Sharing insights, resources, and experiences on Long COVID recovery and research. Visit www.longcovidjourney.com for more. #cleanair, #covid #LongCovid #ChronicIllness #HealthResearch #PatientAdvocacy
For music go to: @otherdays.bsky.social
For COVID, public health, politics, etc.. stay here...
German, English, Spanish
Sociology, Medicine, General Practice
Posts about #LongCovid and #MECFS
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
German Neurologist with special interest in Neuro-COVID and Long Covid
PhD geography: money & finance • Life mostly on hold from Long Covid 03/2021 • 개리말고 가리
________________
🇮🇪 | https://linktr.ee/g_a_r_y
‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages. Woke AF
meownersclub@bsky.social
Maker of #FanningTheFlames
Bestuurskundige | Amerikadeskundige | Campagnestrateeg | Partner bij Publyon | Seriejunkie | Trekkie | Motorrijder | Moeder van 3 http://bit.ly/2TNvNol http://bit.ly/2Cd0zj8
Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Copywriter. Gamer. Geek. #MECFS. Mostly tweet about Marvel, Lego and food. AKA DeNeo on rllmuk / mashups.
enkel MEmorabele tweets, uh blueskies? skeets? ....whatever!
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geïnteresseerden.
https://mecentraal.wordpress.com
https://www.facebook.com/MECentraal
mecentraal@gmail.com
Journalist + author
https://kathrynbromwich.com
🇨🇦🇿🇦 • writer • photographer • Long COVID first waver • vaxxer • masker • maker of Corsi-Rosenthals • Yukoner • Antifa
🇩🇪🇧🇷 Postdoctoral researcher at WEHI, Melbourne 🇦🇺 Working on inflammation, cell death and long COVID
Long Covid (>4yrs), ex-teacher, trainee counsellor, survivor, proud ally🏳️🌈, fan of the Oxford comma, the correct use of apostrophes, and marmalade
non-practicing intellectual on war & tech
NL/EN
I am both a doctor and a patient (other chronic illness than post-COVID). So I know both sides of the bed. Very educational.
Immunologist curious about viruses, cancer, evolution and all things human
Likes all #systems thinking and still working out all the #omics 🤓
#immunosky #medsky #idsky
Human geography PhD student at Swansea University, Wales🏴, UK | she/her | cultural, political and health geographies, memory, social and political effects of the Covid-19 pandemic
Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Passie voor onderzoeksjournalistiek & literaire non-fictie | Auteur van ‘Landziek, een medische geschiedenis’ | Vogelaar vanuit huis | Zin in meer natuur | ME/POTS
Once a performer, now a Covid Long Hauler
ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
Waiting to see the end of the greatest MEdical scandal of the century
ME/CFS 🧠
I’m a qualified Dr /Psychiatrist, life is currently on hold due to Long Covid complicated by Covid vaccine injury. I used to be a travel junkie, gym goer, party lover.. trying to get my life back!
I moved to Spain to be with my parents whilst sick.
Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots 🫁
Swiftie 🫶, F1 🏎, cricket 🏏 fan
London, UK
Every violation of truth is not only a sort of suicide in the liar, but is a stab at the health of human society. -Ralph Waldo Emerson
Nephrology StR • Medical Education Fellow & Doctoral Candidate • Interested in Widening Participation & Professional Identity Formation • Exercise Enthusiast (with #LongCovid 😷)• Lover of Nature & the Great Outdoors • Vegan & Cruelty-free 🌿🏴
pwME, former Astronomer and physicist. Love audiobooks. Social justice advocate, library worker, still masking, bunny mom, Iranian living in the US
41-jährige Münchnerin mit #MEcfs nach einer Corona-Infektion im April 2022, die Hörbücher 📚, Podcasts 🎙️ und die #kleineKunstklasse 🎨 mag.
One of #MillionsMissing since 2002
#MEcfs Diagnose 2021
🐦 @will_ins_Gruene
Retired 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #IgGdeficiency 💙 Volunteer at @renegaderes 🥩 animal-based keto ♿️ amputee
Bedachtzaam en onbehouwen.
Communicatieadviseur.
Eindhovenaar met Tilburg int hart, PSV, سوزان, tante, lover, longcovid pt, daggebedanktzetdawitte! GZ-psycholoog; forensische psychiatrie, vw ziekte homebound ❤️🐶🐈⬛🐈
Long Covid since May 2022. Chronically ill.
Likes Community, real science & research. BPS types & anti-science folk can move along.
Surviving MyalgicE, AAG & CVID to tell the story, patient & advocate w/ a JD. Into MEdical, Social & Climate Justice & Arts. Human neutrino/ PwME = ME apolide/ Gnarled pacer. MEssLand Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Nach EBV Reaktivierung und #longcovid an #MECFS erkrankt.
https://x.com/donata1608?s=21&t=F8uKwluVNekKRdF5TBO1Pg
Living an increasingly small life enforced via chronic illness yet striving to embrace snippets of delightfulness wherever and whenever I can
#MillionsMission
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Long COVID and HIV cure clinician and researcher
Post covid, 100% disabled (WIA, Netherlands). Father of three. Msc in ecological crop protection and plant breeding. Loves photography, forever DM for my family and adults, and short story teller. Now learning how to cook smarter with LC.
No DM's please
ME after covid infection Feb'22. Young dad. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
#MECFS lange mild | arbeitsunfähig seit SARS-CoV-2 05/2022 |
#LongCovid #MCAS #POTS | Wissenschaft, Forschung, Therapie & Aufklärung | #MEAwareness 💙 | Hoffnung & Empathie |
#cleanAir | #CovidIsNotOver 😷 |
she/her | 🇩🇪 Germany
Silly smeepy squeaky husband. ME and Chronic Lyme.
🎮
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Pediatric Infectious Disease doctor.
Fighting to care for children with Long Covid & ME/CFS.
My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
🤯DEPUIS 2022:CovidLongue
😇AVANT:Journaliste gaspésienne/Agente comm à Parcs Canada/5à7teuse/ Cueilleuse sauvage/Jardinière
📍Gaspésie, ⚜️ 🇨🇦
#covidlong #longcovid #covidisairborne
Wij laten zien welke mensen we missen in de maatschappij omdat ze #NietHersteld zijn.
📣Actiegroep die zich inzet voor de honderdduizenden met Post Acute Infectieuze Syndromen (PAIS) zoals Long Covid, ME, Lyme, Q-koorts, Post Sepsis
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
spatial research, gis • graphic design • painting
🪫 currently at a lower energy capacity due to covid induced #mecfs (mild-moderate myalgic encephalomyelitis)
After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Strategisch adviseur dienstverlening gemeente Haarlemmermeer met ❤ voor #Inclusie en #Menselijkemaat | #LongCovid sinds maart 2020
https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS?si=28A_WIrDTrW1dsHVM8Rdkw
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Scientist+Engineer. Infectious disease modeler. Posts and spelling mistakes my own
One of the Long Haulers.
#CovidIsNotOver #DieMaskeBleibtAuf #CoronaStoppen #CovidIsAirborne
Pharmacist interested in Long COVID and ME/CFS research
Pro-mask, pro-clean air!
Substack: https://pharmd.substack.com/
Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth.
CBT + GET for MEcfs = quackery
https://www.researchgate.net/profile/Mark-Vink-2
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
One of the #MillionsMissing Koester herinneringen aan literatuur, IT, sport, avontuurlijke reizen en veel meer
ME/CFS | Long COVID | IACC | Stand with Minnesota
I started a podcast for those with Long Covid, ME/CFS or chronic illness. "A Friend for the Long Haul" is a podcast about long covid that aims to be a supportive companion. On Spotify, Apple Pods, everywhere, really.
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
Father, creative, thinker, asks questions. Since 1997 mild MEcfs, since early March 2020 rather severe longcovid. Dutch & English
LongCOVID early 2022 gave NAH/Non-Traumatic Brain Injury (still smart 😉) & PEM. Life changing.
Life is too short to be lived in the shadows. So I still love & enjoy life. Navigating the complexities of #longCOVID with wit and determination.
#postCOVID
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
Most of the time a homebound spoonie living with my hubby and bunny in Belgium
Independent Scientist
Images: https://davidlingenfelter.slickpic.com/gallery
Essays: https://davidlingenfelter.substack.com
The official Bluesky account of the World Bollard Association™️. MERCH STORE - https://worldbollardassociation.team-togs.com/shop/storeorderform.php
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Onafhankelijke patiëntenvereniging voor én door #LongCovid patiënten. Volg ons ook op FB, X, LinkedIn en Instagram. Lid van oa Post Covid Netwerk Nederland en Long Covid Europe. longcovidnederland.com
29 | voormalig jeugdzorgwerker | Long Covid sinds sept. '20 | is graag creatief bezig ⬇️
www.handmadebyjuud.nl
To the world you may be one person, but to one person you may be the world.
| Science | Posts are personal views.
M/D
Host, Bubble People Podcast, on disability and the media.
Author, journalist, media critic. Long Covid etc.
Life on hold since 2021 #LongCovid #POTS #ME
Psychologist for 25 years CBT, EMDR, ACT.
Here to advocate for biomedical research & treatment #PAIS #IACC.
Painfully aware of the harm that was done by my profession to PAIS patients.
MD, was resident radiology, now 4+ years long covid
🇳🇱 🇬🇧
LongCovid, MEcvs, POTS en MCAS sinds oktober 2020.
Voorheen autisme specialist MSEN, persoonlijk begeleider VG zorg, nu WIA, IVA
Samen met @marcbalemans en labrador Fiep
formerly{{Passionate Software Developer. Guitarist, singer, songwriter. Foodie and traveller}}. Lover of Art Déco, geometry & Sci-Fi.
Struggling with ME/CFS since 2020. Currently at Bell 40.
Based in 🇨🇭
#MECFS #pwME #MyalgicEncephalomyelitis
Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
zo nodig dwars |verzekeringsarts | jurist | phd | docent | schrijven | lezen | zingen | radio dj | kunst & kunde | semper fi | www.jimfaas.nl
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
Help people with Long COVID by posting a review of your doctor or a treatment you've tried: http://HelpForLongCOVID.com - All opinions my own.
LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..)
Love animals, science, nature, history.
Once an active girl; swimming and hiking. Have 2 lady-cats.
Art, history, science and my significant other. 💕
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
