Latest posts tagged with #bedbound on Bluesky
Thank you Herrera for the kind review!
Families often struggle when a loved one is #bedbound or unable to travel for care. #UrgentCare2Go provides #mobileurgentcare delivered directly to homes, hotels, or workplaces so patients can receive #treatment wherever they are! Know someone who can use us?
This thread contains things for my fellow #ChronicallyIll and #bedbound folks to do to resist this regime,
AND it contains links to buy protective equipment for people on the ground facing off against ICE agents who deploy chemical weapons and use "less lethal" rounds.
CW: #EndOfLife
.
“I’m completely #bedbound with #carers looking after me night & day. I am unable to feed myself or do anything for myself aside from some work on the phone with a semi-functional left hand" - you will be missed, Sam 😔 buff.ly/jC4cn0V
by Mymedmusings
#palliative
**Premium OF**
Bedbound life is hard, but I have to admit knowing that if I toss my belly the rest of me follows is hot 🐽
Full video on OF
#MegaChub #Chub #SuperChub #FatPositive #BodyPositive #BedBound #Gainer
#bedbound #activists
can & should
#wittness & #document #ameriKKKlan #crimes
for future #world #court #trials
#trump #vance #jdvance #maga
Wound Care & What to Wear After Knee Surgery. (A rack of knitted long sleeve tops are hung on a clothes rack neatly beside a bed.)
"if you’re a female who gets #periods, using disposable overnight panties or period underwear can save a lot of hassle and worries as you lay in bed all day long.": buff.ly/NOtMJSl
#accessible #adaptive #WomensHealth #bedbound
Not to worry. It's OK. I finally escaped and got my badly needed a.m. coffee.
#trapped
#bedbound
#bskycats
#theheavycat
#essentialdawnsnuggles
#headskritchers
Like a Fallen Feather What if the ableism heaped higher the sicker we become, figments of a poisoned imagination suffocating our own, this anchor of shame not ours to carry, what if – for even just this moment – we released it completely? What if we could hold the disabled parts of ourselves in our own two hands the way one holds a fallen feather? Its soft, delicate lightness born on this wing to rise or when wounded to rest in the warm shelter of the nest as long as need be, dreaming of the demise of a culture that wishes, quickens our own, reborn as a community of care, where pain is seen and tended, not hidden and held alone, where the body is not a tool but a keeper of wisdom not meant to die untold, unheard.
Today is Severe ME Day. A poem imagining a world free of the ableism that compounds the trauma of this dreaded illness.
#SevereMEday #pwME #MECFS #SevereME
#ableism #bedbound
#MEAwareness #bigpain #SmallFiber
#POTS
#MyalgischeEnzephalomyelitis #ChronischKrank #MECFSAwarenessday #GradDerBehinderung #Pflegestufe #HouseBound
#bedbound #schmerzenlindern
![[ID: Calculating
I’m so tired of calculating.
Whether I can walk across
a room or to the doorway
to smell fresh air
for the first time in days,
to feel summer on my face.
Whether I can listen
to five minutes of an audiobook
without drowning in malaise.
I’m so tired of calculating
every thought. Should I even
be writing a poem right now?
Shouldn’t I be resting
in silent darkness? I spend
most of my ever-drained battery
on medical appointments,
fighting insurance companies,
trialing new drugs and riding
waves of side effects.
I’m so tired of calculating
just to ration for small, fleeting
moments, moments that sometimes
resemble joy. Like the butterfly
dancing with wind out my window,
or the finch singing
unseen in a nearby tree.
I’m so tired of calculating.
I miss the luxury of living.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:bttrftwrlwjbbep2dtwdz4en/bafkreify5cbf24zh2eomogyjcfybzscu4hy3yhcc6hfbapvuwbyfm3w6la)
[ID: Calculating I’m so tired of calculating. Whether I can walk across a room or to the doorway to smell fresh air for the first time in days, to feel summer on my face. Whether I can listen to five minutes of an audiobook without drowning in malaise. I’m so tired of calculating every thought. Should I even be writing a poem right now? Shouldn’t I be resting in silent darkness? I spend most of my ever-drained battery on medical appointments, fighting insurance companies, trialing new drugs and riding waves of side effects. I’m so tired of calculating just to ration for small, fleeting moments, moments that sometimes resemble joy. Like the butterfly dancing with wind out my window, or the finch singing unseen in a nearby tree. I’m so tired of calculating. I miss the luxury of living.]
A poem about the simplicity of life that I miss.
#longcovid #mecfs #severeme #bedbound #millionsmissing #grief #covidisnotover #loss #chronicillness #chronicillnesscommunity #poetry #poetrycommunity
**OF and JFF**
I love exploring my massive FatPad and I think of a few views for you to play with it .
#MegaChub #SuperChub #Chub #Belly #FatPad #Gainer #BedBound #BodyPositive #FatPositive
![[ID: A poem titled “Severed”
Severed
Exiled
by a living
death disease,
to a bed
where trees
go unseen,
waves of wind
unfelt,
birdsong
unheard.
Even silence rings
in my ears
like howling
grief echoes
in this cave
so dark
I mistake
its walls
for skin.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:bttrftwrlwjbbep2dtwdz4en/bafkreif2zvzwl4yqwn2xf3wdfzxsabgab5ikrtmgbxbbot253ofsjm3wbq)
[ID: A poem titled “Severed” Severed Exiled by a living death disease, to a bed where trees go unseen, waves of wind unfelt, birdsong unheard. Even silence rings in my ears like howling grief echoes in this cave so dark I mistake its walls for skin.]
New poem in Bed Zine. The loss of meaningful connection to nature is amongst the cruelest parts of this illness.
#LongCovid #MECFS
#Bedbound #SevereME
#LiegendDemo #MECFS #PostCovid #PostVac #LongCovid #Anerkennung #Forschung #Versorgung #Barrierefrei #Demonstration #MEAwareness #bigpain #SmallFiber #POTS #MyalgischeEnzephalomyelitis #ChronischKrank #MECFSAwarenessdays2025 #GradDerBehinderung #Pflegestufe #HouseBound
#bedbound
“For people living with [ #ChronicIllness]..extended time in bed isn’t a break, but a #medical necessity..When #influencers romanticize #bedbound living with soft lighting & pastel aesthetics, they risk trivializing these serious realities": buff.ly/2tMy8Vd
via @psychologytoday.com
#awareness
Tablett mit Besteckeinsatz und VIMPELFISK von Ikea mit Getränkeflaschen, Handyständer, Schlafmaske und allerlei Krimskrams gefüllt.
Überbetttisch mit Notebook, Monitor, Zeichentablet, Lampe, Kopfhörer, Lautsprecher und Playstation.
#MEAwarenessHour
Zeigt mal eure selbst ausgedachten Tools und Gadgets, um möglichst energiesparend den Alltag zu bewältigen. Vielleicht sind gute Ideen für die anderen dabei.
Ich fange an mit #bedbound und trotzdem gut organisiert. Denn #Pemistnichtverhandelbar!
#Liegenddemokoeln
11. Mai 2025 in #Koeln
und vielen weiteren Städten vom
10. - 12. Mai 2025.
Programm
🎯auf dem Kölner Alter Markt
⏰️von 13.00 - 16.00 h mit @ulrikevondergroeben.
Wir freuen uns auf euch 💙💙
#MEcfs #MECFSAwarenessday #LongCovid #longcovidkids #fatique #bedbound #liegenddemokoeln
Wound Care & What To Wear After Knee Surgery. (Colourful pastel sweaters are hung neatly on a clothes rack, with a bed at home behind.)
"Baskets or containers are also useful for keeping things you might need together in one place..You can also put different baskets as ‘holders’ in different locations.": buff.ly/3GMEERs
#accessibility #bedbound #PostOpCare #ChronicPain #mobility
#MEcfs & #LongCovid people, especially #housebound folks:
Please tell me about your ideal mental health therapist (over Zoom).
Ideal modalities?
Ideal personality traits?
Ideal medical knowledge?
Etc.
#NEISvoid #therapy #bedbound
We know about the dent in the mattress club.
But where’s the “I bent my bed frame {again}” chronic illness peeps at?
#mecfs #myalgicencephalomyelitis #longcovid #bedbound #housebound #overweight #beingdisabledisexpensive
Just... THIS....
Me:
A successful IT Consultant in Data Analysis working for #NHS in #London #UK
Then this:
#disability #FND #Fibromyalgia #ChronicPain #chronicillness #Disabled #bedbound #wheelchair #parlyzed
#MyalgischeEnzephalomyelitis #ChronischKrank #MECFSAwarenessday #GradDerBehinderung #Pflegestufe #HouseBound
#bedbound #schmerzenlindern
#MEcfs #MECFSAwarenessday #LongCovid #longcovidkids #fatique #bedbound #liegenddemokoeln
Gerne den Beitrag teilen!
Happening in #Berlin...
#chronicallyill #housebound #bedbound support
#MECFS #LongCovid
#MEALTRAIN
Bound to the bed, sensory deprived and gagged… I was in for it this evening 🥵🤤
#bedbound #kink #chastity #bodywriting #bisexual #restraints #hood #gagged #bound #submissive #sensorydeprivation #femdom
A poem titled “Beyond Reach of Tears Sometimes I just want to cry. And sometimes I just do. But so often, mere tears falling are the first rains of the coming storm, of the crash triggered by the slightest exertion, even grieving the life that was but is no more, the one I can only touch in dreams or memory, proves a costly misstep. One of the few constants – the tortuous nature of this illness can never be underestimated. So today, I draw my curtains early, place myself beyond the reach of tears, breathe as gently as I can, and prey to no one in particular that it won’t be like this forever.
One of those days. A poem recently published in Serotonin Press.
#LongCOVID #MECFS
#pwME #PEM #poetry #Bedbound #grief
#LongCOVIDAwareness
A hand-drawn comic with handwritten text. Top reads: "Some Bodies: Telehell." Just below reads: "'Telehealth is a luxury.'" Drawings show, first, a person with brown hair lying down with their head on a pillow and a blanket covering their body. Their eyes are wide. Next image is a close up on the face and wide eyes. Third, the eyes are even closer. Final image shows one eye close up with the word "how?" written on the eye like a reflection of light. The comic is signed "J.R. '25" in cursive.
"Telehealth is a luxury."
For who, though?
#Telehealth #Disability #MECFS #LongCOVID #Healthcare #Bedbound #Accessible #CivilRights #Luxury #SomeBodies
