Latest posts tagged with #sJIA on Bluesky
International Day of Women and Girls in Science: An interview with Calleigh Pritchett
"Knowing the odds my parents were given when I was first diagnosed, I feel incredibly grateful to be able to do the things I love today."
www.jarproject.org/news/2026/id...
#IDWGS #IDWGS26 #JIA #ThinkJIA #SJIA
This study uncovers a novel CD14+#CXCL10+ #Monocyte subset driving #sJIA activity/recurrence & also identifies UBE2D1 as a key upstream modulator of NLR signaling, opening avenues for #Biomarker-guided monitoring & #TargetedTherapy. #medsky
#OpenAccess: www.sciencedirect.com/science/arti...
Happy to have been included in the INTO-HLH registry newsletter representing a #raredisease & #SJIA #rheum #rheumsky
Find out more about us on our main website at www.jarproject.org where you'll also find links to our #ThinkJIA campaign site and our Still's disease resources. #sJIA #Stillsdisease
If you can help us in any way, we'd love to hear from you (get in touch via our website)
Thank you!
Today on our website we are sharing Lily's powerful #SystemicJIA story.
Lily poignantly tells her story of going through the experience of MAS as well as learning to live with Still's disease.
You can read Lily's story at www.jarproject.org/stories/lily
#JIA #ThinkJIA #SJIA #stillsdisease #MAS
We had an incredible few days at #BSR25 in Manchester!
Our amazing volunteers – Richard, Michelle, Caelan & Suruthi – connected with rheumatology teams, sharing our work on #Stillsdisease & #JIA, and championing the patient voice in care. More at www.jarproject.org/news/2025/bs...
#ThinkJIA #Sjia
Richard presenting our work on the development of our new #StillsDisease resources at #BSR25
Find out more on our dedicated Still's disease website at www.stillsdisease.uk
#sjia #thinkJIA #Rheumatology
Also happening today at #BSR25, we'll be presenting our new Still's disease resources both as a poster presentation in the morning (Screen 10 at 10.30am) and also as a talk at 12.40pm on Stage 2.
#Stillsdisease #sJIA #SystemicJIA #JIA #NewResources #BSR2025 #ThinkJIA
#SJIA is what my daughter has. We almost lost her 3 times. My heart goes out to Declan and his family. #SJIA is a world destroyer. Thank you, Bradley Cooper for making Declan’s world better. Thank you for bringing awareness. Fly Eagles, Fly.
We’ll be walking this year to support the #arthritisfoundation to raise funds and awareness for #sjia and #rarediseases Link in bio to join/support us for the Boston walk.
Don’t miss out our poster tomorrow!
A systematic review on the currently collected data in #sJIA and #Stills.
A joint effort from @carrainc and #PReS to develop a core set of outcomes to be used on research going forward! 😄
#ACR24
acrabstracts.org/abstract/rep...
Super excited for the beginning of the NextGen Therapies for #SJIA and #MAS meeting!
Opening lectures today discussing the role of #IL18!
www.systemicjia.org/nextgen24/
A photo of a rocky coastline in Acadia National Park in Maine. The sky is overcast and the forested area in the distance is changing to autumn colors.
I also talk regularly about my own health, and particularly
- #AuDHD
- #hEDS
- #MCAS
- #SJIA (Still's Disease)
- #cPTSD
- #Migraine
- #Psoriasis
- #Dysautonomia (specifically Orthostatic Hypertension, which is similar to POTS but causes an increase in BP)
- #Asthma
- #ChronicPain
It's been 12 years since my friend Laura died, and it'll always feel like there's a chunk of me missing without her.
I'm just grateful that her death helped open up convos about how #SJIA and other arthritis types can have fatal consequences.
