Latest posts tagged with #AutonomicDysfunction on Bluesky
This case showed early PVC improvement with EAT, followed by delayed cognitive recovery. Does this change how you think about autonomic dysfunction in Long COVID?
Read more: www.cureus.com/articles/455...
#Cureus #COVID #AutonomicDysfunction #Cardiology #MedSky
and rested. Taking the time to counter every "but you should be doing..." with a gentle "No, I should be resting so that tomorrow I will be able to do it without sacrificing my health. My rest today is a vital part of getting it done."
#Fatigue #Pacing #PoTS #AutonomicDysfunction
the right words or accidentally coming across as aggressive or demanding.
They are from my website www.stickmancommunications.co.uk/product-page...
#Crutches #HiddenDisability #AutonomicDysfunction
Heat intolerance card with plain border and a stickman keeled over in the sun, and another happy and upright with 3 snowflakes. "Severe heat intolerance. When too warm I may have difficulty speaking, become sleepy, confused, or lose consciousness - even in temperatures most people find comfortable. It is not life threatening, just inconvenient. If needed, please help me to somewhere cooler (e.g. outside, near an open windown, or fetch an ice bucket or handy snow-storm). Normal service will resume once I cool down.
One hidden challenge of #AutonomicDysfunction is heat intolerance - the body can't cope with being too warm, and it causes all sorts of symptoms (for me: brain fog, coordination loss, speech and word finding difficulties, and reduced consciousness). It often catches me by surprise in winter. -
#MyalgicEncephalomyelitis #MEAction
#HealthEquity
#PremenstrualDysphoricDisorder
#MastCellActivationSyndrome
#hEDS
#Nightingales
#UnexplainedWeightLoss #SaveLizNevra #MillionsMissing #TimeForUnrest #Dysautonomia #autonomicdysfunction
Check out the October issue of the BJA #miniflipbook with articles on: #GDT #goaldirectedtherapy #AI #prehab #autonomicdysfunction #transfusion #criticalcare #regionalanaesthesia #ketamine #safety #pain
https://ow.ly/gzSX50XcLcT
Check out the October issue of the BJA #miniflipbook with articles on: #GDT #goaldirectedtherapy #AI #prehab #autonomicdysfunction #transfusion #criticalcare #regionalanaesthesia #ketamine #safety #pain
https://ow.ly/gzSX50XcLcT
Check out the October issue of the BJA #miniflipbook with articles on: #GDT #goaldirectedtherapy #AI #prehab #autonomicdysfunction #transfusion #criticalcare #regionalanaesthesia #ketamine #safety #pain
https://ow.ly/gzSX50XcLcT
No for a reason card with plain border and a stickman with hand held weighing scales, that have 'benefits' one side (with a small green bag in) and a much heavier big purple sack in the 'cost' side, also labelled increased symptoms, worsened health, inability to do other tasks. Text: When I say no, it’s because I’ve considered the options and consequences. Please respect my decision. If you don’t understand it, there may be factors you aren’t fully aware of.
card with rainbow striped border, and a seated stickman with a clenched hand and swirly eyes. Text "I have a seizure disorder. Don't panic, Seizures are a part of my life. Please see the back of this card for what to do if I have a seizure.
"To do or not to do? Pacing and activity decision chart." A flowchart with 4 boxes and appropriate arrows between them, ending with either "Let's do this" or "Best not. It may be okay to do this in emergencies or special occasions, but not for routine tasks." Box 1: "Given current symptoms, will I be able to complete the task. Box 2: Will it cause a significant increase in pain/fatigue/other symptoms?** Box 3: Do I have enough recharge time between it and when I next need to function?" Box 4: Can I make it more manageable by - splitting the task into smaller sections? - Using an adpatation or aid to make it easier? - Asking for help with challenging parts of the activity? - Having an exit strategy if it turns out to be too much?". Footnotes: A simplified version. This process varies between individuals. ** Activity often aggravates symptoms. It's not about avoiding symptoms, but trying to keep them manageable. Trial and error is required to find this level, and it can change over time.
3/3 And some more... #PoTS #AutonomicDysfunction #Dysautonomia from www.stickmancommunications.co.uk/autonomic-dy...
Heat intolerance card with plain border and a stickman keeled over in the sun, and another happy and upright with 3 snowflakes. "Severe heat intolerance. When too warm I may have difficulty speaking, become sleepy, confused, or panicky, or lose consciousness - even in temperatures most people find comfortable. If needed, please help me to cool down. See the back of this card for things that will help. Normal service will resume once I cool down.
Card with striped border and a stickman with fog for thoughts, standing like a zombie. Text: "Warning: Severe brain fog. Currently in 'Zombie with head full of cotton wool mode. I may struggle to remember or understand what I'm told, or to make my self understood. If it isn't an emergency please try later."
difficulty speaking card with plain border and 2 stickmen having a chat, with text "I find speaking difficult. Please give me time to say what I want to say. I'll let you know if I need help with it."
Card with stickman chained to the sofa. Text: I have a condition which causes fatigue - debilitating exhaustion that can affect mobility, strength, memory, concentration, speech, digestion and more. Symptom levels vary a lot. Recovering from doing too much can take days or weeks. I may look fine even when I'm not. I may need to do things differently. Living with this is my normal.
2/3 And some more... #PoTS #AutonomicDysfunction #Dysautonomia from www.stickmancommunications.co.uk/autonomic-dy...
Card with purple border, that says "I have autonomic dysfunction. My autonomic system is faulty, affecting: breathing, heart rate (HR) blood pressure (BP), digestion, temperature control, sweating, “fight or flight”, bladder, bowel, and more. This can cause many symptoms including abnormal BP/HR, dizziness, fainting, tremors, fatigue, pain, brain fog, and breathing and digestive problems. Symptoms are variable and may be made worse by anything affecting this system, including: eating, standing, sitting up, reaching up or bending, temperature changes, bright lights, loud noises, and stress. There is no known cure for my type of autonomic dysfunction, it is my normal."
Card with striped border and dizzy stickman sat on the floor. "I have postural orthostatic tachycardia syndrome (PoTS). My autonomic nervous system is faulty so my blood flow and heart rate don't adjust well to postural changes or heat. It can cause brain fog, fatigue, weakness, and affect vision and digestion too. I may faint or become semiconscious. I can't stand for long, I fidget. It is not life threatening by may mean I suddenly need to sit or lie down. (see the back of this card for more info on my symptoms and management)
Card with stickman with ball and chains to ankles and wrists, stuck on a sofa looking exhausted. test "My fatigue is currently severe. I must rest to manage my symptoms. Fatigue is affecting my ability to think, speak, eat, and control my muscles, I cannot concentrate, make decisions, or move about safely. Even sitting may worsen symptoms." Copyright Stickman Communications 2025.
Lying down card with striped border, reading: Sometimes I lie down to manage a medical condition. Don't worry. It may be unconventional but means I can manage symptoms and do things I otherwise wouldn't be able to. It is my normal."
1/3 As it is #AutonomicDysfunction awareness month, here are some of our cards that explain some of the practical realities of living with #AutonomicDysfunction, including #PoTS:
"Card with striped border, that says ""I have autonomic dysfunction. My autonomic system is faulty, affecting: breathing, heart rate (HR) blood pressure (BP), digestion, temperature control, sweating, “fight or flight”, bladder, bowel, and more. This can cause many symptoms including abnormal BP/HR, dizziness, fainting, tremors, fatigue, pain, brain fog, and breathing and digestive problems. Symptoms are variable and may be made worse by anything affecting this system, including: eating, standing, sitting up, reaching up or bending, temperature changes, bright lights, loud noises, and stress. There is no known cure for my type of autonomic dysfunction, it is my normal."""
I've always found it really hard to explain #AutonomicDysfunction in everyday life without it just getting too complicated, longwinded, or missing things.
So here's a card that explains it for us!
They arrived today, and are now in our shop, www.stickmancommunications.co.uk/autonomic-dy...
Journal of Clinical Medicine: Autonomic Dysfunction in ME/CFS
"ME/CFS patients exhibit a substantial autonomic symptom burden that correlates with greater illness severity."
Read more: https://meassociation.org.uk/3bxu
#MECFS #pwME #MyalgicE #PoTS #Dysautonomia #AutonomicDysfunction
And a Medical Matters post where Dr Shepherd explains a bit more about what Dysautonomia is: meassociation.org.uk/medical-matters/items/dy...
#Dysautonomia #AutonomicDysfunction #POTS #OI
She Wasn’t Just Blushing—Her Body Was Spiraling Out of Control
Subscribe to read more on www.pouringpotions.com
#Erythrophobia #Hyperpyrexia #RareDisorders #MedicalReels #MindBodyConnection #PsychosomaticSymptoms #FlushingDisorder #AutonomicDysfunction #SomaticAnxiety
Who else finds they have strategies that help manage their health conditions, but periodically forget them? I've just re-remembered that working on my laptop from lying down instead of sitting *massively* helps my #PoTS #AutonomicDysfunction management! (I may have ADHD, which might be a factor)
recharging card, with a striped border and an utterly exhausted, cross eyed stickman and text "Sometimes I need to push myself so I can do more, and other times I need to recharge, Right now I need to recharge. Don't worry, I am looking after myself and will be ready to face the world again soon"
One problem with heat waves is that they are unrelenting for the duration -This means that if you have a heat-sensitive condition (like #autonomicDysfunction, #PoTS #MS, #ME etc) it isn't possible to actually recharge from the energy drain and symptom increase caused until -
Stickman hiding in bed, and text "My awesome is on strike. Negotiations for its return are in progress."
This. As my functioning returns, so will my awesome. In the meantime, please expect nothing of me! #PoTS #AutonomicDysfunction - not coping with this heat! Doing everything I can to get through it safely.
card from www.stickmancommunications.co.uk/product-page...
We're heading for a heatwave where I am - temperatures that will have a huge impact on my #PoTS and #AutonomicDysfunction symptoms. So here's a blog with a few of my top tips for coping in the hot weather:
www.stickmancommunications.co.uk/post/tips-fo...
Heat intolerance card with striped border and a stickman keeled over in the sun, and another happy and upright with 3 snowflakes. "Severe heat intolerance. When too warm I may have difficulty speaking, become sleepy, confused, or panicky, or lose consciousness - even in temperatures most people find comfortable. If needed, please help me to cool down. See the back of this card for things that will help. Normal service will resume once I cool down. Copyright stickman communications 2024
As the weather shifts towards summer, please remember that #PoTS and #AutonomicDysfunction mean we don't just feel hot and sticky and meh during hot weather - we may stop being able to function. (card from www.stickmancommunications.co.uk/product-page... )
Transcranial doppler waveforms from the paper https://pubmed.ncbi.nlm.nih.gov/40445535/
Something borrowed: The brain shock index
pubmed.ncbi.nlm.nih....
#CCI #EDS #POTS #OI #BSI #IntracranialHypertension #TranscranialDoppler #Neurovascular #Dysautonomia #Capnography #AutonomicDysfunction #CerebralBloodFlow #Hypermobility #ChronicIllness
1/10
Transcranial doppler waveforms from the paper https://pubmed.ncbi.nlm.nih.gov/40445535/
Alles nur „geklaut“: The brain shock index
pubmed.ncbi.nlm.nih....
#CCI #EDS #POTS #OI #BSI #IntracranialHypertension #TranscranialDoppler #Neurovascular #Dysautonomia #Capnography #AutonomicDysfunction #CerebralBloodFlow #Hypermobility #ChronicIllness
1/10
#BipolarDisorder: "Bipolar disorder is more prevalent in #EDS, potentially linked to #AutonomicDysfunction and chronic stress." - EDS.clinic
🩵🦓🩵 The founder of The Zebra Alliance Community has BP1D (and DID).
#dysautonomia #bipolar1disorder #mentalhealth #ehlersdanlossyndrome #chronicillness
Wearable heart rate variability monitoring identifies autonomic dysfunction and thresholds for post-exertional malaise in Long COVID www.medrxiv.org/content/10.1... Rob Wüst et al. 🇳🇱 #HRV #PEM #AutonomicDysfunction #LongCOVID #ME/CFS
5/5
#Hypermobility #AutonomicDysfunction #Neurodivergence #Fatigue #ChronicPain #HiddenDisability
This card is from https://buff.ly/42VqWIp
That’s on #chronicilness & #autoimmunedisorders
Like… what do you mean doc— heart rate of 180bpm while I’m just chilling really isn’t normal?? Back pain that never stops? Who woulda thunk.
#ankylosingspondylitis #autonomicdysfunction #axialspondyloarthritis #axSpA
Check whether you have any #POTS #dysautonomia by looking at your heart rate and blood pressure & do an active stand if safe/possible
www.potsuk.org/pots-for-med...
#LongCOVID #POTS #PwME #MECFS #PEM #PESE #autonomicdysfunction
One of my theories about treating those of us with #ehlersdanlos and #neurodivergence is we need a practice to regulate our #autonomicdysfunction because it affects our physical and mental systems. #mcas #chronicpain #stress #pots #autisticzebra #hypermobility #autism #heds #hackinghypermobility
