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Cochrane is a global independent group of researchers, professionals, patients, careers, and people interested in health. We are the US network!
Learn about our group here👉 https://us.cochrane.org/news
Behavioral health scientist specializing in tech & infrastructure in international dev/aid. CEO of mWater & Solstice, the world's largest platform for managing water, sanitation, & health.
mwater.co
solsticeinstitute.com
Mom of 3, partner of @jfeighery
Postdoctoral Fellow at MUSC | Driving Patient-Centric Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Patient-Led Research Initiatives
https://linktr.ee/CortDoesScience
The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) ehlers-danlos.com
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Immunologist | Flow Cytometrist
Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS
Senior Research Fellow
Liggins Institute | University of Auckland
DysImmune Research Aotearoa
www.dysimmune.nz
🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp #StandWithUkraine #StopGenocideInGaza
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions.
USA nationally certified Medical Laboratory Scientist who has traveled to 11 states in 20 years,
works overnight shift, and loves Microbiology and Blood Bank!
(Also singing, reading, cooking/baking, & cuddling/playing with her Mom's kitties! 😻)
Long Covid, MECFS, ADHD, etc.
Patient-led research is my jam.
A bit obsessed with GIP.
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈
Homebase: Berlin
Former professor and physical therapist/ athletic trainer disabled by Long COVID since 2021. #LongCOVID #POTS #MECFS
Education researcher turned migraine advocate
#MigraineChat moderator
VT maple syrup aficionado
🚫 Unsolicited advice
She/Her/Dr (PhD kind)
Header: Dinosaurcouch
MigraineChat Resources & Discord:
https://campsite.bio/migrainechat
MC feed/starter pack👇🏻
National nonprofit led by people with lived experience helping families navigate pediatric Long COVID with support, resources, and advocacy.
Co-Founder Unitetofight2024, Pharmacist, Long Hauler since 2020
Neo-artist & ex researcher with severe #MECFS, very severe #MCAS, #CSFleak & more. Co-founder of blackferkstudio.com (art & science for ME/CFS). 💘 for piglets. PhD in social sciences. 🇦🇹. Insta & Masto: judyintheskynet
https://linktr.ee/Judyintheskynet
Ex-filmmaker, chronic illness awareness advocate, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
MD | rheumatology resident
#ME due to #LongCovid
Nonbinary 🌈🌈🌈🌈 | views are mine.
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli
@ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI
Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
Pediatrician, MD, Believe in science, takes SARSCOV2 as serious as it should be treated, Can‘t believe that science is that ignorant
Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
UK charity dedicated to supporting people with Long Covid
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
Founder - Renegade Research
#MECFS #LongCovid
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Scientific Director, #MEAction
Stanford Med
Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Caregiver. #mespine #cci #eds #mecfs
Shamanic master of tales to be sung… | linktr.ee/grimhood
Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky
Team hope/good trouble/go high💙
https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
Opinions expressed are mine, but also yours if I do my job right.
ER doctor at Brigham and Women's in Boston, Harvard Medical School.
Words in: NY Times, WaPo, Atlantic, Slate, CNN. I'm also "editor-in-chief" of MedPage Today and write "Inside Medicine" on Substack:
https://insidemedicine.substack.com/subscribe
Founder of the #ExpatriaProject
I won’t say I told you so.
Documenting stories of people fleeing the US vnorris@tulane.edu
FACEP FACEM ABPM-CI. HealthNZ AI & Christchurch EM. Annals of EM Podcast & Journal Club. Columnist ACEPNow. Speaker, writer, dad. Stanford '00. evidencetriage.com 🇺🇸 in 🇳🇿
The strength is in the strain.
#DontGiveUp
Anaesthesia. ICM. Mitochondria. Evolution. Once slept in a museum.
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
#pwME and science/data nerd. co-founder #MEAction. Mostly post about #millionsmissing, #MEcfs, #LongCovid, #microbiome, #MCAS, #POTS, #citizenscience, and #healthequality. CS @MIT
Eclectic Mother and ME Advicate. Bag maker and same with a passion.
News, interesting information and commentary on ME/CFS.
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Professor of Pediatric Surgery #some4surgery #some4pedsurg #sminaev #PediatricSurgery #surgery #HydatidCyst #SurgSky #MedSky
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS.
Stockholm, Sweden
Curious about behaviour. Author account.
Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rehabilitation
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
The first charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Some might remember me from Twitter as @haulerlong (english) or @ar_covid (swedish, ’Immunitetsexperimentets offer’).
Long covid since 2020. Interested in connective tissue #mespine #eds #cci
Covid is airborne.
Dad of 4 | Professor of Clinical Medicine and Pulmonary and Critical Care physician at IU Med School | Former President of @goodtroublein.bsky.social | he/him | Host of the Hoosier Health Matters Podcast I run to stay sane
Welcome to the Recumbent Renaissance. Freedom’s just another word for nothing left to lose. Amor fati. Remission Biome R50. She/her.
Philly/NJ. Drummer. Music nerd. Concertgoer. Hiker. Dog guy. Food guy. Sports guy. Blue votes. Black T-shirts. Lawyer too.
Writer and poet | Editor of The Yale Review | Professor of Creative Writing at Yale | playing with a Substack about writing
Most recent book: THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, which was a finalist for the nonfiction National Book Award.
🌹 Etsy shop: 🕊️ https://aposstash.etsy.com 〰️ she/they 〰️ parent of birds & cats 〰️ lapsed musician, future larper, agitpropist 〰️ anarchism/ecology: https://tinyurl.com/mcguirezine 〰️ N&E Syria: https://tinyurl.com/AANESpdf 〰️
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
Patient-Led Research for #LongCovid! http://patientledresearch.com
Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Physician, Researcher, Advocate for the notion that an ounce of evidence is worth a pound of opinion. @brownpublichealth.bsky.social
My views are solely my own (who else would want them??)
Ex philosopher, Ex Singer-songwriter, Ex Healthy person
Long-term severe #MEcfs #hEDS
Expect sarcasm.
#DrsAreDickheads
Increasingly grumpy `healthy control’ research participant.
Working to develop a way to involve patients and the public in designing health research (e.g. trials) from the earliest stage.
Increase relevance, reduce bias, (and my grumpiness)
Strategy+#CloudShepherd HistPol1st💚 ConstitutionalLaw FinEcon Cloud AIML FOSS Linux #MECFS Postdocing @DoctorsWithME Board #MyViews @richard4444@fosstodon.org
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
https://renesugar.substack.com/
been making URL to IRL friends since 2015
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
computational biologist | PhD | personal opinion
LinkedIn: http://linkedin.com/in/christine-s…
Specialist Physician and Clinical Lead ME/CFS and Fibromyalgia UCLH
Long Covid hEDS
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
GO BIRDS. Go Phils. Lesbian. Dogs and Baseball give me life 💚⚾️ she/her
Mirame Arts || #MECFS || #Jurist ||
Disability rights & sausage pics. Chief DWP botherer/ journalist at The Canary. Author of Ramping Up Rights. She/they.
https://linktr.ee/rachelcdailey
