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Member of the Scottish Parliament for NE Region. Shadow Equalities Minister
Labour & Co-operative Member of the Scottish Parliament for Glasgow
Scottish Conservative MSP for Lothian Region
Shadow Cabinet Secretary for Transport
Member of the Scottish Parliament| Equality Campaigner | Dad | Edinburgh | Scotland
🌎 www.foysolchoudhury.co.uk
Member of the Scottish Parliament for Edinburgh Western. Leader of the Scottish Liberal Democrats. Kremlin sanctioned. Dad. 🏴🇬🇧🇨🇦🇺🇦
Member of the Scottish Parliament, Scottish Labour, West Scotland - to get in touch email Katy.Clark.msp@parliament.scot
The Neurological Alliance of Scotland is an umbrella body of organisations that represent people with a neurological condition and those who support them. We work to improve the care and support that people receive.
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
Chair, #MEAction Maryland
@meactmaryland.bsky.social
https://linktr.ee/meactmd
adolescent onset #MECFS, #LongCovid, #POTS, #dysautonomia, #MCAS, CPT2, #migraines, #PostHerpeticNeuralgia, #TrigeminalNeuralgia, recurrent #shingles
Storyteller. Advocate. Stand By ME/CFS!
#StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs since 2009
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Victoria, Australia. Former professional wordsmith. 15+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme.
Pfp: A man wearing a green face mask
Banner: Colorful MEmes from patient-led Long COVID and ME awareness
RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
• Spoonie🥄 • I ❤️ Nature & Wildlife photos 📷 • #ME/CFS • Healthcare worker (COTA) until disabled with multiple chronic illnesses & chronic pain • HERmit • Armchair Traveler • Slipping through the cracks = Medically Induced Hermit 👎•
Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp #StandWithUkraine #StopGenocideInGaza
ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS
Retired Canadian currently living in Mexico. Mostly home-bound and bed-bound with Long Covid since mid 2022.
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment.
Toronto, Canada
Ally of #pwLC
#pwME #LongCovid #POTS #MCAS #MEcfs
💙 M.E.Carer of son aged 32, ME for 13yrs 💙.
RaisingAwareness for
#PwME.
#Carers
#LCovid
#greatestMEdicalscandal
X Edna, M.E.Advocate 🇨🇮
https://www.irishexaminer.com/news/arid-40218716.html
http://www.idonate.ie/aMothersWalkforMECFSresearch
Long Covid since 2022, ME/CFS and POTS. All damage from one infection. Former functioning person. Navigating the grief that comes with this illness taking so much from us.
#CovidIsAIRBORNE 😷
Chronically Creative Person living with ME, POTS, hEDS, MCAS +
Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS
Mastodon: @_trans4m8tion@zeroes.ca
Medically retired PT bc decades-long #ME/CFS, #MCAS, #hEDS, #POTS, #IIH, #CPP. Worked w/ ppl like me in a system that refuses to meet our medical needs. 🩺💉History/GINT B.A. b/f PT. #Alaskan born in #SC. 😉
Happiness is #GamecockWBB🏀🏆 #WNBA #Unrivaled
♿️👩🏼🦼➡
IamMadelinePOD #podcast: https://anchor.fm/i-am-madeline
#myalgicE #disability
Fb/inst/X @madelinenerdfighter
LATEST https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/
WORLDWIDE PETITION pls sign https://bit.ly/Marcia_petition
Love nature, good views, crafty/arty stuff, dogs, watching cycling 🚴.
M.E. Advocacy when I’m able to. Intersectional feminist 🏳️🌈♿️
Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
Avid reader, occasional reviewer. Beginner genealogist & dysgu Cymraeg.
Retired by moderate-severe ME/CFS & chronic migraine.
Managed by Rowan. She/her.
Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Research project on experiences of medical uncertainty in Fibromyalgia, ME/CFS, Long Covid and Chemobrain. Hosted at @manchstm.bsky.social / University of Manchester, funded by the Wellcome Trust
https://t.ly/CYJ7V
Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
https://omfcharitymugs.teemill.com
Mild M.E 2010-15; Severe M.E 2015-date.
🏴From Bed, Beddingham
🎄🎅🎁Christmas lover. Advocado hater🥑 Coeliac & PCOS.
⏳️Patiently waiting for a cure or treatment for M.E⌛️
MSYPs are the democratically elected voice of Scotland’s young people. We want to make Scotland the best place in the world to grow up.
We're not around at the moment, but you can stay up to date on the work of our MSYPs here: linktr.ee/OfficialSYP.
The official account of The Scottish Parliament:
https://www.parliament.scot
Horizontal advocate for #pwME. 🇳🇱 in 🏴. Medically Retired Hardware Engineer. FOSS Fan.
Ally. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
We provide over 700 services to Scotland’s capital city. Follow for news and information on life in Edinburgh.
If you have a service question, please contact us: https://www.edinburgh.gov.uk/contact
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Our 3 million strong audience shows this is the place to read real local news with great photos all day every day. Got a tip?
Contact us - https://bit.ly/46DeluF
Website: https://bit.ly/4eOIisV
Subscribe: https://bit.ly/4gq7cRT
Newspapers: bit.ly/41UDBtS
Local SNP MSP for Edinburgh Northern & Leith ⚓️ former @ScotGov Minister, Lawyer, Campaigner, Bartender & Administrator ✏️ Optimist ➕ Internationalist 🌍
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Scottish Labour Member of the Scottish Parliament for South Scotland. Dad. Queen of the South fan. E Mail ad: colin.smyth.msp@parliament.scot
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
Whatever your research needs, we provide tangible and meaningful insights, that are tailor-made to meet your objectives. #GoodDecision
Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. Scotland. She/her.
https://linktr.ee/phoebsbo
MicrobeTV is an independent podcast network for people who are interested in the life sciences. Our shows are about viruses, bacteria, parasites, evolution, immunology and neuroscience.
microbe.tv/contribute
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
#ME #MECFS science & research nerd.
Focus: medical neglect & misinformation of/about infection driven severe #ME (Myalgic Encephalomyelitis) 🦠
22yrs 🛏️ 🏠 🤢
♥️ but 📛:
🚶♂️+🐕, 📚, 🕺🏻💃, 🎶, 🍹, …
Mild-mannered author | chronically hopeful | https://linktr.ee/henry.anderson
2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. / relapse. Brain/fitness not 'what it used to be'. Beloved Lisnakill Myles-Happy Hound himself 🌈
Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Surviving MyalgicE, AAG & CVID to tell the story, patient & advocate w/ a JD. Into MEdical, Social & Climate Justice & Arts. Human neutrino/ PwME = ME apolide/ Gnarled pacer. MEssLand Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
ME/CFS News Aggregator run by
Yann @me-cfs.bsky.social.
Based on my news aggregator webpage
https://mecfsadvocacy.org/news/community/
(Run by @me-cfs.bsky […]
[bridged from https://mastodon.social/@me_cfs on the fediverse by https://fed.brid.gy/ ]
Edinburgh-based journalist, arts-follower, traveller-around-Scotland. Any views expressed are mine alone. https://www.heraldscotland.com
Artist,partner, mother, keen archaeologist and baker of cakes! Carer for daughter with M.E. for twelve years, housebound for ten of those years.
Based in East of England.
Now also on here. Still me. You might remember me from over there.
Scottish by Choice. YES & pro EU. Atheist. Love rural life, nature, animals, history, music, science & astronomy. Disabled. Intersectionality, human rights & equality. Ally. Say hi! 🙂
Official account of the Aberdeen Evening Express.
Local journalism for the north-east of Scotland worth supporting.
Long term living with ME (over 30 yrs)
Have a lot of crashes but
Still trying
Still hoping
Largs, Scotland
🙋♂️ 20+ years severe #MEcfs.
Mostly horizontal. Dorset uk.
⛵🏎
Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
Founder, Disability Insight. Independent research and policy consultant on disability employment and social security. Founded Chronic Illness Inclusion. #pwME and survivor of medical abuse.
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts are not advice
RCN 20100254
CHY 22039
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
#Watford Underground Hiphop/Rap/Storyteller. Not to be confused with a Womble 😜 #PWME #ADHD 🙏💜😜 x
Author of A Girl Behind Dark Glasses, A Girl in One Room and A Girl Beyond Closed Doors. Casual artist and public speaker too
We produce digital projects for people with purpose in education, culture, charity and social change.
Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.
🌐 thelancet.com
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
National Institute for Health and Care Excellence.
We produce useful and usable guidance for the NHS and wider health and care system.
https://www.nice.org.uk/
Occasional drag queen in verse. Writer, performer, educator, activist Adam Lowe (he/his) as possessed by Beyonce Holes (she/her).
Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German.
Bavaria ,Germany
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
NGO Human rights and anti-defamation campaign in defence of disability rights. Scotland and U.K. - wide. Edinburgh 🏴 Established June 2010
blacktrianglecampaign.org
facebook.com/blacktriangle11
@blacktriangle1 on the fascist’s X 😉
Looking out for blessings: in wildlife, nature, & kindness. Fan of rewilding, life too. Slow Pilgrim, priest.
Usually moderate to mild in views, occasionally sharp. No DMs, will block
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
Collaborative #research center based at Cornell directed by Dr. Maureen Hanson encompassing a variety of projects on #MECFS. Visit our website below for more info.
https://neuroimmune.cornell.edu
Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.
Boonwurrung country, Australia
Scientific Director, #MEAction
Stanford Med
Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease #ME (not CFS) for 28 years.
#MyalgicEncephalomyelitis #pwME #MyalgicE (#MECFS #CFS) #LongCovid #ChronicIllness
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Eclectic Mother and ME Advicate. Bag maker and same with a passion.
Dean of Strategic Economic Engagement @ University of Glasgow & Hon Professor @ QMU. Former Scottish Government Health Secretary. Politics, books, health policy and ideas. Views my own.
