Patient-scientist fighting for medicine based on SCIENCE; NOT BIAS. Taking a stand against patient abuse, neglect & exploitation. 🦾 Analysing the behaviour of doctors 🧐
Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
I believe that TV and other media feed you their narrative “bread and circuses” Stress ,negativity, and sadness.
Nature = healing..... 😃.
Human . Peace .Just 📸 🚫 Politics 🚫 crypto 🚫 Nude
All photos are my own! #travel #hiking ##roadtrip ...
Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Retired 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #IgGdeficiency 💙 Volunteer at @renegaderes 🥩 animal-based keto ♿️ amputee
Former healthcare worker #MECFS #FM
ME researcher at the University of Edinburgh.
Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Diagnosed with #MyalgicEncephalomyelitis in 1990. Bed bound since 2017. Design personalized gifts & ME awareness t-shirts, etc. online. www.zazzle.com/store/dragonfliesanddreams. Typing is hard so not very active on social media. Johannesburg, South Africa
RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Patient/Caregiver-led nonprofit 501c3 focused on #MECFS and #LongCovid • https://Renegade-Research.org 💙 Runs project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
Physician | Scientist | working on Long Covid
PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Queer, enby (they/them), wheelchair using scientist ♿🌈 M.E/CFS, endometriosis, autism, mental health issues (and more!). Gamer 🎲🎮 Pagan. Work in cancer research. 🧬 Yorkshire. @WheelerDax on X.
new start starts now but how to let go of the past? Anyways startin nov 25 I'm trying to be regular for #fungifriends so if you're here please have a look on these posts!
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup.
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Professor & Chair of Rehab Med in SATX | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
Neurologist and more. https://www.atria.org/doctors/dr-ilene-ruhoy/
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
From the experience of @stitches.today, we bring you the best papers in medicine, daily in your inbox - for free!
Subscribe 👉 www.stitches.today/medicine
Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community.
Sharing #bookrewievs and #liMEricks.
Biomedical Scientist before virus in 97’ triggered ME; a body that no longer worked, lost job I loved. Supporting campaigning for change, for proper diagnosis & management #ME/CFS https://youtu.be/RiwX9Y0NbiQ
Visual Artist and Writer #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #VisualPoetry #PostdigitalPoetry #PoeticWeb
http://www.diktgymnasiet.com
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME.
34 countries so far. £52k raised.
Next race: #39 Sarajevo, Bosnia (26.04.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […]
🌉 bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/
Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo
Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in
Father. Views are my own.
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
NBC Sports Bay Area. Covering the San Francisco 49ers for a few years now. Check out my YouTube channel.
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
49ers and Swindon Town supporter. Engineer. #MEcfs has got in the way of having a life and doing much of anything really.
Housebound and mostly bed bound but longing to do so many things.
Random thoughts and words
Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life
instagram.com/the.rachel.riggs
#EDS #MECFS #Food
#paleo #glutenfree #dairyfree
Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
Faithless from X. Severe ME & MCAS. Used to teach and write. From Otautahi, NZ. Running out of hope. Looking for some more.
PharmD, MS in Biophysics, PhD in Biochemistry
I like taking photos of weird things inside the brain 🔬
Cure #LongCovid
Long Covid Advisory Team: https://whn.global/long-covid-advisor.
daniellebeckman.com
A neurologist, M.D., mother of a 17-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
💛 Österreichische Ges. für #MECFS
⚡ NEWS zu #MECFS #pwME #myalgicE
👇 Informationen, Spenden, Kontakt
http://linktr.ee/oeg_mecfs
https://mecfs.at/
Trying to be a good human. Living with Myalgic Encephalomyelitis.
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
#MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Interested in
history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic,
ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
Trying to leave finance for music but escape plan thwarted by Long-Covid
Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb
n=50 @remissionbiome.bsky.social
Poetry @diktgymnasiet.bsky.social
Derailed by #MCAS #hEDS #MEcfs #Dysautonomia #GravesDisease
Animals deserve better.
Missing Ireland.
Writer at ElizabethMilo.com
#MaskUp
Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
Ex-filmmaker, chronic illness awareness advocate, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. Scotland. She/her.
https://linktr.ee/phoebsbo
Bit poorly. Campaigning for ME research and awareness. Music. Sport. Films. Animals. Spurs. Thomas Dolby. Janey.
Disabled Advocate ♿️🦓ME,LC,AuDHD🌈💙
Nature Lover 🌱 she/her
Trying to find a space of calm in all the chaos. 🫶
formerly{{Passionate Software Developer. Guitarist, singer, songwriter. Foodie and traveller}}. Lover of Art Déco, geometry & Sci-Fi.
Struggling with ME/CFS since 2020. Currently at Bell 40.
Based in 🇨🇭
#MECFS #pwME #MyalgicEncephalomyelitis
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
I run a RE market & asset feasibility study business for Location Strategy. Pacific Sotheby’s DRE# 01978767 | Contact: Julie@JulieYChang.com | 619.292.8881
https://linktr.ee/julieychang
Designer・Architecture photographer・Art lover ・Mof2・ME/CFS since 2020
Ehemann, Jurist. #MECFS.
Team #SIGNforMECFS. Team #GOfundMECFS.
One of the #MillionsMissing.
she/her. probably hungry.
Spotter of patterns, sometimes wishing I could unsee
ME/CFS, Chronic Illness, AuDHD, Still Coviding
Sea-creature, shore-dweller, gardener. #LongCovid #MECFS #POTS. Engaged Buddhism.
i used to think read write teach (literatures of the South/Africa/Australasia/Indian Ocean & climate, colonialism, environment, littorals, the sea, water, women’s stories)
Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
Patient-Led Research for #LongCovid! http://patientledresearch.com
Caregiver for husband. Navigating the rough waves of ME/CFS and hoping for an end to the disease soon.
Interested in research into ME/CFS/MECFS, FND and related conditions. https://medium.com/@cfs_research
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
🇬🇧: Severe ME & long covid
🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
🏳️🌈
ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid
Psychological psychotherapist Heidelberg| Charité Berlin
Advocacy against psychologization of #MECFS, #PEM & #PENE
Research & psychotherapy adapted to ME/CFS
Paper:
https://doi.org/10.3390/medicina59040719
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
Industrial engineer with severe M.E.
Art, astronomy, writing, podcasts, thunderstorms.
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Reptile.
Socialist. Green Party voter.
Marathon Runner
How strange it is to be anything at all.
La vie peut être épouvantable des fois and then it's over.
Living a limited life, missing from many places. Aspiring to be well again. Occasionally bipedal. #mecfs
Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
Surviving MyalgicE, AAG & CVID to tell the story, patient & advocate w/ a JD. Into MEdical, Social & Climate Justice & Arts. Human neutrino/ PwME = ME apolide/ Gnarled pacer. MEssLand Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
