Family physician, mother, cancer survivor, living and working with ME at BC-CLMF
Independent OT in private practice, coming soon | Supporting Long Covid, ME/CFS, POTS, neuro & cognitive challenges | Lived + clinical insight 💚
Reimagining you 💛 occupational therapy for Long COVID
Navigating life’s rhythms with support that meets you where you are
NHS Highland Consultant in Infectious Disease and NRS Research Fellow. Long COVID, post Ebola Syndrome, post treatment Lyme. Global Health.
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup.
We are a free clinic staffed by all volunteers to treat ME/CFS and Long COVID.
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
Für mehr ME/CFS Forschung!
We promote & finance #MECFS research!
🍋 https://LemonChallengeMECFS.org
ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
😎🌁🎷 #LongCovid March 2020 😵💫
Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
Socrates Professor focused on Medical Ethics and Postinfectious Illnesses (incl. Long Covid). Radboud University, Netherlands
German, English, Spanish
Sociology, Medicine, General Practice
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
Public Health PhD Candidate by day, Piano Teacher by afternoon | she/her
A Medical Food clinically proven to lower fatigue in patients with Long Covid & ME/CFS
Tired of being tired?
oxaloacetatecfs.com
Our readers have understood the concept of Buyer's Remorse since 1979.
Buy the Profanisaurus or Subscribe here: https://lnk.bio/vizcomicofficial
Raising awareness for Long Covid and ME/CFS.
Website - www.notrecovereduk.org
Twitter - https://x.com/lcmebillboards?s=21
young European ME Research Group - A European forum formed with EMERG to support and encourage early career researchers in ME/CFS research
https://youngemerg.com/index.shtml
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
🇦🇺 South Australia
🏳️🌈 Queer
👩⚕️ Retired doctor - ME/CFS & POTS advocate (Doctors with M.E. associate + Australian POTS foundation member)
🌏 Climate crisis advocate (Climate and Health Alliance member + Doctors for the Environment Australia member)
Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth.
CBT + GET for MEcfs = quackery
https://www.researchgate.net/profile/Mark-Vink-2
A space to commiserate & heal from ableism - medical gaslighting - medical malpractice from doctors. TW med trauma.
.
Real stories; use #ThingsDoctorsSay to join the conversation and share your story.
Main account on IG.
Support and advocacy group for people with ME/CFS and Long Covid, their allies, caregivers, and practitioners.
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
To improve the lives of all people affected by ME/CFS, Fibromyalgia, Long COVID, and other Infection-Associated Chronic
Conditions and Illnesses (IACCIs) through advancing awareness, care, treatment and research.
https://www.massmecfs.org
ME researcher at the University of Edinburgh.
ME RESPITE is a registered New Zealand Charity providing practical support to those with Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS) and related illnesses.
Verein zur Förderung der Lebensqualität von ME/CFS-Patienten durch Privatwirtschaft und Politik
www.mirame-arts.org
Collaborative #research center based at Cornell directed by Dr. Maureen Hanson encompassing a variety of projects on #MECFS. Visit our website below for more info.
https://neuroimmune.cornell.edu
Not-for-Profit Organisation supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome) and long COVID.
Education | Research | Advocacy | Support Services
Website: www.emerge.org.au
Donate: www.emerge.org.au/donate/
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Physician. Recovered, Long Covid 2022. continues
John@100apples.com
Metformin, TLR4 quieting, microclot busting, NRF2 promoting, HIF1a limiting approach. “CORE” circ, oxygen, rebuild energy
Tx Long Covid & MECFS
Chief Med Officer Renegade Research
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: millionsmissingpodcast@gmail.com / linktr.ee/millionsmissingpodcast
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Donate to Justice For ME here if you can please 🙏 💙🦋
https://shorturl.at/x1Vyx
themed virtual bake off's raising funds and awareness for ME
Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Transparent to the transcendent.
Wrote a book on Long Covid. - https://jondouglas.dev/longhaul/
Extraordinary claims require extraordinary evidence. - Sagan
ME since 2017 (Mild), 2019 Moderate , 2020 Severe
Long Covid since March 2020 (V Severe)
Funcap55 = 1.9 ( (Severe)
CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
PhD candidate researching ME/CFS at La Trobe University
📍Melbourne, Australia
#MECFS #POTS #Fibro patient/atteinte d’EM/POTS/Fibro- since 2008 🇨🇦
New caregiver of my 19yr old son with severe #LONGCOVID/ME #POTS 😢😭
Former veterinarian
Membre comité scientifique AQEM-
post infectious illness interest
1999 - Sudden virally-induced onset #MyalgicEncephalomyelitis
2011 - Founded Hope 4 ME & Fibro Northern Ireland charity
Acting as Voluntary Co-ordinator, driven by passion for truth
13 years campaigning for specialist #ME service in N.I.
Remain hopeful!
PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Ehemann, Jurist. #MECFS.
Team #SIGNforMECFS. Team #GOfundMECFS.
One of the #MillionsMissing.
ME patient advocate, architect by training
Energetically compromised #pwME and patient advocate (when able) · Research scientist by trade · Interested in how we live · Open-minded but generally sceptical
https://domsalisbury.github.io
Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME.
34 countries so far. £52k raised.
Next race: #39 Sarajevo, Bosnia (26.04.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
PharmD, MS in Biophysics, PhD in Biochemistry
I like taking photos of weird things inside the brain 🔬
Cure #LongCovid
Long Covid Advisory Team: https://whn.global/long-covid-advisor.
daniellebeckman.com
Emergency Med physician (25 yrs) & science journalist | Contributor
@Fortune @TIME @SciAm. Author: Runaway Medicine. Championing evidence, truth & democracy. https://www.carolynbarbermd.com/
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
Patient-scientist fighting for medicine based on SCIENCE; NOT BIAS. Taking a stand against patient abuse, neglect & exploitation. 🦾 Analysing the behaviour of doctors 🧐
Artist, Author, Crafter, Caregiver, Mom to Six adults, a dog, & a cat.
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Respiratory and Sleep Medicine
Neurobiology and Long Cövid
WHN Long Covid Working Group Vice Chair
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Health Research Charities Ireland (HRCI) is the national umbrella organisation of over 45 charities engaged in health, medical and social care research, collectively representing over 2 million people in Ireland. www.hrci.ie
Pediatric Infectious Disease doctor.
Fighting to care for children with Long Covid & ME/CFS.
My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots 🫁
Swiftie 🫶, F1 🏎, cricket 🏏 fan
London, UK
The Center for Infectious Disease Research and Policy at the University of Minnesota
#InfectiousDiseases #PublicHealth #ScienceCommunications
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Love everything Gut Brain Axis related.
Gastroenterologist
POTS, MCAS, hEDS, Long Covid, VCS
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
WashU Psychiatrist (child-adolescent-adult), Physician-Scientist, epidemiologist, artist. Posts are my own and not medical advice.
A neurologist, M.D., mother of a 17-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Physician-Imager: endocrinology & nuclear medicine
#AusMedSky
https://www.linkedin.com/in/kevinleefracp/
