I had been taking a lower dose for a number of years but then read of one or more trials on post viral fatigue syndrome of higher doses.

#PVFS

ME Association

@meassociation.org.uk

9 months ago

ME Connect is available via our freephone number to offer support & info

** Freephone number - 0808 801 0484 - Lines open now**

Opening times:

Mon - Fri 10:00 - 18:00 (Late night opening on Thursuntil 21:00)
Weekends (Sat & Sun) 10:00 - 12 noon.

#MyalgicEncephalomyelitis #PVFS #Helpline

Tom Kindlon

@tomkindlon.bsky.social

9 months ago

Virology Journal Causal relationship between immune cells and post-viral fatigue syndrome: a Mendelian randomization study — Wang et al. "Among the features of B cells, we identified five that are associated with an increased risk of PVFS, suggesting their potential role as risk factors. Notably, the upregulation of CD24 on CD24+ CD27+ cells stands out with a significant OR of 1.795."

"Among the features of B cells, we identified five that are associated with an increased risk of PVFS, suggesting their potential role as risk factors."

virologyj.biomedcentral.com/articles/10....

Screenshot from the Science for ME weekly update

#MEcfs #PVFS

1/

ME Association

@meassociation.org.uk

9 months ago

IMAGE DESCRIPTION: Photo of a young woman on her phone. Smaller photos of other people answering their phones. Wording reads: ME Connect: Here for you. MEA logo bottom right.

ME Connect is available via our freephone number to offer support & info

** Freephone number - 0808 801 0484 - Lines open now**

Opening times:

Mon - Fri 10:00 - 18:00 (Late night opening on Thursuntil 21:00)
Weekends (Sat & Sun) 10:00 - 12 noon.

#MyalgicEncephalomyelitis #PVFS #Helpline

Tom Kindlon

@tomkindlon.bsky.social

9 months ago

3/

“Through a large-scale online survey and clinical assessments, this research aims to estimate risk, prevalence, and severity of Long COVID.”

#PVFS #PostCovid #CFS

Becc DishDawg

@yondishdawg.bsky.social

10 months ago

So this ME crap is properly kicking my ass physically and mentally. It's stressing me out badly now.
Got some resources and guided meditation but it feels largely like a losing battle.
#ME #CFS #PVFS

Royal Free 1955

@rfh1955.bsky.social

1 year ago

The Observer, UK. 5th February 1989. #cfsme #mecfs #myalgicencephalomyelitis #myalgice #pvfs

Irish ME/CFS Association

@irishmecfsassoc.bsky.social

1 year ago

April 8, 2025: Educational event for GPs: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS"

GP Educational Webinar on #PVFS and ME/CFS

Dr Ros Vallings, a New Zealand GP who is an expert on ME/ #CFS, will present a free talk followed by a Q&A session on Tuesday, April 8 7:30 PM for just over one hour.

irishmecfs.org/blog/april-8...

#MyalgicE #PostViralSyndrome #MedEd #CFSME #MEcfs

Barbi

@jksbluewhisper.bsky.social

1 year ago

Sounds
JUUUUST like
having #MECFS too!!!
Oof. 🔋 😷 😴

#MyalgicEncephalomyelitis #ME #CFS #pwME #EBV #LongCOVID #PVFS
#Mitochondria
#Disabled #Disability #Spoonie #ChronicIllness
#NEIS #NEISvoid

Tom Kindlon

@tomkindlon.bsky.social

1 year ago

Long COVID facts and findings: a large-scale online survey in 74,075 Chinese participants This survey provides valuable insights into long COVID situation among Chinese residents, with 10%–30% (including repeated infection) reporting symptoms. Monitoring at-risk individuals based on identi...

Long COVID facts and findings: a large-scale online survey in 74,075 Chinese participants

www.thelancet.com/journals/lan...

“most frequent #longCOVID symptoms include fatigue (30.53%), memory decline (27.93%), decreased exercise ability (18.29%), and brain fog (16.87%)”

#PASC #PVFS #PwLC

Tom Kindlon

@tomkindlon.bsky.social

1 year ago

2/

"Preexisting psychiatric conditions did not significantly modify the risk of postacute fatigue symptoms."

#LongCovid #PVFS #Fatigue #ChronicFatigue

Tom Kindlon

@tomkindlon.bsky.social

1 year ago

Screenshot of abstract

New from Germany:
Post-viral symptoms & conditions are more frequent in COVID-19 than influenza, but not more persistent

Free
bmcinfectdis.biomedcentral.com/articles/10....

"Research should focus on the development of effective treatments for post-viral symptoms"
#PVFS #LongCovid #MEcfs #CFS #PwME

Tom Kindlon

@tomkindlon.bsky.social

1 year ago

2/

"Despite reporting chronic fatigue and achieving 10% less expected 6-minute walking distance compared to controls, PASC participants showed no apparent differences in muscle size or strength.”

#LongCovid #PASC #PVFS

Tom Kindlon

@tomkindlon.bsky.social

1 year ago

Screenshot of abstract

New from Germany
"Predictors of Postviral Symptoms Following Epstein-Barr Virus-Associated Infectious Mononucleosis in Young People"

www.medrxiv.org/content/10.1...

"A clinical history of immune dysregulation [&] distinct severe IM symptoms might predict protracted post-viral disease"
#PvFS #MEcfs

Tom Kindlon

@tomkindlon.bsky.social

1 year ago

2/

This article summarises the literature on post-viral symptoms during past pandemics and supplements and illustrates it with Swiss examples from the pandemics of 1890, 1918–1920 and later.

#PVFS #MEcfs